纤维肌痛

曼迪 · 14. 2021，17：54

大家好，我最近经过长时间的医生没有认真对待我，我最近被诊断出了，但是现在我被诊断出了他们只是让我继续下去。我感到失望和沮丧。每天痛苦和夜晚，隧道尽头没有光

Chris_R · 14. May 2021, 18:03

你好@Mandy

欢迎来到在线社区，很高兴看到您发布。

最近，被诊断出患有纤维肌痛可能会非常艰巨，让您感到害怕。我们在这里尝试帮助，了解您的情况并与您一起工作以更好地了解您的诊断。鉴于您有任何缓解疼痛药物的药物治疗吗？你没有说。

这里有一些可以帮助您的链接。

纤维肌痛|原因，症状，治疗|beplay体育怎么下载与关节炎

管理痛苦|治疗和自助（与企物炎）

Arthritis and depression: what you can do about it (versusarthritis.org)

希望这些链接以某种方式为您提供帮助。同时，请进入我们的论坛，并与那里的人们交谈，所有人都友好和理解，因为我们都遭受了各种形式的关节炎和痛苦。

All the best Christine

曼迪 · 17. 2021年9月14：20

Yes I have codeine for pain ,but it doesn't work.

Mike1 · 18. 2021年9月，06：10

I have all the symptoms of firbo on top of my OA and everything else, my GP said that as there was no definitive test for it and as he would only prescribe morphine, which I am on already, he would not investigate it further; he even said "after all it is just another label for you".

小型的 · 18. Sep 2021, 10:08

我今天早上流泪，因为疼痛是如此严重，我已经从药物杜洛延汀中脱掉了我的4gettfull，就像我一直在发呆一样，我一直在等待脊柱手术，现在等着24周，他们说这是15个月的等待我的关节燃烧在爆发上是如此痛苦，但我不能服用使我感到如此糟糕的药物不同意我

我想知道天气2放弃我的Aqua有氧运动课，我每周做2次，直到我的手术后，我的脊柱上的2次在我的脊椎上是否有太多2号

Trouble is no one seems to give u a plan at hospital 2 follow while your waiting 4 surgery on whats not good 2 do and whats right 2 do

Im struggling with my stairs as crawling uo them im trying to find somewhere 2 live on ground level

I can honestly I have never felt so low in my life I cant even keep a relationship like I am I hate myself 4 ending up like this falling out of a moving car has ruined my life like this having both knees replaced and hip abd spinal stenosis prolapsed disc I just feel like I want my life over im fed up waiting 4 my ops I feel 4 u all having pain as its awful enjoy ur day

曼迪 · 18. Sep 2021, 13:24

I think these doctors need to be kinder,more understanding wouldn't go amiss,makes me so angry .

曼迪 · 18. Sep 2021, 13:24

乔纳 · 19. Sep 2021, 11:33

你好曼迪,

Some doctors recognise fybro some don’t like Mike said it’s a label. They don’t know what’s wrong and don’t have the finances within the nhs govt guidelines to find out I’ve been appalled by my treatment 9 years ago they said fybro and I’ve fought bitterly since then and X-rays have shown osteoarthritis in nearly every bone in my body plus a skin condition I’m also autoimmune and have iron deficiency with high inflammation markers felt dreadful for years but all I got was oh it’s not that bad well I said it is that bad and until you suffer it then don’t comment needless to say I’m non compliant or a serial attender I’ve even been called hysterical a bone spur in my spine pushes on a nerve I couldn’t raise my right arm seen by a dr who was 6 months away from qualifying and insulted so I was calm told him straight what I thought and left (non compliant) I’m angry, hurt and humiliated but now I won’t go near one, one even yawned when I was explaining my pain guess he read front page of my notes fibromyalgia

I hope you find an understanding doctor and get the help you deserve take care

爱乔纳

曼迪 · 19. 2021年9月16日：09

谢谢理解,你很善良。

乔纳 · 20. 2021，20：43

只是照顾自己，对你友善

Tracie · 12. Jan 2022, 22:53

你好

去年，我看到一名顾问测试了我体内的不同位置压力点，这一切都很痛苦。他解释说，他们是否像我疲惫的感觉那样柔软，那是纤维肌痛。纤维肌痛与Oestoathersis并驾齐驱。他非常好，给了我一个解释的传单。并推荐生理学继续从博士服用药物。我认为对自己友善，如果您累了，请不要感到不好，因为Morrow可以做一点运动。DEF帮助照顾Tracie X

ltrus81 · 17. 2022年1月，22：34

你好曼迪,

我患有纤维肌痛和骨关节炎。我服用了40毫克的阿米替林，在同一家庭中有很多药物，我肯定会推动某种东西，这对我的睡眠有很大的影响，但我不得不说这对痛苦无济于事。

For the pain have 2 weekly acupuncture and cupping treatments I also have a tens machine which has a fibromyalgia setting so it runs for a lot longer than other setting and heat always helps I have a wheat bag and a hot water bottle I can wrap around my back.

