Recent diagnosis of psoriatic-arthritis

jonv6068

你好。

我是新来的。上周，我在几个月后疼痛，膝盖和脚踝疼痛后被诊断出患有银屑病性关节炎。现在必须接受这种诊断以及未来会带来什么。任何建议或建议将不胜感激。

shell_h

Hi@jonv6068，，，，welcome to the online community!

You used to be into fitness, especially running, but this year had to stop due to the onset of psoriatic arthritis in your back, knees and ankles.

Versus Arthritis has actually just launched a new campaign about moving and exercising with arthritis. It only started this week, so not everything is up yet, but I'd suggest looking up the Lets Move information - it may give you an idea of what exercise you can do or try out to get the same feeling you used to while still being kind to your body and taking your new circumstances into account:

https://action.versusarthritis.org/page/64082/-/1

I believe they are planning on having a you tube channel with different exercises too a little later.

In addition, here's some information which is a little more general but may be helpful:

//www.wfysxh.com/about-arthritis/conditions/psoriatic-arthritis/

//www.wfysxh.com/about-arthritis/exercising-with-arthritis/

在线社区是一个可爱的地方，成员友好而支持。我希望您坚持下去，并找到更多的对话。

很高兴见到你，

Shell

SuzieBlue

你好。我是新来的。我的臀部，颈部，腕前臂和肩膀上的疼痛疼痛后，我被诊断出患有银屑病关节炎。我被诊断出了3周前。本周几天，我一直在苦苦挣扎。这让我如此低。还有其他人遭受这一苦难吗？有人有任何帮助吗？它会变得更好吗？

艾伦

Hello@SuzieBlue

Welcome to the Versus Arthritis Online Community.

I see your diagnosis of Psoriatic Arthritis (PsA) is a really recent one and you are feeling crippling fatigue. I wonder whether you are on any medication to get your disease under control yet? It can take many weeks for symptoms such as you describe to begin to subside once you are on the right treatment.

我不愿意在上面的帖子中复制Shell的信息，并且确保您已经阅读了该链接并知道银屑病关节炎是什么。

However this might be of interest to you it's about fatigue:

//www.wfysxh.com/about-arthritis/managing-symptoms/managing-fatigue/

Do join in wherever you feel comfortable.

Best wishes

艾伦。

jonv6068

Hello@SuzieBlue，，，，

My psoriatic-arthritis also gives me extreme fatigue. I’ve learnt not to fight it and to get plenty of rest including resting for a short periods throughout the day . I’ve also been trying to eat a very healthy diet and lose some weight and that seems to be help. My fatigue comes and goes so I would try not to worry too much as it may pass soon. I’ve also had to accept that my life has had to slow down and that seems to make things easier.

Hope you find a way of managing it soon. Let me know of anything you find helpful.

Jon

毛发效果123

大家好！

Diagnosed with psoriatic arthritis Friday just gone !

年龄44岁的美发师，我的手指有

起初尽管4月疼痛是非常明显的t my fingers stuff due to not doing hair but it didn’t let up and could hardly hold the kettle or put my clothes away on hangers had a few g.p telephone appointments then referred to rhumatology initial appointment was telephone then xrays and Mri and diagnosis .

ive got to have urgent appointment for steroid injects and talk about management I guess medicine I am a bit scared

I have had to stop working it’s so painful

Anyone have any idea what medication I’ll be on ?

bernie

hello everyone

ive been diagnosed with psoriatic arthritis and am waiting to see a specialist, i have it in my elbows, fingers and ankles. some days i find it impossible to use my fingers, im scared about having to have injections, how long do they last for?

AJ_X

Hi@bernie

欢迎来到在线社区论坛，非常高兴您找到了我们并能够提出问题等。

Have a look around the other forums as there might be other members that are going through the same thing as you.

I have attached the link regarding the Psoriatic Arthritis. This is the same one that is towards the top of this page.

//www.wfysxh.com/about-arthritis/conditions/psoriatic-arthritis/

AJ_x

Brynmor

Hi@bernie

I can really relate to being worried about having injectionsI am one of those who "don't look" at any point when I see the nurse for anything like that!

