你好！在这里新的，想自我自我介绍 - 在23岁时。帮助！

露西1 · 13. 2021年11月10:17

大家好！

我想在这里与一些年轻社区接触，我是关节炎的新手，发现旅程挑战，尤其是因为我周围没有人经历类似的事情。

自从我十几岁以来，我一直在与慢性疼痛/受伤作斗争，但今年23岁就被诊断出来了。直到去年，我一直在努力保持真正的活跃（我喜欢户外活动），这在我的职业道路上发生了巨大变化厌恶时间对我来说是一场巨大的斗争。在未来几年内感到非常厄运和忧郁，这变得越来越糟。目前，我的臀部/骨盆爆发了大爆发，想知道你们中的一些人如何体验它以及您如何应对它？

诊断后，我在NSAIDS上持续了3个月，但最终在医院里出血，我仍在与损害造成的慢性胃炎作斗争。我与我的医生进行评论之间，我们将仔细研究生物制剂。我正处于大多数夜晚的睡眠时间，双腿之间有冰袋，以帮助应对疼痛和炎症，无论我在做什么活动或缺乏活动，我整天都会痛苦。期待我的胃愈合，以便我可以恢复其他药物（尽管这种损害使我有些紧张）。同时，骨盆区域的炎症和疼痛的任何技巧？（我已经进行了很多游泳，这对它有所帮助，而且我的体重正常）。

另外，直到几个月前，我的臀部才疼痛。感觉在该地区突然发作，非常严重。还有其他人有类似的经历吗？

希望这里的每个人都进展顺利，保重！

[已被删除的用户] · 13. 2021年11月，10：48

你好@lucy1，欢迎来到在线社区！有你在这里真是太好了。

我看到您正在处理强直性脊柱炎，并正在寻找有关处理影响骨盆和严重臀部疼痛的爆发的建议。您可能还发现很难对状况的未来保持乐观。您来到了正确的位置与其他年轻人见面，我希望您会坚持下去，很高兴看到您已经对其他帖子发表评论并提供支持。

听起来您正在做所有正确的事情 - 我们经常分享有关游泳和保持健康体重以及冰或热量如何帮助缓解炎症的信息。很遗憾得知您患有胃肠道流血，并祝您快速康复，以便您可以通过治疗重回正轨。希望您能看到生物制剂的一些改进，尤其是在炎症中遇到的不适。

以下是与关节炎网站的一些链接，可能对您有所帮助：beplay体育怎么下载

强直性脊柱炎|症状，原因，治疗（与企业炎）

臀部锻炼|beplay体育怎么下载与关节炎

是什么有助于臀部疼痛？|beplay体育怎么下载与关节炎

最良好的祝福，莎拉（主持人）

蹦床威斯康星州 · 15. 2021年11月，20：51

嗨，露西1！

我也被诊断出了23岁 - 我现在30岁。生物制剂对我有很大帮助，希望您能尽快开始！

长期使用NSAID的关键是在Cox II抑制剂（例如Arcoxia/Etoricoxib，Celecoxib，Meloxicam）上，因为它们会影响肠道少于Cox I抑制剂（例如Ibuprofen，Naproxen），并且还服用了Proton proton proton泵抑制剂（例如奥美拉唑）。很遗憾听到NSAID损坏了您的肠内衬里 - 希望它能尽快愈合！

继续冰上冰，这很有帮助。您也可以考虑与热量交替以帮助保持肌肉松散。我发现，当我发炎时，一些问题是收紧肌肉，使Sijs发炎。您可能还会发现一个有用的单位。它们可在亚马逊上以相当便宜的价格购买。您想要一个是双通道，最好是数字显示器（我的具有控制强度并敲打它们的旋钮并不有趣！）一个数十个单元可以通过在粘在皮肤上的电极之间发送小电脉冲来工作（DON'担心它们超级剥落，可以重新涂抹）。这有助于消除或分散发出神经和大脑的疼痛信号的注意力。有时候，我的数十个单位就是让我走路！

要考虑的问题是，臀部的疼痛还是周围肌肉中的疼痛？臀部疼痛（我告诉我）是一种深部疼痛，肌肉疼痛在表面越来越近。肌肉疼痛可能来自臀部屈肌，臀肌和内收肌。每次移动臀部时，它都会伤害，但是疼痛实际上并不是关节中的炎症。说髋关节问题在患者中也很常见。我只有该地区的肌肉疼痛经验，因此无法就实际的髋关节疼痛提供建议。我发现热量和拉伸有助于肌肉疼痛。不过，这需要全天定期进行 - 我会说至少3次。热泻盐浴也可以舒缓 - 之后的Sore Sijs手上有一些冰！

祝你好运，希望您的痛苦能尽快缓解❤

露西1 · 21. 2021年11月，01：14

Hi Lucy1!<\/p>

I was diagnosed with AS at 23 too- I'm now 30. Biologics helped me so much, I hope you can start them soon!<\/p>

