得到诊断

Chloe8596 · 8. 2021年6月，05：39

大约14年前，当我经历背部疼痛时，一位医生的脊柱X饰有X仪，他说我的脊椎有关节炎。关于我的图表没有写的内容，我有点忘记了这一点，因为我很少看到医生，因为医生对我的经验并没有什么帮助。

在过去的冬天，我的脚趾疼痛，并注意到我的脚趾都肿了。疼痛变得如此糟糕，以至于走路很困难。我的常规医生怀疑这可能是银屑病关节炎，他给了我转介到风湿病学家。

从现在开始，我安排了三天的风湿病学家的约会，并希望确保自己进入什么。我担心试图诊断出这种诊断相关的成本，因为在美国的保险很糟糕，他们会尽一切可能剥夺您的能力。我假设Xrays可能会被保险覆盖，但我猜想像MRI之类的东西不会被完全覆盖，并且有可能是巨大的零钱费用。

对于那些接受关节炎诊断的人，您如何被诊断出？需要MRI吗？诊断所需的几次医生探访是否非常昂贵？我知道我应该把健康放在第一位，但是在过去的10年中，我刚刚努力做到这一点，今年我刚刚得到了我的大部分债务。我担心由于试图诊断我的关节炎而积累一大堆债务。有关此信息的任何信息都会有所帮助。

另外，我想诊断的原因之一是，如果我到达上班太难的地步（这似乎是可能的，因为目前只是在我家中四处走动是困难的），我想诊断支持任何残疾索赔。对于那些声称残疾的人来说，这很难做到吗？您是否需要服用处方药才能有资格享受残疾？牛皮癣关节炎处方的大多数药物是如此有毒，并且副作用很差（从我读过的内容中），我会害怕服用它们，但是我不知道您是否会在我之前服用它们可以合法地声称残疾。

任何评论或建议将不胜感激。

艾伦 · 8. Jun 2021, 05:54

早上好@chloe8596

我看到您将首次看到风湿病学家患有疑似的银屑病关节炎，并有很多查询。

Unfortunately I do not know very much about the American health care system as we are very fortunate here that we have the NHS which provides all of our testing free of charge even if we do have long waiting lists at times.

这将至少有助于进行哪些测试：

//www.wfysxh.com/about-arthritis/conditions/psoriatic-arthritis/

就像这是英国，我想再次有一个重叠：

//www.wfysxh.com/search?query=+inflammatory+Ararthritis+Pathwaywway#

我对您的福利福利也无济于事，这是非常抱歉的，但是在这里，它们是基于您需要的帮助，而不是您服用哪种药物，如果有帮助的是什么？

我真的不希望您对可能提供的药物感到太害怕。我们许多人在这里拿走它们，我们对它们做得很好。

不过，请与我们的会员聊天。这里有很多经验，很少有成员患有银屑病关节炎，并且能够为您提供一些保证。

最好的祝愿

艾伦。

stickywicket · 8. 2021年6月，09：56

Hi Chloe. I feel for you. I have, on the one hand, longstanding RA and, on the other, a son who is now a US citizen so I understand the medical worries a bit.

My belief is that the costs all depend on the medical insurance package you have. My son once had to pay for his own stitches as his, then, package didn't include sports injuries. He was told a couple of years back that he should have a scan every 6 months to check that a lesion on his liver wasn't growing. But this cost $200 a time and isn't covered so, as he was also told it was probably just a scar from his childhood meningitis, he doesn't bother. Over here, we have free-but-long-awaited appointments. A combination of the two systems would be nice.

I did find this link to Johns Hopkins - one of the best medical schools in USA if not the world. I hope it helps.https://www.hopkinsarthritis.org/arthritis-info/psoriatic-arthritis/diagnosis/

我只是补充一点，如果您确实有PSA，最好忽略可怕的东西并服用药物。药物问题很可能。未经处理的PSA会造成更多损坏。

祝您好运，并让我们知道您的情况。

Chloe8596 · 8. 2021年6月16:26

Good morning @chloe8596<\/a> <\/p>

I see you are about to see a Rheumatologist for the first time for suspected Psoriatic Arthritis and have lots of queries.<\/p>

Unfortunately I do not know very much about the American health care system as we are very fortunate here that we have the NHS which provides all of our testing free of charge even if we do have long waiting lists at times.<\/p>

This will help a little at least with what tests might be done:<\/p>

\/\/www.wfysxh.com\/about-arthritis\/conditions\/psoriatic-arthritis\/<\/a><\/p>

As will this although again it is UK specific I would imagine there will be an overlap:<\/p>

\/\/www.wfysxh.com\/search?query=The+inflammatory+arthritis+pathway#<\/a><\/p>

I can't help much with your welfare benefits either so very sorry, but here they are based on what help you need rather than what medications you are taking if that helps at all?<\/p>

I really don't want you to be too frightened about the medications you might be offered though. Many many of us on here take them and we do just fine on them.<\/p>

Please do come along in chat to our members though. There is so much experience here a fair few members have Psoriatic Arthritis and will be able to offer some reassurance to you.<\/p>