Having said that, I would really recommend reading this thread by@Hairobsessed123关于第一次将类固醇注射到她的手指中。她正在联系自己的进度，这听起来绝对很棒！

Just recently been diagnosed with PSA consultant has arranged for me to have steroid injections into my affected fingers I’m scared 😱 <\/p>

I don’t know what happens after will I be put on long term medication and what is the best medication to go on ? <\/p>

I feel like I’m rapidly getting more pains it started with stiff fingers in April and now there very painful also getting bad pains in left heel and under my right foot 😓<\/p>

im ok and I’m dealing with it well staying positive ect just don’t know what happens next I guess I’m asking people’s experiences when first diagnosed? <\/p>

many thanks in advance<\/p>","bodyRaw":"[{\"insert\":\"Just recently been diagnosed with PSA consultant has arranged for me to have steroid injections into my affected fingers I’m scared 😱 \\nI don’t know what happens after will I be put on long term medication and what is the best medication to go on ? \\nI feel like I’m rapidly getting more pains it started with stiff fingers in April and now there very painful also getting bad pains in left heel and under my right foot 😓\\nim ok and I’m dealing with it well staying positive ect just don’t know what happens next I guess I’m asking people’s experiences when first diagnosed? \\nmany thanks in advance \\n\"}]","format":"rich","dateInserted":"2021-01-05T14:06:01+00:00","insertUser":{"userID":115898,"name":"Hairobsessed123","url":"https:\/\/community.versusarthritis.org\/profile\/Hairobsessed123","photoUrl":"https:\/\/us.v-cdn.net\/6031919\/uploads\/userpics\/FRX2XCGNW9AP\/n0AL0NYJ6CA3H.jpeg","dateLastActive":"2022-05-11T12:56:01+00:00","banned":0,"punished":0,"private":false},"displayOptions":{"showUserLabel":false,"showCompactUserInfo":true,"showDiscussionLink":true,"showPostLink":true,"showCategoryLink":false,"renderFullContent":false,"expandByDefault":false},"url":"https:\/\/community.versusarthritis.org\/discussion\/53354\/first-time-having-steroid-injections","embedType":"quote","name":"First time having steroid injections"}"> https://community.versusarthritis.org/discussion/53354/first-time-having-steroid-injections

Best wishes

Brynmor

毛发效果123

Hi@jonv6068

i was petrified when he said I was to have joint injections and told me to get someone to drive me home !!

Actually turned out I had a jab straight into my bottom ! Which didn’t hurt at all I had no facial flushing and I slept really well try not to google steroid injections!!

just recently been diagnosed with psoriatic arthritis myself ! It took 9 days for mine to kick in buts it’s fan not to have hot sausage fingers still have a bit of pain in my heels and under foot but it’s manageable! My rhumatology consultant said they last up to 2 months x

Nen150880

I was diagnosed with Psoriatic arthritis when I was 20, I'm now 40. I missed out on quite a lot growing up. My advice as said in the other comments, listen to your body. If it says stop or slow down then do. Have lots of rest and don't let people make you feel guilty or lazy for doing so. Most people are uneducated about the affects of arthritis including fatigue and feeling low. Make sure you know your condition and know your limits. Get help and don't hide it or bottle your feelings.

Christina91

@Nen150880令人耳目一新的阅读。我29岁，已经患有PSA多年了。疲劳的水平令人恐惧，我正在使用的一种新药物的副作用也使生活中的小事变得困难。我是一名牙科护士，有一个3岁的儿子，其中两个在身体和精神上都耗尽了您的想象。作为妈妈和同事，我感到非常内gui和失败，我得到了他们的印象，他们不完全了解我的感觉或对PSA有任何了解。

我工作很长时间，目前我已经离开了很多。但是漫长的日子正在消除我的精力，我真的很挣扎着长期做什么。如果有人有任何建议或建议，请放弃。我有点迷路了！

jonv6068

Hi@Hairobsessed123，，，，how are you finding the steroid injections?

毛发效果123

Hey@jonv6068

Took 9 days to kick in increased pain first 2 days then lasted about 5 weeks In total didn’t help with my heel pain at all !

Im now on Sulfasalazine

Been on it nearly a week so far so good no side affects yet ! Thursday I increase dose by another tablet so 2 x daily week 3 3x daily up to week 4 4x daily hopefully I’ll be able to tolerate them !!

