你好

annie41

大家好，我知道自从我参加这个论坛以来已经很长时间了。我为沉默感到抱歉。我想我刚刚疯了几年。我的RA确实失控了，所以自从我上次在这里发布以来，我病得很重，已经进出了医院。我真的很高兴看到这么多新面孔和一些熟悉的面孔。对于所有新来者来说，非常热烈欢迎这个奇妙的团队。你绝对不是一个人

主持人

嗨Annie41，

Good to see you again but not so good that your RA has been running riot! How is it going now? We need any tips you have picked up for putting the pain aside for a bit. My latest diversion has become knitting! My oldest g'son who is 10 asked me to teach him to knit so needles have been picked up. Do you know one bright spot is that all the wool gets your hands toasty warm. I’ve never got the hang of finishing anything - I lie I did finish a jumper for myself with very fluffy wool and some animal on the front in the late '70s - I did wear it too

Take care
Yvonne x

dreamdaisy

你好, I apologise for not remembering you. I am one of the lucky ones for whom the dross has stayed at a constant level, currently my OA is being troublesome whereas back in the summer it was the PsA. I hope that things are under better control for you now. DD

StickyWicket

再次您好，安妮，欢迎回来..我希望您现在可以坚持我们，因为您将成为新手的重要资产。

annie41

谢谢您，GD回来了。不幸的是，我的关节炎已经失控了，因为我的身体已经开始忍受我的关节炎药物过多，因此它们不像以前那样有效。因此，自从我上次发布此处以来，我不得不进行一些修订联合手术，所以不幸的是，过去几年中，我已经进出医院了。当我确实有爆发时，有几件事对我有用。我发现肿胀的热水瓶肿胀，发炎的关节效果很好。另外，我发现热水淋浴效果很好，或者躺在温暖/热水浴中待一会儿也很好。我还使用牙套和支撑，使我不关心爆发可能造成的痛苦。

主持人写道：

嗨Annie41，

Good to see you again but not so good that your RA has been running riot! How is it going now? We need any tips you have picked up for putting the pain aside for a bit. My latest diversion has become knitting! My oldest g'son who is 10 asked me to teach him to knit so needles have been picked up. Do you know one bright spot is that all the wool gets your hands toasty warm. I’ve never got the hang of finishing anything - I lie I did finish a jumper for myself with very fluffy wool and some animal on the front in the late '70s - I did wear it too

Take care
Yvonne x

annie41

谢谢你梦雏菊和粘性检票口的客气话。它的GD回来。自从我上一篇文章以来，我在这个论坛上错过了很多消息。Dream Daisy，很遗憾得知您与OA和PSA相处愉快。我十分明白你的感受。我知道关节炎可能是多么不可预测和令人沮丧的关节炎，有时看起来像是过山车。我确实希望您现在感觉好些。但是从事物的声音来看，您是幸运的人之一。粘性检票口，我现在会尝试坚持下去，因为在那里也很棒的新手和常客。我希望你能和那样。 wishing you both a very warm, happy and merry christmas and a better and happier new year to come.

dreamdaisy

我以前从没想过自己很幸运，我会尝试采用这种积极的方法！事情总是很艰难，但这没关系，因为我知道我的位置：药物的希望实际上会使事情变得更好，这已经过去了，因为他们没有，从来没有。控制是我关节炎游戏的名称，并且PSA受到控制。在一定程度上，我可以控制OA的活性水平，而不是天气成为一个因素。1997年至2008年之间的早期是过山车，但不再是过山车，这一切都是熟悉和可管理的。

I hope you have as pleasant as Christmas a possible and I hope to see your name again soon. DD

annie41

Hi Yvonne and dreamdaisy, I hope you both had a very gd xmas and new years. I hope that you are both as well as can be as well. To Yvonne, unfortunately, MY RA has been in an acute status for the last few months, as the winter weather always makes things worse for me and all my major joints tend to revolt as well. Also, the meds that I am currently on have stopped being affective, so i've also been battling an extended flareup for the last few months. I tend do a little sketching, when my hands and wrists start hurting, to keep them mobile.I also tend to keep myself distracted from pain and stiffness by going to the gym for a good solid workout and for a swim, as I find that swimming eases the pain and stiffness. After that I treat myself to a nice soak in the jacuzzi and sauna, as i find that my joints love the heat. After I get home from the gym, I rest in bed, and i watch my favourite old tv series re-runs and I treat myself to some good food .

