Living with arthritis — Versus Arthritis https://community.versusarthritis.org/ 星期二,2022年5月24日09:27:16 +0000 en Living with arthritis — Versus Arthritis How long to get meds right? https://community.versusarthritis.org/discussion/56394/how-long-to-to-get-meds-right Thu, 17 Feb 2022 16:36:28 +0000 Living with arthritis 塔姆斯布 56394@/讨论

What medications are people taking for RA and how long did it take to get them right? I’ve just started Methotrexate and wondering how long before I get some relief. Also, I read here that some people take folic acid every day apart from Methotrexate day, why is that and what are the benefits?

Thanks in advance!

新的肩膀 https://community.versusarthritis.org/discussion/57659/new-shoulder 星期二,2022年5月24日08:23:43 +0000 Living with arthritis hmr 57659@/讨论

嗨。我现在进入了反向肩部替换后的第9周。我只是想感谢这个社区在操作前的支持和建议。这是如此的帮助和令人鼓舞。顾问对我的进步感到非常满意,只要我做我的生理学,我的运动就会有所改善!那是困难的!有人告诉我不要期望完全移动,但应该没有痛苦。肌肉疼痛,但是昨天我将洗衣服挂在线上时感到非常兴奋 - 无痛!所以谢谢您,如果我可以帮助您回答任何人的疑问,请给我留下一条线。


炎症性障碍 https://community.versusarthritis.org/discussion/57629/inflammatory-Athrisis 星期五,2022年5月20日15:36:52 +0000 Living with arthritis 卡西诺娃 57629@/讨论

大家好,

我手中遭受了(但直到最近才被诊断)患有炎症性关节炎一年,我也刚满27岁。

感觉就像它完全破坏了我的生活,并为获得支持和正确的药物而感到痛苦,这些药物不会导致我的整个身体崩溃。我不能再做自己喜欢的事情,而且我的工作人员已经消失了,因为我再也无法跟上了。

不确定我可以从这个网站上获得什么,但我认为建议会很棒。 Can you use a exersoe bike with bone on bone knee oa https://community.versusarthritis.org/discussion/57618/can-you-use-a-exersoe-bike-with-bone-on-bone-knee-oa Thu, 19 May 2022 12:38:05 +0000 Living with arthritis Blueskyday68 57618@/讨论

嗨,您可以使用带有骨头骨头骨骨的exersoe自行车是否想使用,但不确定我可以

Medical cannabis diary: Part 3 https://community.versusarthritis.org/discussion/57653/medical-cannabis-diary-part-3 Mon, 23 May 2022 17:02:14 +0000 Living with arthritis rubikscubeboy 57653@/讨论

As an update for those interested, my case is being discussed this evening to see if I am the right type of candidate to participate in the feasability study for medical cannabis and the treatment of Chronic Pain. I have attached the link for reference.

I appreciate that this is not for everyone and I understand that this is very expensive and may be frowned upon but there are other options out there for Chronic Pain.

Cheers Danny

https://lvlhealth.co.uk/


我应该骑自行车7英里(总共14英里) https://community.versusarthritis.org/discussion/57529/should-i-cycle-7-miles-to-work-work-work-14-total Sat, 07 May 2022 21:34:54 +0000 Living with arthritis Baloo 57529@/discussions

I'm shuffling to work on public transport about 8,000 - 12,000 steps a day, with stiff hips, knees, and ankles, and a curious side affect is I can now jump on my bicycle and its almost as if nothing was ever wrong. Legs get over the saddle, knees work, arms feel kind of dodgy but nothing wobbly happens. It feels great. Should I seriously consider going ahead and try to cycle the whole way to work and back. It's a long way. What if it sets off a worse condition?