How are you coping with recent diagnosis?

I’’m feeling more positive now

jonv6068

Hi@Hairobsessed123，，，，

我现在已经接受了诊断的要求，并学会了接受它。仍然有好日子，但它们大多是好的。您如何找到疲劳？一天上班后，我真的很累。

在过去的六个月中，我一直服用90 mg etoricoxib片剂。当我看到风湿病学家最后一次提到，他提到把我放在撒洛嗪上，所以我预计当我接下来看到他，因为目前的药物没有足够的帮助。希望您可以容忍它们，并且可以帮助他们。坚强点

compulsive_rambler

Hello. I’m new here. I have been diagnosed with psoriatic arthritis after suffering terrible pain in my hips, neck, wrists forearms and shoulders. I was diagnosed 3 weeks ago. For a few days this week, I have struggled with crippling fatigue. It makes me so low. Does anyone else suffer with this and has anyone got any tips to help? Does it ever get better?<\/p>","bodyRaw":"[{\"insert\":\"Hello. I’m new here. I have been diagnosed with psoriatic arthritis after suffering terrible pain in my hips, neck, wrists forearms and shoulders. I was diagnosed 3 weeks ago. For a few days this week, I have struggled with crippling fatigue. It makes me so low. Does anyone else suffer with this and has anyone got any tips to help? Does it ever get better?\\n\"}]","format":"rich","dateInserted":"2020-10-19T13:31:52+00:00","insertUser":{"userID":115436,"name":"SuzieBlue","url":"https:\/\/community.versusarthritis.org\/profile\/SuzieBlue","photoUrl":"https:\/\/w6.vanillicon.com\/v2\/6da0e3bbb15aedea84f65db9493ed874.svg","dateLastActive":"2020-10-18T17:57:09+00:00","banned":0,"punished":0,"private":false},"displayOptions":{"showUserLabel":false,"showCompactUserInfo":true,"showDiscussionLink":false,"showPostLink":false,"showCategoryLink":false,"renderFullContent":false,"expandByDefault":false},"url":"https:\/\/community.versusarthritis.org\/discussion\/comment\/673329#Comment_673329","embedType":"quote"}"> https://community.versusarthritis.org/discussion/comment/673329#Comment_673329

I get forearm pain too, meaning the centre of the forearm, not a joint, for just minutes at a time. It's an unsetting "fullness" and looks very slightly enlarged in the middle until it stops. I thought it might be small minor blood clots of some kind as I also have had strange bruising phenomena since having covid, which has caused long-term blood clotting issues in some people as well as obviously being able to trigger autoimmune diseases such as PsA because any infection can do that. So I still wonder if it's related to the autoimmune conditions or a separate blood problem triggered by the same infection; no doctor I've mentioned it to has any idea what it might be.

可能不危险,我只是想感觉confident in my diagnosis and weird stuff like this that isn't mentioned anywhere relating to PsA makes me wonder. It's too intermittent, infrequent and brief to have any chance of getting scanned while it's happening, though the GP got one done just in case it was caused by something that could be seen even when it's not happening. Doesn't go red, just feels "full" and uncomfortable, mildly painful. I'm diagnosed "probable psoriatic arthritis" by a rheumatologist, but not proven as the ankle scans only found synovial thickening (ultrasound) and a "tiny effusion" (MRI without contrast, which I have since learned can't tell the difference between effusions and synovial thickening), but he doesn't know what might be going on in my forearm. Have you been told what that might be?

毛发效果123

Hi@jonv6068

对不起，迟到了，疲劳很糟糕，但是我需要休息！

药物进展顺利，我要在第3周进行，因此每天3次片剂，可以很好地容忍它们。

pain in heel has gone the last couple of mornings stiffness and swelling subsided loads !! I do have neck pain thou lol dr said it may be due to a crick or it cud be my PsA but I’ll give it a week and see how it goes !

