For those who’ve been vaccinated, any ill effects pls?
评论
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jennand 成员Posts:130
作为讨论的一个旁边,我的RA护士建议缺少我疫苗的任何一侧的一两个生物学注射,只是为了给我的免疫系统处理它。与我感染时大致相同。疫苗发生后的第二天,我普遍酸痛,感到非常疲倦。扑热息痛和2个小时的睡眠帮助。第二天,疼痛消失了,仍然有点疲劳,但更好。第二天,我很好。我认识的大多数人都会遇到重大副作用,往往有互联。
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Scrummycake 成员Posts:11
I am new to this site too. However, I was active on the old Arthritis Care site years ago, under the name NooNoo - some may remember me ;)
I had the AZ jab on 31/1 and felt really awful for about 5 days (chills, flu symptoms, headache, nausea, also had a numbness in my face for 4 days, like I’d been to the dentist) and have also been in quite a bad flare up since. I had ‘uncontrolled RA’ prior to the jab but had held off starting a biologic because of the concerns with covid and lowered immunity. My GP refused to report my adverse effects, so I reported them via the yellow card. However, all you get is an email thanking you for the useful feedback.
我真的很难获得有关4月底的第二个戳戳的任何建议。我的全科医生将我转介给我的风湿顾问,后者将我转介给了阿斯利康热线助人热线。在将我的完整的病史和副作用给AZ之后,我被告知戳刺经过了彻底的测试和被认为是安全的,但是如果我担心与我的GP联系!最终,我通过电子邮件发送了一名免疫学家,他说具有第二戳是刺耳的,因为据报道不良影响在第二个jab上不那么严重。但是,由于我仍在爆发时,我真的不确定这是明智的。
我注意到有人在这里提到铁水平dropping. In 2019 I had a “virus” (the hospital never found out what was wrong, despite having blood tests every few days, x-rays, echocardiogram, CT scan...) which I think sent me into a cytokine storm as my CRP went up to 295 and my Hb dropped to 7. I ended up having iron infusions and after a few months of total rest started to feel better. I have since learned that it is possible to have inflammation induced anaemia, so I assume that is what I had and the other forum member may also have.
On an additional point, from those that I know who have had the AZ jab, those over 60 (with and without health conditions) have had no real problems. However, those younger and in particular those in their 20’s have had quite bad reactions - fever, chills, flu symptoms and been confined to bed for a day or so. I think maybe the AZ jab triggers a very strong immune response in those who are not immunosuppressed.
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Dorothy 成员Posts:11
I had my first dose of Pfizer on Friday morning. Incredibly painful left arm which lasted for 24 hours, achey joints & muscles all over and also extremely painful joints, but not all at once (knees, then ankles, then hips, then back/neck/shoulders and now back to my ankles!) Also feeling really wiped out, cold and sleepy - I've spent most of the last two days clinging to the radiator!
I've been told the second dose of Pfizer is worse than the first one...urgh!
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Sunnyside2 成员Posts:131
Dorothy- my parents had their second pfizer on Saturday- no ill effects aside from one slightly sore arm. nothing else. Not everyone has a bad time on second dose :)
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Kazza52 成员Posts:74
Hi everyone,
I had my second Pfizer jab yesterday and was told that after two weeks I should have 97% protection.
Before I had both my first and second jabs I did leave off taking my Methotrexate on the due day I was meant to take it as I was very worried that it would interact with the COVID vaccine. I have not had any bad reaction to the both Pfizer vaccines except for a very sore arm.
I went back to work two weeks ago and now I have had both vaccines I feel reassured as prior to having the jabs I was petrified of getting COVID as my immune system is non existent due to my RA and taking Methotrexate.
I know it is up to each individual whether they have the vaccine but you only have to look at the sad death rate in this Country from COVID to see that having the vaccine does give us protection from COVID and the death rates/hospitalisation admissions have decreased considerably since the introduction of the vaccine rollout.
Stay safe everyone.
Karen
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Kazza52 成员Posts:74
I agree with Helen our sincerest thanks must go to the scientists, etc, on managing to get vaccines out in a relatively short period of time. Normally, vaccines take years to develop but due to the brilliant scientists, doctors, etc, these were rolled out in months.
P.S. I do love Professor Chris Whitty when he appears on the telly!!