The key thing with long term use of NSAIDs is to be on a cox II inhibitor (eg arcoxia\/Etoricoxib, celecoxib, meloxicam) as they affect the gut less than Cox I inhibitors (eg ibuprofen, naproxen) and to also be taking a proton pump inhibitor (eg omeprazole). I'm sorry to hear nsaids have damaged your gut lining- I hope it heals soon!<\/p>

Keep going with the ice, that's helpful. You could also consider alternating with heat to help keep the muscles looser. I find when I'm inflamed some of the problem is tightened muscles that pull on the inflamed SIJs. You may also find a TENS unit helpful. They are available on amazon for fairly cheap. You want one that is dual channel, and preferably a digital display (mine has knobs to control the intensity and knocking them isn't fun!) A TENS unit works by sending small electrical pulses between the electrodes you stick to your skin (don't worry they peel off super easy and can be reapplied). This helps muffle or distract from the pain signals that are being sent up the nerves and to your brain. Some days my TENS unit is all that allows me to walk!<\/p>

A question to consider is, is the pain in your hips or is it in the surrounding muscle? Hip pain (I'm told) is a deep pain, muscle pain is much nearer the surface. Muscle pain can be from tightened hip flexor, glutes and adductors. It can hurt every time you move your hip, but the pain isn't actually from inflammation in the joint. Having said that hip problems are also fairly common in AS patients. I only have experience of muscle pain in the area so can't advise on actual hip joint pain. I find heat and stretching helps for muscle pain. It needs to be done very regularly throughout the day though- I'd say at least 3 times. Hot epsom salts baths can also be soothing- just have some ice on hand for the sore SIJs after!<\/p>

Good luck, I hope your pain eases soon ❤<\/p>","bodyRaw":"[{\"insert\":\"Hi Lucy1!\\n\\nI was diagnosed with AS at 23 too- I'm now 30. Biologics helped me so much, I hope you can start them soon!\\n\\nThe key thing with long term use of NSAIDs is to be on a cox II inhibitor (eg arcoxia\\\/Etoricoxib, celecoxib, meloxicam) as they affect the gut less than Cox I inhibitors (eg ibuprofen, naproxen) and to also be taking a proton pump inhibitor (eg omeprazole). I'm sorry to hear nsaids have damaged your gut lining- I hope it heals soon!\\n\\nKeep going with the ice, that's helpful. You could also consider alternating with heat to help keep the muscles looser. I find when I'm inflamed some of the problem is tightened muscles that pull on the inflamed SIJs. You may also find a TENS unit helpful. They are available on amazon for fairly cheap. You want one that is dual channel, and preferably a digital display (mine has knobs to control the intensity and knocking them isn't fun!) A TENS unit works by sending small electrical pulses between the electrodes you stick to your skin (don't worry they peel off super easy and can be reapplied). This helps muffle or distract from the pain signals that are being sent up the nerves and to your brain. Some days my TENS unit is all that allows me to walk!\\n\\nA question to consider is, is the pain in your hips or is it in the surrounding muscle? Hip pain (I'm told) is a deep pain, muscle pain is much nearer the surface. Muscle pain can be from tightened hip flexor, glutes and adductors. It can hurt every time you move your hip, but the pain isn't actually from inflammation in the joint. Having said that hip problems are also fairly common in AS patients. I only have experience of muscle pain in the area so can't advise on actual hip joint pain. I find heat and stretching helps for muscle pain. It needs to be done very regularly throughout the day though- I'd say at least 3 times. Hot epsom salts baths can also be soothing- just have some ice on hand for the sore SIJs after!\\n\\nGood luck, I hope your pain eases soon ❤\\n\"}]","format":"rich","dateInserted":"2021-11-15T20:51:28+00:00","insertUser":{"userID":119148,"name":"TrampolinistWithAS","url":"https:\/\/community.versusarthritis.org\/profile\/TrampolinistWithAS","photoUrl":"https:\/\/wf.vanillicon.com\/v2\/f90b38760d1ddd00439e5220827e826c.svg","dateLastActive":"2021-11-22T09:26:03+00:00","banned":0,"punished":0,"private":false},"displayOptions":{"showUserLabel":false,"showCompactUserInfo":true,"showDiscussionLink":false,"showPostLink":false,"showCategoryLink":false,"renderFullContent":false,"expandByDefault":false},"url":"https:\/\/community.versusarthritis.org\/discussion\/comment\/687112#Comment_687112","embedType":"quote"}"> https://community.versusarthritis.org/discussion/comment/687112#Comment_687112

你好，

感谢您的所有好建议，我非常感谢！

是的，当它发生时我在塞来昔布上，但是风湿病学家从未让我接受或提到质子泵抑制剂。直到我在医院里，我才听说过，他们马上把我放在了奥美拉唑上。当时风湿病学家对那个不幸的事感到非常沮丧。