Yarryman

大家好，我患有银屑病关节炎已有22年以上，是的，诊断后有生命。

我不会撒谎，这是一个过山车，有很多好时光和坏时代，有用的药物以及无法奏效我的药物。我的最初建议是教育自己的疾病是什么，这个名字会使人们感到困惑，并且会更适当地称为炎症性疾病。关于饮食变化和降低压力水平变化的许多报道都有帮助。

For me the start was when my mum died, it could have been a trigger or just coincidence. I have had a number of drugs some cured me almost instantly but then stopped working after 3-4 years. I would recommend not to depend too much on steroids as you cant have them very often and they can have other impacts but help when the inflammation is at a peak. I am a fairly fit person and was a keen runner before it happened I stopped for a couple of years and then started slowly cycling again which is much gentler on the joints, swimming is also good. At the moment I am in a good place with a new drug and feeling good after 9 months of pain at a 2 or 3 out of 10, I am cycling and jogging a few times a week.

Remember inflammation makes you tired and you need more rest, I have often a short 20 min sleep each day when I am inflamed.

我希望这次漫步对某人有帮助，我乐于聊天并传递我的好和坏经历。重要的是要保持心情，并记住一旦您解决了任何当前问题，就有足够的生活要积极。

Des

ChrisK

Hello@Yarryman

Welcome to our Versus Arthritis forum. Here you will find the members are friendly, helpful and empathic. They will answer any of your questions/queries as they relate to their own conditions.

从诊断开始时，您已经将银屑病关节炎的经历联系起来真是太好了。您已经表达了各种方法，使您的生活方式影响了您的生活方式。

Above there are several links to information Versus Arthritis produce on Psoriatic Arthritis and it may help you to have a look at these.

Thank you again for posting about your experience of Psoriatic Arthritis. Looking forward to reading your future posts and hearing how you are getting on.

Best wishes

ChrisK

Flycatcher

Hi All, I have had psoriatic arthritis for over 22 years, yes there is life after diagnosis 😁<\/span>. <\/p>

I wont lie it has been a roller coaster with a wide variety of good times and bad times, drugs that work and drugs that didnt work me. My initial advice would be to educate yourself on what the disease is, the name can confuse people and would be more appropriately called inflammatory disease. There many reports of of diet changes and reduced stress level changes all helping.<\/p>

For me the start was when my mum died, it could have been a trigger or just coincidence. I have had a number of drugs some cured me almost instantly but then stopped working after 3-4 years. I would recommend not to depend too much on steroids as you cant have them very often and they can have other impacts but help when the inflammation is at a peak. I am a fairly fit person and was a keen runner before it happened I stopped for a couple of years and then started slowly cycling again which is much gentler on the joints, swimming is also good. At the moment I am in a good place with a new drug and feeling good after 9 months of pain at a 2 or 3 out of 10, I am cycling and jogging a few times a week. <\/p>

Remember inflammation makes you tired and you need more rest, I have often a short 20 min sleep each day when I am inflamed.<\/p>

I hope this ramble helps someone and I am happy to chat and pass on my good and bad experiences. Its important to keep your mood up and remember there is plenty of life to be positive about once you get through any current issues.<\/p>

Des<\/p>","bodyRaw":"[{\"insert\":\"Hi All, I have had psoriatic arthritis for over 22 years, yes there is life after diagnosis \"},{\"insert\":{\"emoji\":{\"emojiChar\":\"😁\"}}},{\"insert\":\". \\nI wont lie it has been a roller coaster with a wide variety of good times and bad times, drugs that work and drugs that didnt work me. My initial advice would be to educate yourself on what the disease is, the name can confuse people and would be more appropriately called inflammatory disease. There many reports of of diet changes and reduced stress level changes all helping.\\nFor me the start was when my mum died, it could have been a trigger or just coincidence. I have had a number of drugs some cured me almost instantly but then stopped working after 3-4 years. I would recommend not to depend too much on steroids as you cant have them very often and they can have other impacts but help when the inflammation is at a peak. I am a fairly fit person and was a keen runner before it happened I stopped for a couple of years and then started slowly cycling again which is much gentler on the joints, swimming is also good. At the moment I am in a good place with a new drug and feeling good after 9 months of pain at a 2 or 3 out of 10, I am cycling and jogging a few times a week. \\nRemember inflammation makes you tired and you need more rest, I have often a short 20 min sleep each day when I am inflamed.\\nI hope this ramble helps someone and I am happy to chat and pass on my good and bad experiences. Its important to keep your mood up and remember there is plenty of life to be positive about once you get through any current issues.\\nDes\\n\"}]","format":"rich","dateInserted":"2021-04-19T11:40:43+00:00","insertUser":{"userID":117153,"name":"Yarryman","url":"https:\/\/community.versusarthritis.org\/profile\/Yarryman","photoUrl":"https:\/\/us.v-cdn.net\/6031919\/uploads\/userpics\/NOS38K5VI57F\/n7RS1VSGYUN6C.jpeg","dateLastActive":"2021-04-19T11:57:44+00:00","banned":0,"punished":0,"private":false},"displayOptions":{"showUserLabel":false,"showCompactUserInfo":true,"showDiscussionLink":false,"showPostLink":false,"showCategoryLink":false,"renderFullContent":false,"expandByDefault":false},"url":"https:\/\/community.versusarthritis.org\/discussion\/comment\/679523#Comment_679523","embedType":"quote"}"> https://community.versusarthritis.org/discussion/comment/679523#comment_679523