annie41

Dreamdaisy,我在l你听起来有点幸运east, as it sounds as things are going ok for you at the moment. Unfortunately for me, things have not been going well with regards to my RA for the last few months. Sadly as a result of my RA being out of control and the further damage that my joints have sustained, I have been told by my orthopaedic surgeons, I will have to undergo multiple major surgeries on the affected joints in the near future. My doctors, nurses and other specialists are doing their very best to keep me out of a wheelchair for as long as possible, but I have been told that I should start looking into either renting or buying a wheelchair in the next year or so. But despite everything, I am trying to keep thinking positive and I am trying to enjoy everyday and my life as much as possible. i refuse to let this awful illness dictate what is going to happen in my life.I hope that you had a gd xmas and new years and I hope that you are as well as can be.

dreamdaisy

I have a wheelchair and a mobility scooter, I don't use either of them regularly (nothing to do with vanity, pride or the supposed loss of dignity) but they are there for when things are really not worth trying to overcome.

我不会将这里的任何人描述为“幸运”，这是毫无意义的。无论一个人刚开始还是多年，有OA或自动免疫，或两者兼而有之，只有一个受影响的关节，或者更多，疾病原因的痛苦使人衰弱，疲惫，恐惧，降低生活质量的沮丧和沮丧对于许多人来说，它仍然无法治愈的事实令人惊讶且令人难以置信。DD

annie41

为了做梦，如果我冒犯了你，我深表歉意，但我完全同意你所说的话。无论是对这种可怕的疾病的新手，还是已经与之抗争了很长一段时间，RA可能是非常不可预测的，它可能非常沮丧，广告肯定会很累。当我的关节炎开始蔓延时，我倾向于使用拐杖迄今为止。另外，由于我的生活质量几乎是零，因此生活质量的降低有时会非常沮丧，疲倦和烦人。但老实说，我已经停止屏住呼吸，因为科学家是否曾经找到治愈这种可怕疾病的方法。DD

dreamdaisy

我没有丝毫生气，但毫无疑问，这里有些人可能会觉得自己的不适被贬低。阅读远胜于帖子，他们可能会觉得不会被比他们差的人认真对待。

将来可以找到一种治愈方法，但我会很高兴地漫长而又不在乎。我有点通过没有孩子来治愈它，杜松子队已经停止了我，而且，唯一的地方，没有其他地方可以去。关节炎不是一种迷人的疾病，它不是危险的或终身终结：它只是改变生活，平凡的，乏味的，像泥泞一样常见。在英国，大约有一千万个关节技术，至少VA试图提高知名度，这只会是一件好事。我认为他们正在以相当绝望的光线展示关节药，但总比没有好。

I'm sticking to my arthritis ABC: adapt, believe, compromise, a process I began as a child. The docs are doing their best, it's not their fault that it's not enough but it's good enough for me. I am blessed to live in an age where there are the drugs, the aids, the surgeries when needed. DD

annie41

对于Dreamdaisy，我完全了解您对可能会冒犯我的评论的其他人的话。我想，因为我的关节炎已经处于急性状态很长一段时间了，所以我不再相信治疗在地平线上的任何地方。我猜是因为我过去十年来我只有RA，而且我还年轻，最近我一直在发现一些更令人沮丧的事情。我同意VA至少正在尝试，并且正在继续提高人们对关节炎如何影响年轻人和老年人的认识。我想他们只是想尽力提高所有人的意识。我实际上真的很喜欢您的关节炎ABC。听起来它确实有助于您保持积极的思考。如果您不介意，我可能会借它。我认为这对我来说可能会派上用场。另外，我第二，所有参与我正在进行的护理的医疗保健专业人员都尽力为我提供最好的护理。 And in a way, I guess what they do is never enough, but I am very grateful that I am under the care of the best specialists, doctors nurses etc and It is more than enough for me. I'm also blessed and very lucky that i live in an age where there are amazing medications and drugs that can really help, there are state of the art aids and adaptations that can be made and that there are surgeries available if needed.