“对于年轻人来说,重要的是要大声疾呼甲氨蝶呤的副作用”

2020年12月7日
艾米在家里和她的小狗。
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甲氨蝶呤通常是给儿童和年轻人患有关节炎的最早药物之一。它被用来治疗juvenile idiopathic arthritis (JIA)很多年了。

它减轻了关节的疼痛和肿胀,并可能阻止关节炎损害它们。

Many people take methotrexate without any problems. But, like any drug, it can cause side effects. One of the most common, especially in children and young people, is feeling sick.

告诉您的医生和护士,您开始在开始甲氨蝶呤后开始感到恶心或其他副作用。尽早解决这些问题会更容易,因此您越早告诉别人越好。

Aimee的甲氨蝶呤旅程

现年16岁的艾米(Aimee)被诊断出患有12岁的杰亚(Jia)。作为一名才华横溢的爱尔兰舞者,艾米(Aimee)一直很活跃。在她诊断出她的脚踝的一年前,她开始受伤。她的妈妈注意到她的举动不同,手腕上没有那么多动作。

“The day I was diagnosed I was prescribed steroids and methotrexate tablets.”

At the beginning, I didn’t experience side effects, but after about six weeks, I started feeling sick after I took the tablets. I couldn’t sleep because of how sick I felt and eventually I began being sick. During this period, I had lots of physio and occupational therapy to help me regain movement in my ankles and wrists, and I soon had better mobility.

到那年年底,我正在与妈妈为服用它而战,因为它使我感到多么恐怖。

“我在一个星期五晚上服用了甲氨蝶呤,通常是我和朋友一起出去的时候,所以我很害怕出去,因为我知道随后的事情。”

尽管周末服用了甲氨蝶呤,但它影响了我的学校生活,但我一直精疲力尽,星期一我仍然会感到不适。

After about a year my Mum and I decided to speak to my team about how I was feeling. They were so helpful, they agreed to reduce my dosage and advised me to take anti-sickness tablets the night I took methotrexate and the morning after. This helped for a while but eventually I began to be sick again.

不久之后,我参加了一次与关节炎的事件,我的妈妈向凯瑟琳(小组负责人)提到了副作用beplay体育怎么下载,他说注射的副作用较少。妈妈和我决定向顾问和护士询问这一点。

“我被转移到注射剂,减少了剂量。”

From this stage my side effects really improved. I am now on 7.5mg of injectable methotrexate along with Amgevita (adalimumab),这确实有助于控制我的JIA。

我没有生病,也没有筋疲力尽,也不要再服用甲氨蝶呤了。现在,我在星期三开始注射,因为起床和上学使我分心任何可能的副作用。

我已经注射了甲氨蝶呤两年了,这无疑有助于疾病。注射并不痛苦,就像刺刺一样。

It’s important for young people to speak out about any side effects they’re experiencing. They are the only ones who know how methotrexate makes them feel and it’s their lives being affected.

关于甲氨蝶呤,我还应该知道什么?

  • Injections are the best way of getting methotrexate into your body to control your arthritis, and reduce the chances of you feeling sick. They are quick and easy to do – a nurse can teach you or your parents how to do them.
  • Doctors can prescribe anti-sickness medication, such as ondansetron. You might also be told to take folic acid. This is like a vitamin and can reduce side effects.
  • 如果不与医生或护士交谈,您不应该停止服用甲氨蝶呤。这可能会使您的关节炎恶化。
  • 如果您已经停止服用甲氨蝶呤,请尽快与您的医疗团队联系。您不会遇到任何麻烦,但是他们需要知道,以便他们可以为您提供帮助。
  • 告诉您的医生和护士,您是否有甲氨蝶呤或通常感觉不佳的其他副作用,尤其是如果您获得高温超过38摄氏度。
  • 甲氨蝶呤可能需要数周甚至几个月的时间才能开始工作,因此您的团队可能希望在尝试其他药物在内的其他药物(包括生物疗法)之前是否有用。关键是要对您的任何治疗都对您有所帮助,对您不适合您。

我们的服务

如果您或25岁以下的家庭成员患有关节炎,我们的年轻人和家庭服务将在这里支持。

我们的服务提供了有关如何在关节炎,药物和潜在治疗中享受良好生活的建议,以及创建一个安全的空间来提出问题,接收信息和发展支持网络。

我们的Covid-19期间的面对面服务发生了变化,,,,but you can find out more about what’s going on via your local Young People and Family service.

我们在这里为您服务

如果您在这些不确定的时期感到与家人和朋友孤立,我们会在这里为您服务。