得到一个诊断

chloe8596

大约14年前，当我背痛的时候，一位医生给我的脊椎拍了x光片，他说我的脊椎看起来像有关节炎。我的病历里没有写这些，我也有点忘记了，因为我很少去看医生，因为在我的经历中，医生对我并没有什么帮助。

刚刚过去的这个冬天，我的脚趾痛得要命，我发现脚趾都肿得厉害。疼得连走路都困难了。我的常规医生怀疑这可能是银屑病关节炎，他给我介绍了一个风湿病专家。

从现在开始的三天内，我和风湿病专家有预约，我想确定一下我要做什么。我担心与诊断相关的费用，因为美国的保险很糟糕，他们会以任何可能的方式剥削你。我假设x光可能会被保险覆盖，但我猜像核磁共振这样的东西不会被完全覆盖，可能是一个巨大的自付费用。

对于那些被诊断患有关节炎的人，你是如何被诊断的?需要做核磁共振吗?是否需要多次去看医生才能得到诊断?我知道我应该把我的健康放在第一位，但是我努力工作了10年，今年才还清了我的大部分债务。我担心积累了一堆债务，现在由于试图得到我的关节炎诊断。这方面的任何信息都会有帮助的。

另外，我想要一个诊断的原因之一是，如果我到了去工作太困难的地步(这似乎是可能的，因为目前在我的房子里走动都是困难的)，我想要一个诊断来支持任何残疾索赔。对于那些声称残疾的人来说，这很难做到吗?你是否需要服用处方药才能获得残疾资格?大多数治疗银屑病关节炎的药物都是有毒的，而且有很坏的副作用(从我读到的资料来看)，我都不敢服用它们，但我不知道在我合法地宣称自己残疾之前，你是否需要服用它们。

如有任何意见或建议，我们将不胜感激。

艾伦

早上好@chloe8596

我知道你即将第一次去看风湿病专家，因为怀疑是银屑病关节炎，并且有很多疑问。

不幸的是，我不太了解美国的医疗保健系统，因为我们很幸运，我们有国家医疗服务体系，可以免费提供我们所有的检测，即使我们有时有很长的等待名单。

这至少会对可能进行的测试有所帮助:

//www.wfysxh.com/about-arthritis/conditions/psoriatic-arthritis/

尽管这是英国特有的，但我认为会有重叠:

//www.wfysxh.com/search?query=The+inflammatory+arthritis+pathway#

我对你们的福利福利也无能为力非常抱歉，但这些是基于你们需要的帮助而不是你们正在服用的药物是否有帮助?

我真的不想让你对可能提供给你的药物感到太害怕。在座的很多人都接受了，而且我们都做得很好。

请一定要来和我们的会员聊天。有如此多的经验，这里有公平的少数成员有银屑病关节炎，将能够提供一些安心给你。

最好的祝愿

艾伦。

stickywicket

嗨,克洛伊。我同情你。一方面，我有长期的RA，另一方面，我的儿子现在是美国公民，所以我有点理解医疗方面的担忧。

我认为费用完全取决于你的医疗保险方案。我儿子曾经需要自己支付缝针费用，因为他的治疗方案不包括运动损伤。几年前，他被告知，他应该每6个月做一次扫描，检查肝脏上的病变是否在生长。但每次要花200美元，而且不包括在内，所以他也被告知这可能只是童年时脑膜炎留下的疤痕，所以他没有麻烦。在这里，我们有免费但期待已久的预约。两种系统的结合会很好。

我确实找到了约翰霍普金斯大学的链接——如果不是世界上最好的医学院的话，也是美国最好的医学院之一。我希望它能有所帮助。https://www.hopkinsarthritis.org/arthritis-info/psoriatic-arthritis/diagnosis/

我想补充的是，如果你有PsA，最好忽略那些可怕的东西，直接吃药。药物问题的可能性很小。未经治疗的PsA会造成更大的伤害。

祝你好运，一定要让我们知道你进展如何。

chloe8596

Good morning @chloe8596<\/a> <\/p>

I see you are about to see a Rheumatologist for the first time for suspected Psoriatic Arthritis and have lots of queries.<\/p>

Unfortunately I do not know very much about the American health care system as we are very fortunate here that we have the NHS which provides all of our testing free of charge even if we do have long waiting lists at times.<\/p>

This will help a little at least with what tests might be done:<\/p>

\/\/www.wfysxh.com\/about-arthritis\/conditions\/psoriatic-arthritis\/<\/a><\/p>

As will this although again it is UK specific I would imagine there will be an overlap:<\/p>

\/\/www.wfysxh.com\/search?query=The+inflammatory+arthritis+pathway#<\/a><\/p>

I can't help much with your welfare benefits either so very sorry, but here they are based on what help you need rather than what medications you are taking if that helps at all?<\/p>

I really don't want you to be too frightened about the medications you might be offered though. Many many of us on here take them and we do just fine on them.<\/p>

Please do come along in chat to our members though. There is so much experience here a fair few members have Psoriatic Arthritis and will be able to offer some reassurance to you.<\/p>