Best wishes<\/p>

Ellen.<\/p>","bodyRaw":"[{\"insert\":\"Good morning \"},{\"insert\":{\"mention\":{\"name\":\"chloe8596\",\"userID\":117643}}},{\"insert\":\" \\nI see you are about to see a Rheumatologist for the first time for suspected Psoriatic Arthritis and have lots of queries.\\nUnfortunately I do not know very much about the American health care system as we are very fortunate here that we have the NHS which provides all of our testing free of charge even if we do have long waiting lists at times.\\nThis will help a little at least with what tests might be done:\\n\\n\"},{\"insert\":\"https:\\\/\\\/www.wfysxh.com\\\/about-arthritis\\\/conditions\\\/psoriatic-arthritis\\\/\",\"attributes\":{\"link\":\"https:\\\/\\\/www.wfysxh.com\\\/about-arthritis\\\/conditions\\\/psoriatic-arthritis\\\/\"}},{\"insert\":\"\\n\"},{\"insert\":\"As will this although again it is UK specific I would imagine there will be an overlap:\\n\"},{\"insert\":\"https:\\\/\\\/www.wfysxh.com\\\/search?query=The+inflammatory+arthritis+pathway#\",\"attributes\":{\"link\":\"https:\\\/\\\/www.wfysxh.com\\\/search?query=The+inflammatory+arthritis+pathway#\"}},{\"insert\":\"\\n\"},{\"insert\":\"\\nI can't help much with your welfare benefits either so very sorry, but here they are based on what help you need rather than what medications you are taking if that helps at all?\\nI really don't want you to be too frightened about the medications you might be offered though. Many many of us on here take them and we do just fine on them.\\nPlease do come along in chat to our members though. There is so much experience here a fair few members have Psoriatic Arthritis and will be able to offer some reassurance to you.\\nBest wishes\\nEllen.\\n\"}]","format":"rich","dateInserted":"2021-06-08T05:54:00+00:00","insertUser":{"userID":113173,"name":"Ellen","url":"https:\/\/community.versusarthritis.org\/profile\/Ellen","photoUrl":"https:\/\/us.v-cdn.net\/6031919\/uploads\/userpics\/57PO2WXR7CB2\/n3HFWR1PJEL10.jpg","dateLastActive":"2022-06-28T11:45:33+00:00","banned":0,"punished":0,"private":false},"displayOptions":{"showUserLabel":false,"showCompactUserInfo":true,"showDiscussionLink":false,"showPostLink":false,"showCategoryLink":false,"renderFullContent":false,"expandByDefault":false},"url":"https:\/\/community.versusarthritis.org\/discussion\/comment\/681310#Comment_681310","embedType":"quote"}"> https://community.versusarthritis.org/discussion/comment/681310#Comment_681310

非常感谢！感谢您的评论。只是感觉这个社区的一部分已经很有帮助：）

Chloe8596 · 8. 2021年6月16:26

Hi Chloe. I feel for you. I have, on the one hand, longstanding RA and, on the other, a son who is now a US citizen so I understand the medical worries a bit.<\/p>

My belief is that the costs all depend on the medical insurance package you have. My son once had to pay for his own stitches as his, then, package didn't include sports injuries. He was told a couple of years back that he should have a scan every 6 months to check that a lesion on his liver wasn't growing. But this cost $200 a time and isn't covered so, as he was also told it was probably just a scar from his childhood meningitis, he doesn't bother. Over here, we have free-but-long-awaited appointments. A combination of the two systems would be nice.<\/p>

I did find this link to Johns Hopkins - one of the best medical schools in USA if not the world. I hope it helps. https:\/\/www.hopkinsarthritis.org\/arthritis-info\/psoriatic-arthritis\/diagnosis\/<\/a><\/p>

I'd just add that, if you do have PsA, it's much better to ignore the scary stuff and take the meds. Meds problems are a slight possibility. Untreated PsA will do more damage.<\/p>

Good luck and do let us know how you get on.<\/p>","bodyRaw":"[{\"insert\":\"Hi Chloe. I feel for you. I have, on the one hand, longstanding RA and, on the other, a son who is now a US citizen so I understand the medical worries a bit.\\nMy belief is that the costs all depend on the medical insurance package you have. My son once had to pay for his own stitches as his, then, package didn't include sports injuries. He was told a couple of years back that he should have a scan every 6 months to check that a lesion on his liver wasn't growing. But this cost $200 a time and isn't covered so, as he was also told it was probably just a scar from his childhood meningitis, he doesn't bother. Over here, we have free-but-long-awaited appointments. A combination of the two systems would be nice.\\nI did find this link to Johns Hopkins - one of the best medical schools in USA if not the world. I hope it helps. \"},{\"attributes\":{\"link\":\"https:\\\/\\\/www.hopkinsarthritis.org\\\/arthritis-info\\\/psoriatic-arthritis\\\/diagnosis\\\/\"},\"insert\":\"https:\\\/\\\/www.hopkinsarthritis.org\\\/arthritis-info\\\/psoriatic-arthritis\\\/diagnosis\\\/\"},{\"insert\":\"\\nI'd just add that, if you do have PsA, it's much better to ignore the scary stuff and take the meds. Meds problems are a slight possibility. Untreated PsA will do more damage.\\nGood luck and do let us know how you get on.\\n\\n\\n\"}]","format":"rich","dateInserted":"2021-06-08T09:56:01+00:00","insertUser":{"userID":15071,"name":"stickywicket","url":"https:\/\/community.versusarthritis.org\/profile\/stickywicket","photoUrl":"https:\/\/w9.vanillicon.com\/v2\/9fdd062ad197cafded2e18137c05f5c8.svg","dateLastActive":"2022-07-02T19:25:39+00:00","banned":0,"punished":0,"private":false},"displayOptions":{"showUserLabel":false,"showCompactUserInfo":true,"showDiscussionLink":false,"showPostLink":false,"showCategoryLink":false,"renderFullContent":false,"expandByDefault":false},"url":"https:\/\/community.versusarthritis.org\/discussion\/comment\/681322#Comment_681322","embedType":"quote"}"> https://community.versusarthritis.org/discussion/comment/681322#Comment_681322

谢谢你！这非常有帮助！

stickywicket · 10.小君2021, 09:17

我在想你。希望一切顺利。

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