Great stuff, thanks for the "life after diagnosis" reminder... Sometimes I just catastrophise and think that it'll all just get worse and how did it come to this etc etc.

But maybe adalimumab kicks in and I will again have days when I forget what constant low pain is...

Flycatcher

Hello @SuzieBlue<\/a>,<\/p>

My psoriatic-arthritis also gives me extreme fatigue. I’ve learnt not to fight it and to get plenty of rest including resting for a short periods throughout the day . I’ve also been trying to eat a very healthy diet and lose some weight and that seems to be help. My fatigue comes and goes so I would try not to worry too much as it may pass soon. I’ve also had to accept that my life has had to slow down and that seems to make things easier.<\/p>

Hope you find a way of managing it soon. Let me know of anything you find helpful.<\/p>

Jon<\/p>","bodyRaw":"[{\"insert\":\"Hello \"},{\"insert\":{\"mention\":{\"name\":\"SuzieBlue\",\"userID\":115436}}},{\"insert\":\",\\nMy psoriatic-arthritis also gives me extreme fatigue. I’ve learnt not to fight it and to get plenty of rest including resting for a short periods throughout the day . I’ve also been trying to eat a very healthy diet and lose some weight and that seems to be help. My fatigue comes and goes so I would try not to worry too much as it may pass soon. I’ve also had to accept that my life has had to slow down and that seems to make things easier.\\nHope you find a way of managing it soon. Let me know of anything you find helpful.\\nJon\\n\\n\\n\"}]","format":"rich","dateInserted":"2020-10-19T20:58:56+00:00","insertUser":{"userID":115209,"name":"jonv6068","url":"https:\/\/community.versusarthritis.org\/profile\/jonv6068","photoUrl":"https:\/\/w5.vanillicon.com\/v2\/556154ab3c1aee60bcd3ab95dc1f31d9.svg","dateLastActive":"2021-05-11T12:58:34+00:00","banned":0,"punished":0,"private":false},"displayOptions":{"showUserLabel":false,"showCompactUserInfo":true,"showDiscussionLink":false,"showPostLink":false,"showCategoryLink":false,"renderFullContent":false,"expandByDefault":false},"url":"https:\/\/community.versusarthritis.org\/discussion\/comment\/673349#Comment_673349","embedType":"quote"}"> https://community.versusarthritis.org/discussion/comment/673349#Comment_673349

I am giving myself time to rest but feel guilty for not exercising. I eat healthily but then get anxious and have bulimia relapse.

I asked for CBT help via my GP, but have had an eating disorder for over 20 years since my teens.

节食，减肥和锻炼运动的想法使我感到恐惧！这几乎是PTSD的事情。

Dieting and obsessing with exercise is bad for me because of the eating disorder, but good for my health and joints. I've gained weight in lockdown, not obese but definitely heavy, plus 1 or 2 sizes.

I'm conflicted about weight loss because of this. I believe inflammation and eating disorders are linked - research seems to be pointing that way.