这是关于TENS单元的很好的建议，我很高兴听到它对您有很大帮助。这不是我以前考虑的事情，但是本周我将自己得到一个双重渠道的数字。

我不确定臀部疼痛是如何相互作用的。我确实在这些肌肉群中有令人难以置信的紧绷和酸痛，但是在骨盆的两侧（似乎是球和髋关节区域），它完全抓住到我无法走路，坐下或躺下而没有疼痛的地步。而且，在糟糕的日子里，不能一口气走得超过10分钟。伸展，按摩和热量一直在帮助放松肌肉和酸痛。但是，在球和臀部关节上的这种感觉就像我先前没有经历过的那样，这就是冰真正帮助的地方。

我将在一月份进行一次扫描，以进行审查，期待看到什么显示。

好消息是，我刚搬进了一个洗澡的地方，所以泻盐温暖的浴室又恢复了日程安排，是的！

很高兴听到生物制剂和TENS帮助您堆满了旅程，希望您做得很好并保重！<3

露西1 · 21. 2021年11月，01：16

Hi @Lucy1<\/a>, welcome to the Online Community! It's lovely to have you here.<\/p>

I see that you're dealing with ankylosing spondylitis and are looking for advice about dealing with flare-ups affecting the pelvis and severe hip pain. You also might be finding it hard to be optimistic about the future of your condition. You've come to the right place to meet other young people in your position and I hope you'll stick around, it's great to see you already commenting on other posts and offering support. <\/p>

It sounds like you are doing all the right things - we often share information about the benefits of swimming and of keeping a healthy weight, and how ice or heat can help relieve inflammation. I'm sorry to hear that you have suffered with a GI bleed and wish you a speedy recovery so that you can get back on track with your treatment. Hopefully you will see some improvements with biologics, especially with the discomfort you are experiencing with inflammation.<\/p>

Here are some links from the Versus Arthritis website that might be helpful to you:<\/p>

Ankylosing spondylitis | Symptoms, causes, treatments (versusarthritis.org)<\/a><\/p>

Exercises for the hips | Versus Arthritis<\/a><\/p>

What helps hip pain? | Versus Arthritis<\/a><\/p>

Best wishes, Sarah (moderator)<\/p>","bodyRaw":"[{\"insert\":\"Hi \"},{\"insert\":{\"mention\":{\"name\":\"Lucy1\",\"userID\":119184}}},{\"insert\":\", welcome to the Online Community! It's lovely to have you here.\\nI see that you're dealing with ankylosing spondylitis and are looking for advice about dealing with flare-ups affecting the pelvis and severe hip pain. You also might be finding it hard to be optimistic about the future of your condition. You've come to the right place to meet other young people in your position and I hope you'll stick around, it's great to see you already commenting on other posts and offering support. \\nIt sounds like you are doing all the right things - we often share information about the benefits of swimming and of keeping a healthy weight, and how ice or heat can help relieve inflammation. I'm sorry to hear that you have suffered with a GI bleed and wish you a speedy recovery so that you can get back on track with your treatment. Hopefully you will see some improvements with biologics, especially with the discomfort you are experiencing with inflammation.\\nHere are some links from the Versus Arthritis website that might be helpful to you:\\n\"},{\"attributes\":{\"link\":\"https:\\\/\\\/www.wfysxh.com\\\/about-arthritis\\\/conditions\\\/ankylosing-spondylitis\\\/\"},\"insert\":\"Ankylosing spondylitis | Symptoms, causes, treatments (versusarthritis.org)\"},{\"insert\":\"\\n\"},{\"attributes\":{\"link\":\"https:\\\/\\\/www.wfysxh.com\\\/about-arthritis\\\/exercising-with-arthritis\\\/exercises-for-healthy-joints\\\/exercises-for-the-hips\\\/\"},\"insert\":\"Exercises for the hips | Versus Arthritis\"},{\"insert\":\"\\n\"},{\"attributes\":{\"link\":\"https:\\\/\\\/www.wfysxh.com\\\/news\\\/2020\\\/september\\\/ways-to-help-manage-hip-pain\\\/\"},\"insert\":\"What helps hip pain? | Versus Arthritis\"},{\"insert\":\"\\nBest wishes, Sarah (moderator)\\n\"}]","format":"rich","dateInserted":"2021-11-13T10:48:19+00:00","insertUser":{"userID":116062,"name":"[Deleted User]","url":"https:\/\/community.versusarthritis.org\/profile\/%5BDeleted%20User%5D","photoUrl":"https:\/\/w9.vanillicon.com\/v2\/967824c8282016b1307b357fec8df58c.svg","dateLastActive":null,"banned":0,"punished":0,"private":false},"displayOptions":{"showUserLabel":false,"showCompactUserInfo":true,"showDiscussionLink":false,"showPostLink":false,"showCategoryLink":false,"renderFullContent":false,"expandByDefault":false},"url":"https:\/\/community.versusarthritis.org\/discussion\/comment\/687037#Comment_687037","embedType":"quote"}"> https://community.versusarthritis.org/discussion/comment/687037#comment_687037

嗨，莎拉，

感谢您的欢迎和所有信息，非常感谢。这是一个很棒的枢纽！

只是让您知道链接“什么有助于臀部疼痛？”不幸的是破碎了！髋关节伸展确实很有用。

小心！