Advice please

Tripsy

Hi everyone,

among other issues I have imaging confirmed arthritis in my lower spine and big toe. I have an appointment booked to see Rhuematology and my Gp has agreed to send me for X-rays of toes on both feet as I have pain And deformity of other toes but I was wondering as I get pain and stiffness in other joints ie. Fingers thumbs and ankles is it worth asking to have these crates at the same time whilst I’m waiting to see rheumatologist? Also I have problems with my si joint for which I had mri but the pain clinic have suggested steroid injection for which they said would not only be for pain but also to help with diagnosis, I’m not clear on how this would help with diagnosis , can anyone advise?

frogmorton

Morning@Tripsy

I like your name for some reason it sounds sort of upbeat and made me smile.

It sounds from your post (and looking at your introductory post) as if you have tested negative for R factor, but need to see a rheumatologist to rule out inflammatory arthritis with you having a family history. You are right a lot of inflammatory Arthritides are sero-negative so I think that's a good idea.

Mine is sero-negative and part of the rheumatologists' diagnosis came from a steroid injection (in my case a depo one in my rear!) which made me feel so much better. That's what he said anyway.

I think it will help the Rheumatologist to have as many of your X-ray results as possible prior to your appointment.

另外，请确保您清楚地说明您的症状 - 包括奇怪的皮疹，高温等。

Good luck and do let us know how you get on

Take care

托尼xx

Bic1982

Hi@Tripsy

I would definitely ask to have everything you have a problem with x-rayed before seeing the rheumatologist. The more information they have, the better they are to get you on the right treatment plan for you.

The notes suggestion is also a really good one. I tend to be very forgetful when I see my rheumatologist and have a tendency to focus on the most recent things to have cropped up instead of remembering something that happened a couple of months ago. Making notes of everything I want to talk about is something I try to do now, when ever I remember lol

Anne

Tripsy

Morning @Tripsy<\/a> <\/p>

I like your name for some reason it sounds sort of upbeat and made me smile.<\/p>

It sounds from your post (and looking at your introductory post) as if you have tested negative for R factor, but need to see a rheumatologist to rule out inflammatory arthritis with you having a family history. You are right a lot of inflammatory Arthritides are sero-negative so I think that's a good idea.<\/p>

Mine is sero-negative and part of the rheumatologists' diagnosis came from a steroid injection (in my case a depo one in my rear!) which made me feel so much better. That's what he said anyway.<\/p>

I think it will help the Rheumatologist to have as many of your X-ray results as possible prior to your appointment.<\/p>

Also make sure you make clear and succinct notes about your symptoms for them - anything including strange rashes, high temperatures etc.<\/p>

Good luck and do let us know how you get on<\/p>

Take care<\/p>

Toni xx<\/p>","bodyRaw":"[{\"insert\":\"Morning \"},{\"insert\":{\"mention\":{\"name\":\"Tripsy\",\"userID\":118808}}},{\"insert\":\" \\nI like your name for some reason it sounds sort of upbeat and made me smile.\\nIt sounds from your post (and looking at your introductory post) as if you have tested negative for R factor, but need to see a rheumatologist to rule out inflammatory arthritis with you having a family history. You are right a lot of inflammatory Arthritides are sero-negative so I think that's a good idea.\\nMine is sero-negative and part of the rheumatologists' diagnosis came from a steroid injection (in my case a depo one in my rear!) which made me feel so much better. That's what he said anyway.\\nI think it will help the Rheumatologist to have as many of your X-ray results as possible prior to your appointment.\\nAlso make sure you make clear and succinct notes about your symptoms for them - anything including strange rashes, high temperatures etc.\\nGood luck and do let us know how you get on\\nTake care\\nToni xx\\n\"}]","format":"rich","dateInserted":"2022-07-09T06:56:28+00:00","insertUser":{"userID":10897,"name":"frogmorton","url":"https:\/\/community.versusarthritis.org\/profile\/frogmorton","photoUrl":"https:\/\/us.v-cdn.net\/6031919\/uploads\/userpics\/QH8MX6CX8L1L\/n8WQM6ATFY05V.png","dateLastActive":"2022-10-16T07:40:18+00:00","banned":0,"punished":0,"private":false},"displayOptions":{"showUserLabel":false,"showCompactUserInfo":true,"showDiscussionLink":false,"showPostLink":false,"showCategoryLink":false,"renderFullContent":false,"expandByDefault":false},"url":"https:\/\/community.versusarthritis.org\/discussion\/comment\/696847#Comment_696847","embedType":"quote"}"> https://community.versusarthritis.org/discussion/comment/696847#Comment_696847

hi feogmorton/tony,

im glad my name made you smile

thankyou for checking out my posts and for your advice, I really appreciate it. So I will try to get the gp to add more areas to be xrayed to the request and will give more thought to the injection , I’m quite reluctant/scared to have that done at the moment.