我告诉自己，目标只是采取一致的步骤，使每天变得更好一些，但是却被焦虑，复发和持续的爆发所困扰。

我今天加入了社区，希望仅阅读每个人的经历会让我对银屑病关节炎的孤立不那么孤立。

Flycatcher

https:\/\/community.versusarthritis.org\/discussion\/comment\/673329#Comment_673329<\/a><\/p>

I get forearm pain too, meaning the centre of the forearm, not a joint, for just minutes at a time. It's an unsetting "fullness" and looks very slightly enlarged in the middle until it stops. I thought it might be small minor blood clots of some kind as I also have had strange bruising phenomena since having covid, which has caused long-term blood clotting issues in some people as well as obviously being able to trigger autoimmune diseases such as PsA because any infection can do that. So I still wonder if it's related to the autoimmune conditions or a separate blood problem triggered by the same infection; no doctor I've mentioned it to has any idea what it might be. <\/p>

It's probably not dangerous, I just want to feel confident in my diagnosis and weird stuff like this that isn't mentioned anywhere relating to PsA makes me wonder. It's too intermittent, infrequent and brief to have any chance of getting scanned while it's happening, though the GP got one done just in case it was caused by something that could be seen even when it's not happening. Doesn't go red, just feels "full" and uncomfortable, mildly painful. I'm diagnosed "probable psoriatic arthritis" by a rheumatologist, but not proven as the ankle scans only found synovial thickening (ultrasound) and a "tiny effusion" (MRI without contrast, which I have since learned can't tell the difference between effusions and synovial thickening), but he doesn't know what might be going on in my forearm. Have you been told what that might be?<\/p>","bodyRaw":"[{\"insert\":\"https:\\\/\\\/community.versusarthritis.org\\\/discussion\\\/comment\\\/673329#Comment_673329\",\"attributes\":{\"link\":\"https:\\\/\\\/community.versusarthritis.org\\\/discussion\\\/comment\\\/673329#Comment_673329\"}},{\"insert\":\"\\n\"},{\"insert\":\"I get forearm pain too, meaning the centre of the forearm, not a joint, for just minutes at a time. It's an unsetting \\\"fullness\\\" and looks very slightly enlarged in the middle until it stops. I thought it might be small minor blood clots of some kind as I also have had strange bruising phenomena since having covid, which has caused long-term blood clotting issues in some people as well as obviously being able to trigger autoimmune diseases such as PsA because any infection can do that. So I still wonder if it's related to the autoimmune conditions or a separate blood problem triggered by the same infection; no doctor I've mentioned it to has any idea what it might be. \\nIt's probably not dangerous, I just want to feel confident in my diagnosis and weird stuff like this that isn't mentioned anywhere relating to PsA makes me wonder. It's too intermittent, infrequent and brief to have any chance of getting scanned while it's happening, though the GP got one done just in case it was caused by something that could be seen even when it's not happening. Doesn't go red, just feels \\\"full\\\" and uncomfortable, mildly painful. I'm diagnosed \\\"probable psoriatic arthritis\\\" by a rheumatologist, but not proven as the ankle scans only found synovial thickening (ultrasound) and a \\\"tiny effusion\\\" (MRI without contrast, which I have since learned can't tell the difference between effusions and synovial thickening), but he doesn't know what might be going on in my forearm. Have you been told what that might be?\\n\"}]","format":"rich","dateInserted":"2021-03-27T11:53:36+00:00","insertUser":{"userID":116757,"name":"compulsive_rambler","url":"https:\/\/community.versusarthritis.org\/profile\/compulsive_rambler","photoUrl":"https:\/\/we.vanillicon.com\/v2\/efdeef89d346701b5cce493069c827d2.svg","dateLastActive":"2021-05-09T09:17:02+00:00","banned":0,"punished":0,"private":false},"displayOptions":{"showUserLabel":false,"showCompactUserInfo":true,"showDiscussionLink":false,"showPostLink":false,"showCategoryLink":false,"renderFullContent":false,"expandByDefault":false},"url":"https:\/\/community.versusarthritis.org\/discussion\/comment\/678754#Comment_678754","embedType":"quote"}"> https://community.versusarthritis.org/discussion/comment/678754#Comment_678754

I've been getting strange bruises, too!

去年有两次我本来可以遇到的，但现在不确定和接种疫苗。

风湿病学家和GP说，他们不知道发生了什么事，建议我碰到东西，这是不真实的。感觉被解雇了，就像我30多岁初接受医学诊断一样。

I thought maybe it's related to inflammation but perhaps covid! But won't find out now!