Karen
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EOSDhusband 成员Posts:4
AOSD,羟氯喹和辉瑞:有什么经验吗?
I am asking on behalf of my wife (36 years old) who suffers from a rare condition, AOSD (Adult Onset Still's Disease) and has been prescribed by the rheumatologist to take hydroychloroquine permanently. It works well, she rarely has a slight flare.
这里有人在类似情况下拍摄了辉瑞吗?您有任何耀斑或其他异常吗?
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ChrisK 成员Posts:37
早上好@EOSDhusband
欢迎to our Versus Arthritis forum. Here you will find our members are friendly, helpful and empathic. They will answer any of your questions/queries as they have found them in relation to their own condition.
上面的帖子谈到了成员接受共同疫苗接种的经验。这些成员谈论了他们与戳戳所经历的副作用。您是代表您的妻子询问的,他们的妻子患有成年静止病(AOSD),他们正在永久服用HydroyChoroquine,他们担心接种疫苗。
Versus Arthritis produce many booklets and fact sheets on arthritis and its related conditions. Below is a link which speaks of the drug hydroxychloroquine which may be interest to you.:
对于您的妻子,或者您代表她对她的GP或风湿病学家进行了交谈,这将是一个好主意,以便他们可以告诉您是否对您的妻子进行疫苗接种是安全的。同样,找出答案的另一个地方是与您的当地药剂师交谈,他们知道两种药物,并且在当地的化学家中见到他可能会更快。
Looking forward to reading your future posts and seeing how your wife is getting along. Take care
最好的祝愿
ChrisK
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EOSDhusband 成员Posts:4
嗨,Chrisk,是的,这就是我要问的:在类似情况下的任何副作用(AOSD具有标准治疗)?AOSD是一种罕见的状况,我希望我能从其他患者那里得到疫苗接种后经历的一切。
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Yvonneh 成员Posts:1,111
欢迎from me too. Quite a few people with varous arthritis conditions also take hydroxychloroquine and I haven't heard anything to indicate a particular problem with any of the vaccines currently on offer. I know it wasn't helpful in relieving symptoms or curing covid itself!
I've asked our team if they know of anything, I'll post the reply when it arrives. In the mean time some members taking hydroxy might pop in to help
小心
Yvonne x
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EOSDhusband 成员Posts:4
这种疾病是如此罕见...许多医生从未听说过,但是它正在发生变化,这是由于Covid:严重的AOSD耀斑和严重的Covid案件导致免疫系统过度反应和攻击身体几乎以相同的方式攻击身体(“细胞因子风暴”)。因此,一些研究Covid的科学家对AOSD感到好奇。医学现在正在取得巨大的进步。
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JohnMVS 成员Posts:4
从自从阿斯利康疫苗接种左手的几天后,我的OA就变得越来越多。疼痛和肿胀要比以前更加严重。也许只是一个巧合,但并非每个副作用都被注意到。
Kind regards,
John
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EOSDhusband 成员Posts:4
News from "my AOSD wife": she got the first Pfizer/Biontech vaccination yesterday at 8 AM. Some pain in the shoulder, getting worse in the evening. Slightly elevated temperature, slight headaches and some dizziness in the evening, she got very tired and went to bed early. After a good sleep all symptoms were half gone and have now vanished (it's 6PM here). The doctor had advised her to not take painkillers for a few hours and not drink alcohol for a few days.
症状可能表明,免疫系统对疫苗接种确实有明显的反应。
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Danny 成员Posts:3
Hi,
辉瑞(Pfizer)首次射击后的第三天是有一种形式的脊柱炎(未完全被诊断出),但没有治疗(事情得到很好的治疗),我感到头痛,但令人难以置信,但由于新的关节疼痛而令人担忧我通常的行走没有痛苦。怪异的痛苦到处都是,但可忍受,并在一个地方移动。奇怪的是,除了我的“射击”手臂,这些痛苦在第三天更糟。
Not regretting so far but I hope it will get better soon.
Danny
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捕蝇器 成员Posts:25
阿哈哈(Ahaha),当我前一周刚开始刚开始Adalimumab时,到处都是3天的副作用。它非常有趣!我不知道那些地方会受伤!
