Coping Mechanisms during Covid-19
我希望您能找到在这些奇怪时期应付的方法,如果有人愿意分享,我很想听听他们。
I just wanted to say hello as I have just signed up to Versus Arthritis, my name is Niall I’m 31 and I was diagnosed with PSA when I was 26. As many (if not all) can relate, it has completely changed my life. Things that I could once do I no no longer can now.
我的策略(阻止我的脑袋爆炸)再保险ading, writing and listening to audiobooks to help me fall asleep and I am currently making way through the Sherlock Holmes short stories by Arthur Conan Doyle. Although they are starting to affect my dreams!
I’d love to hear what other people are doing in these strange times?
Comments
-
JoAnn100 Member帖子:5
嗨,Niall ..我也有PSA很糟糕...对于您这么年轻的您来说,必须更糟!我50岁了,已经有大约3年了,我非常活跃(或者!),就像您一样,它已经完全改变了我的生活。
我认为,如果我没有我的狗和马来照顾我会发疯,那就是让我前进的唯一事情!像你一样,我已经开始阅读,午睡太多了!哈哈...我已经装饰了我的房子,现在已经用完了工作……我似乎也花了很多时间看着冰箱和烹饪蛋糕,这是致命的!
幸运的是,我在锁定之前的爆发非常糟糕,看到了我的风湿病学家,他给了我类固醇注射,并让我坐在Sulfasazaline上,与甲氨蝶呤一起服用,触摸木材,我完全没有疼痛,直到现在已经是Fab。..我想,如果我现在像锁定之前一样痛苦,我根本不会应付。
jo :-)
1 -
Dreamdaisy Member帖子:31,520
我有PSA,OA和Fibro。除了我三月份的第一周以来我还没有去过商店的事实,生活并没有改变,直到有疫苗才可能不会去。我所有的赛前活动都像疼痛和质量不佳的睡眠一样正常(过去二十多年的时间)。唯一值得注意的区别是世界更安静,朋友不断向我发送他们做事的照片。我的梦想也没有改变。我猜想是一只良好的关节炎的老蝙蝠,因为我没有发现当前情况有挑战性,这只是我的正常放大。对于年轻人和仍然相对较新的关节炎业务的人来说,这一定要困难得多。DD
1 -
尼尔布朗 Member帖子:5你好Jo, thank you for sharing :) you sound very positive and active it’s great to hear. It’s brilliant that you have ran out of jobs to do, my list of things to do seems to grow every day! Great that you have your animals, I’d be lost without my cat, does the PSA affect your ability to ride? I imagine the freedom that comes with being a horse owner is great :)
我当然同意蛋糕和烘焙,所有的烹饪都很有趣。我的腰间增加了几英寸,没有那么多!
这些类固醇的注射也为我造就了奇迹,我踢了我的高跟鞋:)希望它们也能适应您,您如何找到Sulfasazaline?我从来没有尝试过,但我目前正在伊姆拉迪(以前的humira)注射两周0 -
尼尔布朗 Member帖子:5嗨,dreamdaisy,谢谢你的回复:)
在很长一段时间内处理如此痛苦的状况听起来很困难,20 +年绝非易事!您是否有一个正在帮助您的购物和药物的人?隔离肯定很艰难,您了解到您发现的任何东西对您有帮助吗?0 -
Dreamdaisy Member帖子:31,520
我在这里是一个遥不可及的传单,这对我没有什么好处,所以我马上就削减了,但是看到你有什么我所拥有的,我无法回答!我丈夫每两周都在做商店,但我处理所有药物。
What have I learned? Not much, really. When I was eight I knew my life was going to be different to that of others and so it has proved. You either sink or swim and I prefer to swim, you get more out of life that way. I am lucky in that I am not the anxious, nervy type, deal with the grot and get it out of the way has always been my approach, whether it's eating the yucky chocs first, learning how to do an injection, exercising when in pain, anything really, GID (get it done) then have the reward of enjoyable stuff. I have always asked for help because that preserves my dwindling energies for the stuff I want to do, why waste them on housework, gardening or lugging awkward shopping? I learned early to use aids, both human and mechanical, because they help. Don't use them, you harm yourself further what's the point in that?
我知道如何保持自己的忙碌,我的最新一件事是纸牌制作,我正在向无法出去购买的邻居赠送卡片,我们在这里有一个邻里电子邮件,我每三周左右发送一次设计。
Most useful has been the practice of looking up and out, never down and in. Arthritis is a case of mind over matter, I might mind but that doesn't matter. Arthritis is one of life's less- rich travesties.DD
0 -
Dixon83 Member帖子:2
大家好,我是这里的新手,我叫Pauline,当我30岁时,我被诊断出患有PSA。起初我穿上甲氨蝶呤,这使我感到更加明智,但是我一直感到恶心,所以我改建为磺胺吡啶,这不会让我感到恶心,但是我一直都在痛苦。我什至无法工作!我只想感觉正常。有了Corna,事情只是使事情变得更糟,但是我一直在阅读人们所说的话,我知道我对自己的感受并不是一个孤独的人。
0 -
艾伦 主持人帖子:1,122
你好@Dixon83
很高兴认识您,欢迎您加入在线社区。
有许多人使用这个社区患有像你一样的银屑病关节炎。这是其他几个PSA新手:
Unfortunately people can respond differently to medications. Finding the right combination of drugs might take time, but don't give up yet. Have a look around the forum and join in wherever you feel comfortable.
Best wishes
艾伦.
0