您如何处理缺乏GP支持? https://community.versusarthritis.org/discussion/57648/how-do-you-deal-with-with-with-with-lack-of-gp-support Mon, 23 May 2022 10:14:52 +0000 Living with arthritis tonyjdbrown 57648@/讨论

我很长一段时间都有关节疼痛,而我当地的全科医生并不真正感兴趣。换了工作,让Bupa如此设法看到了一位顾问风湿病学家,他下令X射线,MRI和血液屏幕诊断OA手中的OA,臀部,Sacro-limiac和脚。我被开了eToricoxib的处方。然后,我发现自己变得非常头晕,血压射击起来。因此,NSAIDS上的冷火鸡不已,并持续了GP。And I cannot get an appointment!! In fact the receptionist suggested that I might try taking the Etoricoxib again to see what happens.

How do you deal with a surgery that doesn't appear to take arthritis that seriously. I am now back to square one it seems.

没有得到医生或顾问的帮助 https://community.versusarthritis.org/discussion/57646/getting-no-help-from-doctor-or-consultant Mon, 23 May 2022 09:18:17 +0000 Living with arthritis Maisy1 57646@/discussions

I’ve tried everything for pain that is possible due to other medications I received one spine infection with no relief and three in my left knee which made no difference Please tell me how I can ease my night time knees pain

Rhupus https://community.versusarthritis.org/discussion/57642/rhupus Mon, 23 May 2022 08:42:12 +0000 Living with arthritis 322 57642@/discussions

Hi there Has anyone heard of Rhupus (combination of rheumatoid arthritis and lupus) ?

managing severe chronic pain https://community.versusarthritis.org/discussion/57643/managing-severe-chronic-pain 2022年5月23日星期一08:49:04 +0000 Living with arthritis Oldie 57643@/discussions

我今年80岁,由于脊柱颈部和肩膀的关节炎而患有非常严重的慢性疼痛,并且脊柱的弯曲感到绝望。 无法入睡 https://community.versusarthritis.org/discussion/57516/cant-sleep Fri, 06 May 2022 01:04:58 +0000 Living with arthritis etta 57516@/讨论

Hello

I can see there are a few of us online I have been awake for two hours in pain. I have osteoarthritis in both my hands the x rays showed severe damage to my bones and ligaments in the thumbs particularly the right one.. I just thought I would like to chat with someone.

脚/脚踝肿胀和普通爆发:( https://community.versusarthritis.org/discussion/57640/foot-ankle-swelling-and-general-outburst Sun, 22 May 2022 20:55:21 +0000 Living with arthritis Mrsk22 57640@/discussions < p >你好!< / p > < p > RA(我在调查中steroids and awaiting bloods).

Don't get me wrong, I have been in some pain, but the worst bit of it all has been my horrible foot, ankle and lower leg swelling! I'm just struggling to believe this is a symptoms, as daft as it sounds. The swelling gets worse when I've been on my feet for long periods, or in hot weather. I'm left with severe indentations after wearing socks and shoes for a short period.

It looks horrible and especially with summer approaching, it's really getting me down.

I've attached some photos.

Is this super common?? The swelling is on top of my foot. Nothing in toes..

Thanks!

On another note.... I'm a midwife and currently signed off working my 12.5 shifts. I have no idea what my career is looking like now. This makes me cry ...


Interesting article on Turmeric and Osteoarthritis https://community.versususarthritis.org/discussion/57638/interesting-article-turmeric-on--turmeric-and-sosteohrohrohnitis Sun, 22 May 2022 15:08:04 +0000 Living with arthritis N1GEL 57638@/discussions

Hope it's ok to post a link to a newspaper?

The gist of it is (for OA): the anti inflammatory properties of Turmeric are recognised but the problem has been delivering it into the body in amounts that are going to be meaningful - combining it with black pepper might be the answer. I'll give it a try again.

https://www.theguardian.com/science/2022/may/22/does-turmerics-reputation-translate-into-real-health-benefits

Cookbook for Rheumatoid Arthritis https://community.versusarthritis.org/discussion/57639/cookbook-for-rheumatoid-thritis 太阳,2022年5月22日19:40:55 +0000 Living with arthritis 尼古拉斯 57639@/discussions

I’m looking to change my diet to see if this help with my RA (early diagnosis). Can anyone recommend a good cookbook. There are lots out there and I’m not sure where to start. Do they all follow the same rules about what foods to avoid, such as red meat? Any suggestions much appreciated.