Best wishes<\/p>

Ellen.<\/p>","bodyRaw":"[{\"insert\":\"Good morning \"},{\"insert\":{\"mention\":{\"name\":\"chloe8596\",\"userID\":117643}}},{\"insert\":\" \\nI see you are about to see a Rheumatologist for the first time for suspected Psoriatic Arthritis and have lots of queries.\\nUnfortunately I do not know very much about the American health care system as we are very fortunate here that we have the NHS which provides all of our testing free of charge even if we do have long waiting lists at times.\\nThis will help a little at least with what tests might be done:\\n\\n\"},{\"insert\":\"https:\\\/\\\/www.wfysxh.com\\\/about-arthritis\\\/conditions\\\/psoriatic-arthritis\\\/\",\"attributes\":{\"link\":\"https:\\\/\\\/www.wfysxh.com\\\/about-arthritis\\\/conditions\\\/psoriatic-arthritis\\\/\"}},{\"insert\":\"\\n\"},{\"insert\":\"As will this although again it is UK specific I would imagine there will be an overlap:\\n\"},{\"insert\":\"https:\\\/\\\/www.wfysxh.com\\\/search?query=The+inflammatory+arthritis+pathway#\",\"attributes\":{\"link\":\"https:\\\/\\\/www.wfysxh.com\\\/search?query=The+inflammatory+arthritis+pathway#\"}},{\"insert\":\"\\n\"},{\"insert\":\"\\nI can't help much with your welfare benefits either so very sorry, but here they are based on what help you need rather than what medications you are taking if that helps at all?\\nI really don't want you to be too frightened about the medications you might be offered though. Many many of us on here take them and we do just fine on them.\\nPlease do come along in chat to our members though. There is so much experience here a fair few members have Psoriatic Arthritis and will be able to offer some reassurance to you.\\nBest wishes\\nEllen.\\n\"}]","format":"rich","dateInserted":"2021-06-08T05:54:00+00:00","insertUser":{"userID":113173,"name":"Ellen","url":"https:\/\/community.versusarthritis.org\/profile\/Ellen","photoUrl":"https:\/\/us.v-cdn.net\/6031919\/uploads\/userpics\/57PO2WXR7CB2\/n3HFWR1PJEL10.jpg","dateLastActive":"2022-01-18T11:25:59+00:00","banned":0,"punished":0,"private":false},"displayOptions":{"showUserLabel":false,"showCompactUserInfo":true,"showDiscussionLink":false,"showPostLink":false,"showCategoryLink":false,"renderFullContent":false,"expandByDefault":false},"url":"https:\/\/community.versusarthritis.org\/discussion\/comment\/681310#Comment_681310","embedType":"quote"}"> https://community.versusarthritis.org/discussion/comment/681310#Comment_681310

非常感谢!谢谢你的评论。感觉自己是这个社区的一份子已经很有帮助了:)

chloe8596

Hi Chloe. I feel for you. I have, on the one hand, longstanding RA and, on the other, a son who is now a US citizen so I understand the medical worries a bit.<\/p>

My belief is that the costs all depend on the medical insurance package you have. My son once had to pay for his own stitches as his, then, package didn't include sports injuries. He was told a couple of years back that he should have a scan every 6 months to check that a lesion on his liver wasn't growing. But this cost $200 a time and isn't covered so, as he was also told it was probably just a scar from his childhood meningitis, he doesn't bother. Over here, we have free-but-long-awaited appointments. A combination of the two systems would be nice.<\/p>

I did find this link to Johns Hopkins - one of the best medical schools in USA if not the world. I hope it helps. https:\/\/www.hopkinsarthritis.org\/arthritis-info\/psoriatic-arthritis\/diagnosis\/<\/a><\/p>

I'd just add that, if you do have PsA, it's much better to ignore the scary stuff and take the meds. Meds problems are a slight possibility. Untreated PsA will do more damage.<\/p>

Good luck and do let us know how you get on.<\/p>","bodyRaw":"[{\"insert\":\"Hi Chloe. I feel for you. I have, on the one hand, longstanding RA and, on the other, a son who is now a US citizen so I understand the medical worries a bit.\\nMy belief is that the costs all depend on the medical insurance package you have. My son once had to pay for his own stitches as his, then, package didn't include sports injuries. He was told a couple of years back that he should have a scan every 6 months to check that a lesion on his liver wasn't growing. But this cost $200 a time and isn't covered so, as he was also told it was probably just a scar from his childhood meningitis, he doesn't bother. Over here, we have free-but-long-awaited appointments. A combination of the two systems would be nice.\\nI did find this link to Johns Hopkins - one of the best medical schools in USA if not the world. I hope it helps. \"},{\"attributes\":{\"link\":\"https:\\\/\\\/www.hopkinsarthritis.org\\\/arthritis-info\\\/psoriatic-arthritis\\\/diagnosis\\\/\"},\"insert\":\"https:\\\/\\\/www.hopkinsarthritis.org\\\/arthritis-info\\\/psoriatic-arthritis\\\/diagnosis\\\/\"},{\"insert\":\"\\nI'd just add that, if you do have PsA, it's much better to ignore the scary stuff and take the meds. Meds problems are a slight possibility. Untreated PsA will do more damage.\\nGood luck and do let us know how you get on.\\n\\n\\n\"}]","format":"rich","dateInserted":"2021-06-08T09:56:01+00:00","insertUser":{"userID":15071,"name":"stickywicket","url":"https:\/\/community.versusarthritis.org\/profile\/stickywicket","photoUrl":"https:\/\/w9.vanillicon.com\/v2\/9fdd062ad197cafded2e18137c05f5c8.svg","dateLastActive":"2022-01-20T11:59:04+00:00","banned":0,"punished":0,"private":false},"displayOptions":{"showUserLabel":false,"showCompactUserInfo":true,"showDiscussionLink":false,"showPostLink":false,"showCategoryLink":false,"renderFullContent":false,"expandByDefault":false},"url":"https:\/\/community.versusarthritis.org\/discussion\/comment\/681322#Comment_681322","embedType":"quote"}"> https://community.versusarthritis.org/discussion/comment/681322#Comment_681322

谢谢你！这很有帮助!

stickywicket

我在想你。希望一切顺利。