冲浪和学习如何壮成长的关节炎

Angharad，27岁，被诊断出患有SAPHO综合征（一种影响皮肤，骨骼和关节的慢性病）。

在这里，她分享了自己的经验并与Toby聊天，Toby是一位自适应的冲浪教练表面性，，，，about living with the mental and physical impact of arthritis.

表面性is a community company working to make surfing as inclusive as possible for people with additional needs.

“一点点，人们看到我的方式以及我如何看待自己，从运动变成了懒惰。”- 安哈拉德的故事

我曾经喜欢运动成长，但是当我背疼started around the age of 15, thepainand疲劳意味着我会定期找到积极避免运动的方法。

在表面上，年幼的孩子被教导说“残疾”可以适应。

孩子们带来海浪的大胆和快感使我反思了自己对自己的局限性。

“表演性有一系列改编的董事会，以确保所有有冲浪渴望的人都可以做到。”

该组织提供了一个安全的空间，您可以在其中尝试一些新的东西并走出舒适区，这对于过着有尊严的生活而言是不可或缺的。

By opening up new possibilities, lessons with Surfability can change your perspective, as well those of your family and friends, who are invited to be part of the lessons.

After reading more about Surfability, I learnt that one of their coaches, Toby lives with强直性脊柱炎。Diagnosed in 2015, Toby continued coaching at Surfability and he discovered how the sport has helped him live with his arthritis.

“我开始对背部/脊柱状况进行自己的研究，并遇到强直性脊柱炎（AS）。”- 托比的故事

我花了一段时间才被诊断出去。我定期去看医生，后者将我送到了一名物理治疗师，然后将我送回医生（这持续了2年）。

在我的研究中，我向医生建议这样做。大约6个月后，对HLA-B27基因进行了阳性测试，而两个MRI后来，我得到了诊断。

“I have found surfing to be very useful in helping me to live with ankylosing spondylitis.”

冲浪鼓励我过着健康的生活方式，我也定期去健身房。

我的体育课通常包括流动性工作，这些工作专注于我的身体不同部位，而不是进行仅起作用的肌肉的锻炼。

了解我的姿势产生了很大的影响。我还改变了饮食，因为某些食物会增加某些人的炎症。 It’s been trial and error, but it’s made me more aware of what works for me. 

“成为一名教练的经常挑战之一就是在繁忙的课程中爆发。”

My flare ups normally consist of chronic fatigue, pain in my lower back and hips, stiff joints, occasionally costochondritis and most recently uveitis.

这可能会使我的课程对我不舒服，但是穿着潜水衣（似乎支持我的关节，因为它的作用像是压缩西服），并且帮助人们冲浪也许是最好的活动。

Teaching means I am constantly active and I’m not fixating about how much pain I’m in.

Seeing the smiling faces, hearing the laughter and contributing to people’s joy, gives me inspiration and makes me realise it’s not all doom and gloom.

“对我来说，冲浪是放松，放松和逃脱的一种方式。”

尽管冲浪是一项体育运动，但我总是发现，当我在海上坐在冲浪板上时，我会感到和平。日常生活的压力似乎并没有给我带来太大的负担。我的思想只专注于当时的工作。

The physical side of surfing has proved beneficial as it requires different types of movement. From carrying the surfboard down the beach, paddling out through waves to navigating your way across the changing surface of the water.

冲浪并不是要站在董事会上或大浪。您可以尽力而为，并且仍然有一个微笑，可以在剩下的一天中持续下去。

这是关于自由和享受。

“对我来说，做某事比什么都不做要好。”

我会尽我所能并适应，具体取决于我的感觉。

运动的动力也可能是一个挑战，因此我尝试专注于自己喜欢和有趣的活动。

Adapting my mindset has been the biggest thing for me, my flare ups would make me feel very negative towards most things. I took steps to be aware of how I was thinking and how I could change my thinking.

For example, if I felt like I couldn’t go to the gym one day, that’s fine, days off are needed.

“Learning to live with my arthritis was really difficult at first.”

I spent a long time feeling ashamed and embarrassed. I thought that people would treat me differently and think that I'm disabled, or they might think I was lying because of look ‘fit and healthy.’

我让人们在公共汽车上大喊大叫，尽管几乎不能走路，但我还是没有放弃座位。人们称我为懒惰，因为即使简单的动作也使我感到精疲力尽，或者朋友对我被瘫痪的笑话似乎无害。

当我需要时，我必须学会对自己的状况保持开放和诚实。我想利用我的关节炎和自适应冲浪方面的经验来介绍关节炎的人冲浪和分享这项运动如何成为治疗和康复的一种形式。

“Be inspired to take control.” - final words from Angharad

Toby has inspired me to override my fear and uncertainty of exercise, to not give up if I flare up - but instead adapt and get into the water and try surfing!

A lot of my life has been trying to advance despite arthritis. What Toby does is to demonstrate how you can work with the challenges of arthritis.

他强调了对自己友善而不是过于谨慎的重要性。对锻炼的教育程度更高，最重要的是享受体验。

beplay体育怎么下载与关节炎具有惊人的资源运动方式，，，，including on how to get started and what types of movement may work best for you.

Toby and I may have different careers, but we’ve shared our challenges and hopes together, and we’ve learnt how to grow together.

Versus Arthritis provides opportunities to connect with other people with arthritis, which is so vital when you’re first diagnosed.

Read otherpeople’s stories关于他们如何患有关节炎。这些是一个很好的提醒，您并不孤单。

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