I already eat a varied healthy diet, with lots of fruit, veg, red and white meats, fish, cheese etc.

Sprouted Grains https://community.versusarthritis.org/discussion/57641/sprouted-grains 太阳,2022年5月22日21:41:07 +0000 Living with arthritis GalaxyA12 57641@/discussions

嗨,请问有关发芽的谷物或经验以使关节炎健康发芽的任何经验?

尝试了10天在网上研究在线研究后,尝试了生物零食品牌罐和苜蓿籽险可以将罐子返回为9英镑!如果在准备在花园里倒在花园中以替代发芽谷物之前,请尝试一下我的草药幼苗吗?好主意。

感谢Galaxy A12

Shoes Orthopedic for Town hard surfaces walking eg Pavements https://community.versusarthritis.org/discussion/57555/shoes-orthopedic-for-town-hard-surfaces-walking-eg-pavements 2022年5月11日,星期三20:12:42 +0000 Living with arthritis GalaxyA12 57555@/discussions

我一直在使用步行靴北面的前慈善商店,其中包括奇妙的灵活舒适的鞋底,但城镇已经破坏了鞋底,因为我在UC上可以负担得起的所有东西。我有一个少量的UC货币增强功能,因此需要一个新的步行靴或培训师,其骨科鞋底是为城镇表面设计的。我被告知价格为100英镑?我绝对的麦克斯支出!已经提到ASIS和HOKA品牌是吸收骨科冲击的鞋底。我必须在网上尝试鞋子。我住在苏格兰高地,所以只有一个城镇可乘公共汽车40英里外,每间都有2个步行店,每个城镇都带有这两个品牌之一。我对硬度和柔性型术鞋底有关联。任何成员的建议 - 我的OA不好,现在可能的类风湿病,但是有一只小狗,我必须每天两次在我的城镇上行走,例如2英里,到小镇的公共汽车几乎每天都需要多户城市,而且几乎每天都需要多人。有任何品牌的建议吗?

Any advice any brands

Cigarettes & Alcohol (& Adalimumab) https://community.versusarthritis.org/discussion/57636/cigarettes-alcohol-adalimumab 太阳,2022年5月22日10:43:04 +0000 Living with arthritis rubikscubeboy 57636@/讨论

您好,People

任何人都可以提供有关饮酒和每两周一次注射的建议吗?我发现的信息说这是可以适度的。我不打算生气,但想在花园里喝几杯啤酒,现在天气越来越温暖。在除夕,我在2月的第二次髋关节置换时完全停止了饮酒和吸烟。我现在已经进行了手术,并完成了手术毒品,并设法将我的可待因和扑热息痛从每天的4次降低到每天的一次,如果需要的话,也许是每天一次回到睡眠状态)。