Rosyrojo · 18. 2022年1月，19：04

I was diagnosed Fm over 17 years ago. Soon followed by Rh. ARthritis. I take no prescription drugs for either condition. Have had adverse affect from prescriptions in past. SElf care, determination and nutritional guidance -not avail on NHS. For FM- pacing techniques essential. Learn to recognise onset of fatigue. If unable to cease activity/work at that moment .. rest up asap. Psychologically tell yourself ‘ “I am deserving of a break’, or. I’m doing little/nothing.. I’m on holiday.””(Even if you are not!!).

我采用高剂量姜黄胶囊（带有其他成分）称为{xxx}*。对于FM，我发现了高剂量镁。柠檬酸镁/元素杂志。{xxx}*我服用了20多年的有机小球藻2tabs 500mg EA餐。从那时起，我的铁水平一直保持正常。在此期间只有1种病毒。

Med `herbalist sent test to Germany for “leaky gut syndrome’ over 9yrs ago. Confirmed leaky gut syndrome , ie: good gut bacteria non-existent, bad bacteria over high limit. ADvised gluten free diet and many different baccilus capsules over 4 months. Then retested and correct level of glut bacteria confirmed. Remained gluten free ever since. Much research available on leaky-gut sysndrom+ associated with Rh; Arhritis and FM. Much associated with gluten.

切勿喝酒或烟。锻炼 - 能量允许时进行轻柔的步行。否则，选择一些“与肢体炎”家庭视频进行锻炼以支持肌肉关节柔韧性/力量。我每年只见两次顾问风湿病学家。坚持进行血液检查的副本，并向我的医学草药医生展示 /发送。所有私人待遇和昂贵。为收入有限的人而悲伤。对于像我们这样的人来说，可悲的是，NHS没有成为希望的服务。由于缺乏对非药物疗法的研究，对饮食/营养的知识/指导很少。自依赖必不可少的，但确实很努力！祝福和好运。

*Edited to remove product names. Anna (Mod)

安娜 · 18. 2022年1月，19:12

Hello@Rosyrojo欢迎来到在线社区，

感谢您加入并告诉我们您接受补充治疗和药物的经验，以帮助您处理FM和关节炎。我还使用与关节炎的锻炼视频，并beplay体育怎么下载强烈建议它们有助于保持灵活并减轻疼痛。我同意自我保健也是如此重要 - 对此做得很好。

阅读您服用的补充药很有趣。他们并不适合所有人，但是有些人肯定会发现他们有帮助。但是，在停止处方药或开始服用补充药物之前，您应该始终先咨询GP或风湿病医生。

您可能有兴趣查看讨论替代和互补治疗的好处和风险的关节炎网站：beplay体育怎么下载

//www.wfysxh.com/about-arthritis/complementary-and-anternative-treatments/what-are-complentary-and-complementary-and-alternative-treatments/

Best wishes, and keep posting,

安娜(Mod)

Eirianwen · 20. Jan 2022, 10:39

我已经被处方了阿米托普林，但我也服用了姜黄，我觉得很有帮助。我的多肌痛再次爆发，所以我回到类固醇3周。衰老过程是如此残酷！

Poppyjane · 20. Jan 2022, 11:01

欢迎@eirianwen到在线社区

我看到您一直在遵循这个有趣的线程，并提到您正在服用类固醇来帮助您进行多肌痛。正如安娜所说，许多人在指导下结合了两种类型的治疗，并确定适合他们的方法。

I hope you have had a chance to look at the various links above on complementary therapies, polymyalgia and managing pain. All of them provide interesting information and will no doubt create more questions or comments , so don't hesitate to contact us again and share your own experience.

如果与某人交谈会有所帮助

//www.wfysxh.com/get-help/helpline/

小心

Poppyjane

Crazycatlady55 · 24. 2022年1月，10：36

嗨.....我苏（Sue），除了手指和脚趾的OA外，我还被诊断出患有纤维。从那以后，我还发现自己的下背部，臀部和膝盖有OA。我被一位风湿病学家诊断出，他看见我两次，并将我送回GP。我见过2个GPS，他们显然不知道如何处理纤维。我当时患有高剂量的pregabalin，但由于它影响了我的肝脏，因此GP将其切下来。除了饮食和运动以自我管理之外，我被告知没有其他建议。无论多么温柔，锻炼都会使情况变得更糟。就在我的智慧结束时。我也有家人来找我的问题，只是想躲藏起来。我现在正在寻求咨询，希望这会有所帮助。 How does everyone else cope? Thank you for reading this