是的，我会和我一起记录约会，我认为其他任何事情可能会有所帮助，因为我被提到的医院无法查看我的笔记，因为它们不在我所在的地区。再次感谢

Tripsy

Hi bic1982/Anne,

thanks for replying. Yes I’m also very forgetful akk on must make notes, I try to keep track of symptoms but also forget to make notes

frogmorton

Ah Tripsy did you know about this:

//www.wfysxh.com/about-arthritis/young-people/arthritis-tracker/

从技术上讲是对年轻人来说,but some of us 'older' people use it too. Might help if you are forgetful.

Toni x

Ps a pleasure to reply

jamieA

Hi everyone, <\/p>

among other issues I have imaging confirmed arthritis in my lower spine and big toe. I have an appointment booked to see Rhuematology and my Gp has agreed to send me for X-rays of toes on both feet as I have pain And deformity of other toes but I was wondering as I get pain and stiffness in other joints ie. Fingers thumbs and ankles is it worth asking to have these crates at the same time whilst I’m waiting to see rheumatologist? Also I have problems with my si joint for which I had mri but the pain clinic have suggested steroid injection for which they said would not only be for pain but also to help with diagnosis, I’m not clear on how this would help with diagnosis , can anyone advise?<\/p>","bodyRaw":"[{\"insert\":\"Hi everyone, \\namong other issues I have imaging confirmed arthritis in my lower spine and big toe. I have an appointment booked to see Rhuematology and my Gp has agreed to send me for X-rays of toes on both feet as I have pain And deformity of other toes but I was wondering as I get pain and stiffness in other joints ie. Fingers thumbs and ankles is it worth asking to have these crates at the same time whilst I’m waiting to see rheumatologist? Also I have problems with my si joint for which I had mri but the pain clinic have suggested steroid injection for which they said would not only be for pain but also to help with diagnosis, I’m not clear on how this would help with diagnosis , can anyone advise?\\n\"}]","format":"rich","dateInserted":"2022-07-08T09:06:48+00:00","insertUser":{"userID":118808,"name":"Tripsy","url":"https:\/\/community.versusarthritis.org\/profile\/Tripsy","photoUrl":"https:\/\/w5.vanillicon.com\/v2\/5e6670acfaeef8a25679665680fe2185.svg","dateLastActive":"2022-09-07T09:03:01+00:00","banned":0,"punished":0,"private":true},"displayOptions":{"showUserLabel":false,"showCompactUserInfo":true,"showDiscussionLink":true,"showPostLink":true,"showCategoryLink":false,"renderFullContent":false,"expandByDefault":false},"url":"https:\/\/community.versusarthritis.org\/discussion\/58026\/advice-please","embedType":"quote","name":"Advice please"}"> https://community.versusarthritis.org/discussion/58026/advice-please

Hi@Tripsy

我同意其他人的观点，即提前做笔记并有时间写下答复是一个好主意，尤其是如果您不能带某人。我从未收到第一章风湿病学家的任何反馈，但是我现在似乎已经记录了我的咨询结果并将其复制出来。我不知道您患有哪种类型的关节炎，但就我而言，我被诊断出患有银屑病性关节炎，他们对我的下背部进行了MRI扫描，后来我发现您的Sacroiliac关节状态是牛皮癣关节炎的指针。

https://www.nature.com/articles/s41598-020-68456-7#:~:text=Sacroiliac%20joint%20involvement%20is%20one,chronic%20changes%20associated%20with%20sacroiliitis.

I think the steroid might be so you have less pain and relax more. I've had a fair number of steroid injections and normally got 4-6 weeks respite from joint pain from them. That allowed me to move more and I was less stiff when the medics were manipulating my joints.