我仍然每天两次服用最大剂量的磺胸嗪,明天我每两周一次注射我的第三次。我今天可能有1杯啤酒,但会避免在注射的那天和几天内避免使用任何啤酒。

我患有类风湿关节炎和银屑病关节炎,目前正在等待双侧膝盖时使用轮椅替换。

我仍然没有香烟,但想让我的一些旧生活恢复过来。

干杯丹尼

My Right Knee https://community.versusarthritis.org/discussion/53270/my-right-knee Sun, 13 Dec 2020 17:49:26 +0000 Living with arthritis 克里斯 53270@/discussions < p >大家好我以来一直就在一年多ad my last right knee operation. the surgeon performed micro facture to my knee joint to try and encourage cartilage growth. Six weeks on crutch's and weeks of physio  . the pain and stiffness never changed and the constant crunching from the inside of my right knee never improved the last meeting I had with the surgeon in February resulted in him saying the pain and stiffness may be physiological and recommended me to a pain clinic. then Covid happened. In July I had reached a point of utter frustration. I paid for a private consultation to see a Knee professor in Harrogate he accessed all my MRI scans and Xrays. The consultation was great he basically said the MRI scan and Xrays were definitive I had osteoarthritis due to cartilage loss and damage in just one compartment of my knee and I was bone on bone when walking or standing in the medial part of my knee. He said I had two options either put up with it which I have been doing for over three years now or have a partial knee replacement. He said it was pretty obvious and even though I am only 47 this condition is pretty common. I immediately got referred to him through the NHS. I did ask him why this had not been offered to me two or three years ago? He replied by saying my age would be a concern for some surgeons, but he did not see it that way, why wait when your quality of life is bad and in constant pain. Yes I may need a complete Knee in 15-20 years but that is not now.

Roll on 5 months I have seen the surgeon again and he still stands by his prognosis he also put me on the waiting list back in July so hopefully early next year. I am relieved there is a light at the end of the tunnel but also very frustrated and annoyed at having to struggle and limp and take 8 tablets a day just to manage to work. the only positive I had gained from three years of constant pain is I have huge empathy with other people who fight daily in pain and huge admiration form hearing how other people cope and carry on living with Arthritis. Stay strong people and Merry Christmas 

Walking & exercise https://community.versusurthritis.org/discussion/57634/walking-exercise Sun, 22 May 2022 08:42:22 +0000 Living with arthritis 克莱尔73 57634@/discussions

因此,在被诊断出患有炎症性关节炎后,我在一开始就发现事情很艰难,我只是无法将其弄清楚。几个月后,我为自己感到难过,我现在处于不同的头脑中。我已经开始与医生交谈的药物,现在我已经开始照顾自己的更多,现在我开始做一些锻炼,走一点我的心情做得更好,甚至做了一些游泳。我在网上也发现了有关饮食以及哪些食物可以帮助我的关节炎的东西。

只是以为我会和你分享这一切都是关于生活的,这就是我要做的

Total Hip Replacement Surgery with Spinal Anaesthesia / Epidural - My Experience https://community.versusarthritis.org/discussion/57394/total-hip-replacement-surgery-with-spinal-anaesthesia-epidural-my-experience 星期三,2022年4月20日22:50:29 +0000 Living with arthritis C1955J 57394@/讨论

Hi All

I'm delighted to say that I have finally had my surgery after being on the waiting list for a year and ten months for a total right hip replacement, which had been bone on bone for the past fourteen months.

Initially I was extremely anxious about having Spinal Anaesthesia but had no need to have worried. It was a really positive experience which I am happy to share with you.

I was of course given the option of a Spinal or General Anaesthetic. After having it explained to me that with the Spinal Anaesthetic I would feel less drowsy afterwards, there would be less chance of me feeling nauseous, a reduced risk of requiring a blood transfusion and I would be able to eat and drink fairly soon afterwards, I opted for that, with the knowledge that the option to change to a General Anaesthetic if required still remained.

As I was so anxious I chose to be sedated to make me more relaxed.

I was given a pre-med and then sat on the side of the bed in the anaesthetists room where the anaesthetist administered a measured dose of local anaesthetic by injection to my spine. I then was turned onto my side, lying on the hip that was to be operated on for the anaesthetic to drain downwards.

Within a few minutes I was numb from my waist downwards. This was checked by spraying a cold spray onto my leg which I couldn't feel at all.

The next thing I knew I was waking up in the recovery room and was then transferred to my own bed. I had absolutely no side effects and was sitting out of bed by lunchtime enjoying a light lunch and chatting with the nurses. That same afternoon I was encouraged to use a walking frame to visit the bathroom. I was given a strong pain killer before going to bed to allow me a restful night. I was never in any significant pain at any time.

The following day I had three sessions with the physiotherapist. By late afternoon I was able to walk with two sticks, climb 12 stairs and was given several exercises to aid my mobility and recovery.

That afternoon I was taken for an X-ray, to check that everything was fine with my new hip. Following that I was seen by the Consultant and discharged home.

