COVID-19期间的应对机制
I hope you are finding ways to cope in these strange times and I would love to hear about them if anyone is willing to share.
I just wanted to say hello as I have just signed up to Versus Arthritis, my name is Niall I’m 31 and I was diagnosed with PSA when I was 26. As many (if not all) can relate, it has completely changed my life. Things that I could once do I no no longer can now.
我的策略（阻止我的头部爆炸）是阅读，写作和聆听有声读物，以帮助我入睡，而我目前正在通过Arthur Conan Doyle的Sherlock Holmes短篇小说迈进。尽管他们开始影响我的梦想！
我很想听听其他人在这些奇怪的时期正在做什么？
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joann100 成员Posts:5Hi Niall ..i also have PSA which sucks big time...must be worse for you being so young! im 50 and have had it for about 3 years, im very active (or was!) and like you it has changed my life completely.
I think if i didnt have my dog and horse to look after i would of gone crazy, they are the only things keeping me going! like you i have started reading and have far too many naps! haha...i have decorated my house and have now run out of jobs to do...i also seem to spend alot of time looking in the fridge and cooking cakes which is lethal!
Luckily i was having really bad flare ups before the lockdown and got to see my rheumatologist who gave me a steroid injection and put me on sulfasazaline to take alongside my methotrexate , touch wood i have had no pain at all upto now which has been fab...i think if i was in as much pain as i was before the lockdown now i would not cope at all.
乔：-)
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dreamdaisy 成员Posts:31,520I have PsA, OA and fibro. Life has not changed apart from the fact I haven't been to the shops since the first week of March and probably won't be going until there is a vaccine. All my pre-shielding activities are carrying on as normal (as they have for the past twenty-plus years) as is pain and poor quality sleep. The only notable difference is the world is much quieter and friends keep sending me pics of them doing stuff. My dreams haven't changed either. I guess being an old bat who is well-versed in arthritis has its uses in that I am not finding this current situation challenging, it's merely my normal magnified. It must be far harder for the younger and people who are still relatively new to this arthritis business. DD
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niallbrown 成员Posts:5嗨，乔，谢谢您的分享：)您听起来很积极和活跃，很高兴听到。很棒的是，您无法完成工作，我的工作清单似乎每天都在增长！太好了，您拥有动物，我会迷路，没有猫，PSA会影响您的骑行能力吗？我想成为马主带来的自由很棒:)
I certainly agree re the cakes and the baking and all the cooking is a lot of fun. The added inches around my waist, not so much!
Those steroid injections worked wonders for me too, I was kicking my heels :)hope they work well for you too, how are you finding the sulfasazaline? I have never tried that but I’m currently on Imraldi (previously Humira) injecting fortnightly0 -
niallbrown 成员Posts:5Hi Dreamdaisy, thank you for replying :)
Sounds difficult dealing with such painful conditions over a long period of time, 20 + years is no easy task! Have you got someone who is helping with your shopping and meds? Isolation is certainly tough, is there anything you have learned that you have found to be helpful for you?0 -
dreamdaisy 成员Posts:31,520
I was a far-to-frequent flyer on here, it wasn't doing me any good so I've cut right back, but seeing as how you have what I have I couldn't not answer! My husband is doing the fortnightly shop but I deal with all my meds.
我学到了什么？真的，真的。当我八岁的时候，我知道我的生活将与其他人不同，因此事实证明。您要么下沉或游泳，我更喜欢游泳，您会以这种方式获得更多的生活。我很幸运，因为我不是焦虑，紧张的类型，要处理烂摊子并避开它一直是我的方法，无论是先吃Yucky Chocs，学习如何进行注射，在痛苦中锻炼时锻炼身体，真正的事情，GID（完成它），然后获得愉快的东西的奖励。我总是寻求帮助，因为这样可以保留我想做的事情的减少能量，为什么要浪费他们的家务，园艺或笨拙的购物？我很早就学会了使用人类和机械的艾滋病，因为它们会有所帮助。不要使用它们，进一步伤害自己，这有什么意义？
I know how to keep myself occupied, my latest thing is card-making and I am giving cards away to neighbours who cannot get out and buy them, we have a neighbourhood email round here and I send out designs every three weeks or so.
最有用的是抬头和外出，永不倒下。关节炎是关于物质的一种情况，我可能会介意，但这没关系。关节炎是生活中不那么丰富的琐事之一。DD
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Dixon83 成员Posts:2Hi all , I am new to here my name is pauline, I got diagnosed with Psa when I turned 30 . I got put on methotrexate at first , it made me feel better pain wise but I felt sick all the time so I changed to sulfasalazine that doesn't make me feel sick but I am in so much pain all the time . I can't even work now! I just want to feel normal . With corna about just makes things worse but I have been reading what people have got to say and I know I am not a lone on how I am feeling.
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