PeterJ · 24. 2022年1月，10：53

你好@crazycatlady55have a look at the following, it might have a few useful tips

//www.wfysxh.com/about-arthritis/managing-symptoms/emotional-wellbeing/

Jo110809 · 11. Mar 2022, 14:16

Hi Mandy, <\/p>

I have fibromyalgia as well as osteoarthritis. I take 40Mg of amitriptyline, there are a number of drugs in the same family as amitriptyline I would definitely push for something, it’s made a huge difference to the sleep I get but I have to say it doesn’t help the pain. <\/p>

For the pain have 2 weekly acupuncture and cupping treatments I also have a tens machine which has a fibromyalgia setting so it runs for a lot longer than other setting and heat always helps I have a wheat bag and a hot water bottle I can wrap around my back.<\/p>","bodyRaw":"[{\"insert\":\"Hi Mandy, \\nI have fibromyalgia as well as osteoarthritis. I take 40Mg of amitriptyline, there are a number of drugs in the same family as amitriptyline I would definitely push for something, it’s made a huge difference to the sleep I get but I have to say it doesn’t help the pain. \\nFor the pain have 2 weekly acupuncture and cupping treatments I also have a tens machine which has a fibromyalgia setting so it runs for a lot longer than other setting and heat always helps I have a wheat bag and a hot water bottle I can wrap around my back. \\n\"}]","format":"rich","dateInserted":"2022-01-17T22:34:02+00:00","insertUser":{"userID":118803,"name":"Ltrus81","url":"https:\/\/community.versusarthritis.org\/profile\/Ltrus81","photoUrl":"https:\/\/wa.vanillicon.com\/v2\/a8a031bd975500207db1c1944b3beb45.svg","dateLastActive":"2022-01-17T20:18:47+00:00","banned":0,"punished":0,"private":false},"displayOptions":{"showUserLabel":false,"showCompactUserInfo":true,"showDiscussionLink":false,"showPostLink":false,"showCategoryLink":false,"renderFullContent":false,"expandByDefault":false},"url":"https:\/\/community.versusarthritis.org\/discussion\/comment\/689187#Comment_689187","embedType":"quote"}"> https://community.versusarthritis.org/discussion/comment/689187#comment_689187

戴安娜62 · 23. 2022年3月，20：27

Hi everyone I was recently diagnosed after a long time of doctors not taking me seriously, but now I'm diagnosed there is no help they have just left me to get on with it.i feel let down and depressed.in pain every day and night and no light at the end of the tunnel<\/p>","bodyRaw":"[{\"insert\":\"Hi everyone I was recently diagnosed after a long time of doctors not taking me seriously, but now I'm diagnosed there is no help they have just left me to get on with it.i feel let down and depressed.in pain every day and night and no light at the end of the tunnel \\n\"}]","format":"rich","dateInserted":"2021-05-14T17:54:16+00:00","insertUser":{"userID":116323,"name":"Mandy","url":"https:\/\/community.versusarthritis.org\/profile\/Mandy","photoUrl":"https:\/\/w3.vanillicon.com\/v2\/3bb30e7b7a68a580c153eb2b49c9fdbf.svg","dateLastActive":"2021-09-19T16:30:35+00:00","banned":0,"punished":0,"private":false},"displayOptions":{"showUserLabel":false,"showCompactUserInfo":true,"showDiscussionLink":true,"showPostLink":true,"showCategoryLink":false,"renderFullContent":false,"expandByDefault":false},"url":"https:\/\/community.versusarthritis.org\/discussion\/54251\/fibromyalgia","embedType":"quote","name":"Fibromyalgia"}"> https://community.versusarthritis.org/discussion/54251/fibromyalgia

这是非常孤立的。我在2006年被诊断出患有纤维肌痛。我几乎可以继续前进。我所在的地区没有小组，我没有开车，只有家人和有限的朋友支持。药物做得不多，并且有很多副作用，最终可能会更糟。学习加快自己的步伐对于帮助最大程度地减少耀斑非常重要。有时，要做您真正想要的事情可能会引起耀斑，但是有时候值得取决于场合。如果您知道自己有一个重要的事件即将来临，那么请尽可能地预订能源。It’s difficult to get family and friends to really understand the complexity of this condition, I found passing on links to websites useful so they could read up stuff at their leisure, that way they don’t have to sit and listen to lists of ailments associated with fibromyalgia. I think there should be more accessible resources available for people with long term chronic health conditions. Perhaps things will move forwards soon.

纤维肌痛

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