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捕蝇器 成员Posts:25
Had 2 doses of AZ. First time knocked me out with flu symptoms and fever for 1 day. Second time - a beeze! No side effects whatsoever, I was so disappointed
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捕蝇器 成员Posts:25
My dactylitis got pretty bad a week after the shot... But then it was pretty bad before that, for what seems like months! Oh remission, come to me already!
That's the thing with flare ups, you never know if it's just a coincidence. I think mine is somehow related to periods/hormonal fluctuations, but I don't think it's clinically provably currently.
Being OK with uncertainty is my new hobby
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Danny 成员Posts:3
Quick updates guys.
I'm doing much much better, seems the side effects are now gone since my Pfizer shot. My joints has been bad from day 2-3 to day 6-7 but the pains progressively disappeared (no more weird headaches after day 3/4). My advice is if you get some flare up don't panic, like for any flare cool down on movements / sports / walks but don't stay still. I used my step counter to progressively increase daily steps, on day 5 I was still tired and stressed but went for a far place from home to change my mind and it worked pretty well. Now I'm almost back to normal. I hope the 2nd shot won't be too harsh but I guess it's still better than covid for sure !
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Anna ModeratorPosts:731
Hi@Danny- just a quick welcome to the online community and thank you for sharing your experiences of living with spondylitis and your reaction to the jab to support one of our members. It's people like you who make the community such a friendly place, and I hope you continue to post.
So many of us have found that gentle exercise often helps with the pain of arthritis, as well as helping us to improve our mood. It looks like you are really finding benefit in keeping moving. There's a dedicated space on the Versus Arthritis website where you can share your experiences and tips for keeping moving - you might find it interesting:
All the best,
Anna (Mod)
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戴维 成员Posts:7
只是提到,几周前我有第二个戳刺(Astra Zenica),这两次都没有副作用。
Compared to many others, I count myself fortunate.
I really hope this vaccine will be effective, to protect everyone against the "Indian variant" or any other strains that emerge.
戴维
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Frogmorton 成员Posts:28,315
杰出的@Davy
I think we are all very very lucky that vaccines even existMy fingers are firmly crossed they remain effective against the Indian variant and any future mustations too
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bubblegum226 成员Posts:6
I'm on metoject pens and 35 living with ra and palidromnic rheumatism, I had first dose of astral zeneca I'm not going to lie the first doze knocked me for six I felt like I was hit by a bus for 2 days , had my second dose a few weeks ago which I was dreading after having the first but I was absolutely fine despite it now not being reccomended for my age group x
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Frogmorton 成员Posts:28,315
@bubblegum226same with my youngest at 22 havig the second one when we knew about this issue with AZ is so scary! She had leukaemia and had allsorts of clotting issues a few years back. So scary I think, but getting COVID is scarier.
她在星期四和周日有一个偏头痛(带有光环/模糊的视力),直到它放松了,我一直感到恐惧。
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duffer 成员Posts:46
我在5月7日有了第二个辉瑞戳 - 护士警告我,我可能会产生与第一个相同的副作用,而且它们可能会更糟。让我毫无疑问 - 但她是对的。在床上和下床上花了几个小时,呆了一个星期 - 酸痛和感到恶心。但是,这些副作用中有多少是由我遭受的恐慌发作引起的 - 值得商bat!我一个人住,是家里,这很可怕 - 这些天您向谁寻求建议?我厌倦了被告知我需要抗焦虑/抑郁症标签 - 所有这些都腐烂了,因为我尝试了一对。幸运的是,我没有,希望永远不要遭受抑郁症。焦虑 - 是的 - 谁不会 - 除了每周的护理人员和四次郊游(两次用于jabs,两件牙医)之外,这并不自然。做了所有的mo吟之后,我响起了老朋友,坦率地说,她让我感到完全ham愧。她的两个肾脏都失败了,她正在家里进行透析。 Truly all I have is osteo and panic attacks. I should be so grateful and I am! Ok for anyone else who suffers from the Pfizer jab side effects, they do eventually subside! Helen.
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Ben91 成员Posts:12
我今年29岁,也有AOSD。我在2月收到了牛津四月疫苗,4月份我的第二次剂量。
我将Azathiaprine作为我的药物,并在第一次戳刺之后患有轻度症状。大部分是疲劳,但是我的温度略有12小时。我有一个晚上,但第二天早上感觉还不错。我第二次戳后没有副作用。
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