这就跟你问声好！新来的!他还是带我来这里

MZARG

这就跟你问声好！我是阿根廷人。我最近被诊断出患有斯蒂尔氏病。我也被建议与其他患有这种罕见疾病的人联系。所以我来了，准备试一试。

Rendirse Nunca

Poppyjane

欢迎@MZARG对于网络社区，

你最近被诊断出患有斯蒂尔氏病，并希望见到其他患有这种罕见疾病的人。我知道有一些成员有这种情况，我希望他们能够与你们分享他们的经验。同时，我发送一个链接，我希望你会发现有帮助。

//www.wfysxh.com/about-arthritis/conditions/adult-onset-still-s-disease/

社区的成员互相给予和接受了很多的支持我希望当你加入讨论的时候你会觉得可以分享更多你自己患关节炎的经历。所以请保持联系，我们期待着很快收到你的来信。

当心

Poppyjane

frogmorton

Hello<\/p>

My name is Claire and I was diagnosed with AOSD in October 2018. It would be good to hear from others who have the diagnoses and learn how they deal with day to day issues.<\/p>

Hopefully yours,<\/p>

Claire<\/p>","bodyRaw":"[{\"insert\":\"Hello\\nMy name is Claire and I was diagnosed with AOSD in October 2018. It would be good to hear from others who have the diagnoses and learn how they deal with day to day issues.\\nHopefully yours,\\nClaire\\n\"}]","format":"rich","dateInserted":"2020-09-07T09:58:54+00:00","insertUser":{"userID":115224,"name":"Blueclairey","url":"https:\/\/community.versusarthritis.org\/profile\/Blueclairey","photoUrl":"https:\/\/w7.vanillicon.com\/v2\/703086d9526643e7c1d50bb97de20a59.svg","dateLastActive":"2020-09-07T18:36:44+00:00","banned":0,"punished":0,"private":false},"displayOptions":{"showUserLabel":false,"showCompactUserInfo":true,"showDiscussionLink":true,"showPostLink":true,"showCategoryLink":false,"renderFullContent":false,"expandByDefault":false},"url":"https:\/\/community.versusarthritis.org\/discussion\/52821\/aosd","embedType":"quote","name":"AOSD"}"> https://community.versusarthritis.org/discussion/52821/aosd

嗨@MZARG

记得这张“老”线的剧照是如此罕见，我还没有找到它，并设法找到它，希望它对你有帮助。

和这个人@EOSDhusband是一个患有AOSD的人的丈夫

AOSD, Hydroxychloroquine and Pfizer: any experiences?<\/strong><\/p>

I am asking on behalf of my wife (36 years old) who suffers from a rare condition, AOSD (Adult Onset Still's Disease) and has been prescribed by the rheumatologist to take hydroychloroquine permanently. It works well, she rarely has a slight flare.<\/p>

Has anyone here had a Pfizer shot in a similar situation? Have you had any flares or other abnormalities?<\/p>","bodyRaw":"[{\"attributes\":{\"bold\":true},\"insert\":\"AOSD, Hydroxychloroquine and Pfizer: any experiences?\"},{\"insert\":\"\\nI am asking on behalf of my wife (36 years old) who suffers from a rare condition, AOSD (Adult Onset Still's Disease) and has been prescribed by the rheumatologist to take hydroychloroquine permanently. It works well, she rarely has a slight flare.\\nHas anyone here had a Pfizer shot in a similar situation? Have you had any flares or other abnormalities?\\n\"}]","format":"rich","dateInserted":"2021-04-26T09:36:54+00:00","insertUser":{"userID":117202,"name":"EOSDhusband","url":"https:\/\/community.versusarthritis.org\/profile\/EOSDhusband","photoUrl":"https:\/\/wf.vanillicon.com\/v2\/fa27c9b13265b3120c177481b12360db.svg","dateLastActive":"2021-05-03T12:40:18+00:00","banned":0,"punished":0,"private":false},"displayOptions":{"showUserLabel":false,"showCompactUserInfo":true,"showDiscussionLink":false,"showPostLink":false,"showCategoryLink":false,"renderFullContent":false,"expandByDefault":false},"url":"https:\/\/community.versusarthritis.org\/discussion\/comment\/679765#Comment_679765","embedType":"quote"}"> https://community.versusarthritis.org/discussion/comment/679765#Comment_679765

希望这些人还在，可能会回复你。

当心