I was given paracetamol and codeine to take for pain relief if required. I'm pleased to say I didn't need to take the codeine at all and am just taking six paracetamol a day at the moment.

I can't believe I was only in hospital for one night and discharged the next.

It was such a positive experience and I'm now on my way to getting my life back on track.

Methotrexate https://community.versusarthritis.org/discussion/52116/methotrexate Mon, 11 May 2020 12:43:47 +0000 Living with arthritis Brian448 52116@/discussions

Hello anybody, I'm currently on 6 , 2.5 milligrams of methotrexate once a week, so far they are not working.

I've been on them 4 months , hands ,wrists knees shoulders and elbows still in pain . How many tablets does it take to work ?

Hello from Italy https://community.versusarthritis.org/discussion/57624/hello-from-italy Fri, 20 May 2022 05:41:29 +0000 Living with arthritis nicholaj 57624@/讨论

Mixed bag of feelings from the beautiful Italian Lakes. Pleased to have managed to get here but sad that this, the first holiday abroad since Covid is being experienced with so much pain at times.

Not helped by the fact that the bed in our holiday home is rock hard so getting very little sleep some nights.

My arthritis seemed to come on so quickly a year ago that I am still shocked at how different my life has become. I seem more aware of this difference whilst here on holiday than I do at home where managing as active a life as I can has become the norm.

However, looking across Lake Como at warm sun, eating superb Italian food and exploring the mountains (albeit without much walking) are things I am still lucky and to be glad to be able to do.

建议!操作髋关节置换手术 https://community.versususarthritis.org/discussion/57628/advice-ops-hip-replacement-serergery 星期五,2022年5月20日12:09:35 +0000 Living with arthritis BlueEyedMumma 57628@/讨论

大家好,

我在这里是新手!在27岁的小时候,我被告知我需要一个替代品。

有点背景,因为这并不是完全出乎意料的。我天生有类似于髋关节发育不良的东西(但我没有插座可以进入),所以我在2岁,4岁,最近14岁时进行了矫正手术。我想我很幸运sense as I am conditioned to the pain now and manage well enough day to day by taking amitriptyline at night but my recent scans show my ball is really flattened and socket shallow (which explains my limp!). My consultant recommends surgery within 6 months but wants to do an OPS replacement.

I have never heard of this type of replacement and involves 3d printing and movement mapping (which I am especially nervous for as my rotation is poop). Has anyone had this type of replacement and can share the pro/cons? Also what are your experiences with healing afterward? As a mumma I am worried about being in hospital for long periods of time.

Thanks for your time :)

Osteoarthritis https://community.versusarthritis.org/discussion/57620/osteoarthritis Thu, 19 May 2022 19:06:17 +0000 Living with arthritis MARG69 57620@/讨论

Hi everyone

Ive had arthritic knee and foot for few years due to torn meniscus and hallux limitus... due to have op soon on foot. I also have arthritis in my spine... due to see Consultant again as worsening pain on daily basis. Over the last 6 months every joint in my body is painful and morning stiffness is agonising. Im 69 but feel 99. If I sit down even for a few minutes I can hardly walk... more of a shuffle. I do try and keep on the go.

Ive had loads blood tests that dont show inflammation so GP says wear and tear.

I had really bad sciatica 2 years ago and was given Pregabalin which eventually eased the agony I was in. After a few months I decided to reduce the high dosage and the sciatica was virtually gone. Just take 50mg at night as sometimes pain when lying down in same position.

Now GP wants to increase Pregabalin again to high dose as Im in pain but its not sciatica pain. I dont know what to do.

Anybody got any answers please.

Osteoarthritis of the feet https://community.versususarthritis.org/discussion/57627/osteoarhthitis-of-the-feet Fri, 20 May 2022 11:34:20 +0000 Living with arthritis CAT29 57627@/discussions < p >你好不了大约一年。有Osteoarthritis of the knees for over 10 years. Recent diagnosis of the feet although I knew what it was! Hope to get & offer support on here. I hope I've posted in the right place!

Baidu