RA Medication
Hi all.
I am new to this forum but have read some of your posts with great interest.
I was diagnosed with reactive RA which apparently was caused by a virus which triggered my immune system to attack my joints.
At the time I could barely walk. When I had a face to face with the consultant, he gave me an injection of prednisolone. (Pre covid). Before I got home from hospital I was able to walk again. Seriously! The following day everything seemed normal.
This lasted about 2 months before I started to struggle again. So they put me on Sulphazalamine. Within a few weeks I noticed my feet and ankles were swollen, my hands stopped working and my fingers swelled. Coupled with loss of grip strength, it was difficult to use a knife and fork. I could not get my shoes on so could not go out.
我想，这不好。因此，几个月来的毅力，我决定让自己摆脱这些药物。
Fast forward, I am due to start on Methotrexate next week, which if you Google it is apparently the first dmard suggested for RA suffers. Even on the NHS website. Funny that. Maybe it's more expensive than Sulphazalamine.
I hope the Methotrexate works because my knees, shoulders, elbows and hands are getting worse. Thank god for regular 500mg of Paracetemol which eases the pain.
Reading others posts, it seems I am not alone in my experience. And there is no quick fix for RA. I too have the nodules on my wrists. Also, I sometimes feel my wrist joints get hot, which I was told is a sign of a flare up. As you all know, every day is different.
I hope the Methotrexate works. But it should be a few weeks before I find out. I will keep you posted. Sorry for the long winded intro.
注意安全。
Steve
注释
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Jeddison1985 成员Posts:211Hi@Sandgrownen首先，让我欢迎您参加论坛，希望您能找到来自我们美好社区的信息和支持。
从您的帖子中，我可以看到您最近因感染而被诊断出患有反应性类风湿关节炎。我可以理解您和我的兄弟都经历了同样的旅程，最终导致炎症性脊柱关节炎。
With good news though it is possible with treatments and lifestyle changes it can be under control and even remission. My journey also started with Methotrexate before graduating to biologics.
The site is full of information and I wanted to signpost you to some information that could help, linked to the main element of your question around Methotrexate.
这也是有关反应性关节炎的一般信息的链接。
请随时搜索与其他经验相似的其他人的论坛，我相信我们的一些社区将能够帮助提供一些有用的建议。
保重，希望您能尽快得到一些缓解和答案。
谢谢
乔
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Wendolyn1 成员Posts:13Hi Steve,
I too have RA, I was diagnosed about 7 years ago now. It came out of the blue really, I was told it might have been triggered by a virus but they didn't really know for sure. I had a lot of pain in the beginning and felt like I was walking on knives, also as I enjoyed Ceroc dancing at the time if a partner wanted to hold my hand it was like torture, it felt like my hands were in a vice, not good. Anyway I wanted to say to you once I got seen by the specialist and put on Methotrexate and Hydroxychloroquine my body gradually settled down, and touchwood the majority of the time I am ok now and more or less pain free.
I wish I didn't have RA of course and don't like taking any tablets full stop, especially one's that suppress your immune system, but if it can control the aches and pains which unfortunately are part and parcel of this disease especially in the beginning, then it must be worth it.
我将期待听到您的生活方式，希望您很快能自由痛苦，并能够再次享受生活。
小心，
xx
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猫咪 成员Posts:3,566早上好，我在1987年36岁（我现在70岁）就被诊断出RA，我开始使用Sulphasalazine，这对我来说就像是奇迹毒品，我喜欢它。可悲的是，我的顾问移民到澳大利亚，他的替代者“忘记”给我任命。因此，我的全科医生把我从所有毒品中取出，把我放在泼尼松龙上，然后重新引用了我。安全地回到新的风湿病医生的照顾下，我被MTX送上。幸运的是。因此，我一直呆了几年，直到诊断为癌症和急需的化学疗法。有人告诉我要停止服用MTX，但到了这时，我也在服用leflunomide。我被允许继续。癌症后，I发生类风湿血管炎和骨质疏松症。因此，现在我将低剂量的MTX带有永久性PRED和Leflunomide。 Plus Bisphonates for OP. I can't stand or walk without support, due to fractures in my spine and Osteoarthritis in both hips. Basically I'm in limbo!
I wish you all the best with MTX. KathleenT (Kitty Kat)
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佩尼 成员Posts:16Hi
I have been taking methotrexate along with Hydrchlorinequine (not sure that is spelt right ) I have no change this week I am going for injections so hope they work
Then I am going on a different drug
hope it works as I feel for you I’m in pain exactly the same areas
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CCM 成员Posts:61I'm just back from an induction session with the rheumatology nurse, as I am due to go on Adalimumab (any on else worried about trusting medication you can't pronounce?).
从1980年对RA的原始诊断中，用甲氨蝶呤和羟基氯喹处理了三年，直到8年前几乎全部缓解，我现在被告知，我一直在服用的磺胺丙嗪和羟基氯喹不再有效，尽管不再有效更糟糕的是，那个阿达木单抗现在是选择的药物。
The side effects are certainly scary, but why we hear so much about them is I suspect as much down to current attitudes to risk as to real, significant danger. Certainly when I was treated in the 80's there was not nearly as much monitoring as there is now.
我正在写这篇文章，主要是为了帮助我决定是否去adulimumab。总而言之，我将信任专业人士，并感谢任何改进。
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tamsb 成员Posts:3嗨，桑格林
您的帖子确实与我引起了共鸣，因为它与我的RA故事非常相似。我也只是开始甲氨蝶呤，对磺胺嗪的反应不好，因此希望MTX能够帮助疼痛。祝我们双方祝你好运！
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Sandgrownen 成员Posts:12
嗨，塔姆斯布
谢谢你的评论。
The Methotrexate seems to be working, albeit very slowly.
I have no pain now, just stiffness which is very frustrating. I am on the metoject pen now which gives a bigger hit. Hope you are doing well on the Methotrexate.
干杯
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