Recent diagnosis of psoriatic-arthritis

jonv6068 · 5.2020年9月,17:16

Hello.

Im new here. Last week I was diagnosed with psoriatic-arthritis after suffering a sore back, knees and ankles for several months. Now having to come to terms with this diagnosis and what the future will bring. Any suggestions or advice would be appreciated.

Shell_H · 5.Sep 2020, 17:21

Hi@jonv6068, welcome to the online community!

您曾经进入健身，尤其是跑步，但是由于背部，膝盖和脚踝的银屑病性关节炎发作，今年必须停止。

Versus Arthritis has actually just launched a new campaign about moving and exercising with arthritis. It only started this week, so not everything is up yet, but I'd suggest looking up the Lets Move information - it may give you an idea of what exercise you can do or try out to get the same feeling you used to while still being kind to your body and taking your new circumstances into account:

https://action.versusarthritis.org/page/64082/-/1

我相信他们计划在稍后再进行不同练习的You Tube频道。

In addition, here's some information which is a little more general but may be helpful:

//www.wfysxh.com/about-arthritis/conditions/psoriatic-chrthitis/

//www.wfysxh.com/about-arthritis/exercising-with-arthritis/

The online community is a lovely place, the members are friendly and supportive. I hope you stick around and find more conversations to join in with.

Good to meet you,

Shell

SuzieBlue · 19. 2020年10月13日：13：31

Hello. I’m new here. I have been diagnosed with psoriatic arthritis after suffering terrible pain in my hips, neck, wrists forearms and shoulders. I was diagnosed 3 weeks ago. For a few days this week, I have struggled with crippling fatigue. It makes me so low. Does anyone else suffer with this and has anyone got any tips to help? Does it ever get better?

Ellen · 19. 2020年10月13日：13：39

Hello@SuzieBlue

欢迎to the Versus Arthritis Online Community.

I see your diagnosis of Psoriatic Arthritis (PsA) is a really recent one and you are feeling crippling fatigue. I wonder whether you are on any medication to get your disease under control yet? It can take many weeks for symptoms such as you describe to begin to subside once you are on the right treatment.

I am loathe to duplicate Shell's information in the post above and am sure you have already read the link and know what Psoriatic Arthritis is.

However this might be of interest to you it's about fatigue:

//www.wfysxh.com/about-arthritis/managing-symptoms/managing-fatigue/

Do join in wherever you feel comfortable.

最好的祝愿

艾伦。

jonv6068 · 19. Oct 2020, 20:58

Hello@SuzieBlue,

My psoriatic-arthritis also gives me extreme fatigue. I’ve learnt not to fight it and to get plenty of rest including resting for a short periods throughout the day . I’ve also been trying to eat a very healthy diet and lose some weight and that seems to be help. My fatigue comes and goes so I would try not to worry too much as it may pass soon. I’ve also had to accept that my life has had to slow down and that seems to make things easier.

Hope you find a way of managing it soon. Let me know of anything you find helpful.

乔恩

Hairobsessed123 · 15. Dec 2020, 21:44

Hi everyone!

星期五被诊断出患有银屑病关节炎！

age 44 hairdresser and I have it in my fingers

Pain was very noticeable in April initially thought my fingers stuff due to not doing hair but it didn’t let up and could hardly hold the kettle or put my clothes away on hangers had a few g.p telephone appointments then referred to rhumatology initial appointment was telephone then xrays and Mri and diagnosis .

ive got to have urgent appointment for steroid injects and talk about management I guess medicine I am a bit scared

I have had to stop working it’s so painful

Anyone have any idea what medication I’ll be on ?

伯尼 · 29. 2021年1月，12：38

hello everyone

ive been diagnosed with psoriatic arthritis and am waiting to see a specialist, i have it in my elbows, fingers and ankles. some days i find it impossible to use my fingers, im scared about having to have injections, how long do they last for?

Aj_x · 29. Jan 2021, 13:35

Hi@Bernie

欢迎to the Online Community Forum, so pleased you have found us and are able to ask questions etc.

Have a look around the other forums as there might be other members that are going through the same thing as you.

I have attached the link regarding the Psoriatic Arthritis. This is the same one that is towards the top of this page.

//www.wfysxh.com/about-arthritis/conditions/psoriatic-chrthitis/

AJ_X

布林莫尔 · 29. Jan 2021, 16:15

Hi@Bernie

我真的可以与担心注射I am one of those who "don't look" at any point when I see the nurse for anything like that!

话虽如此，我真的建议您阅读此主题@Hairobsessed123about having first time steroid injections into her fingers. She is relating her progress which sounds absolutely fantastic!

Just recently been diagnosed with PSA consultant has arranged for me to have steroid injections into my affected fingers I’m scared 😱 <\/p>

I don’t know what happens after will I be put on long term medication and what is the best medication to go on ? <\/p>

I feel like I’m rapidly getting more pains it started with stiff fingers in April and now there very painful also getting bad pains in left heel and under my right foot 😓<\/p>

im ok and I’m dealing with it well staying positive ect just don’t know what happens next I guess I’m asking people’s experiences when first diagnosed? <\/p>

many thanks in advance<\/p>","bodyRaw":"[{\"insert\":\"Just recently been diagnosed with PSA consultant has arranged for me to have steroid injections into my affected fingers I’m scared 😱 \\nI don’t know what happens after will I be put on long term medication and what is the best medication to go on ? \\nI feel like I’m rapidly getting more pains it started with stiff fingers in April and now there very painful also getting bad pains in left heel and under my right foot 😓\\nim ok and I’m dealing with it well staying positive ect just don’t know what happens next I guess I’m asking people’s experiences when first diagnosed? \\nmany thanks in advance \\n\"}]","format":"rich","dateInserted":"2021-01-05T14:06:01+00:00","insertUser":{"userID":115898,"name":"Hairobsessed123","url":"https:\/\/community.versusarthritis.org\/profile\/Hairobsessed123","photoUrl":"https:\/\/us.v-cdn.net\/6031919\/uploads\/userpics\/FRX2XCGNW9AP\/n0AL0NYJ6CA3H.jpeg","dateLastActive":"2023-01-15T08:38:10+00:00","banned":0,"punished":0,"private":false},"displayOptions":{"showUserLabel":false,"showCompactUserInfo":true,"showDiscussionLink":true,"showPostLink":true,"showCategoryLink":false,"renderFullContent":false,"expandByDefault":false},"url":"https:\/\/community.versusarthritis.org\/discussion\/53354\/first-time-having-steroid-injections","embedType":"quote","name":"First time having steroid injections"}"> https://community.versusarthritis.org/discussion/53354/firstime-time-having-steroid Injections

最好的祝愿

布林莫尔

Hairobsessed123 · 30. Jan 2021, 10:47

Hi@jonv6068

i was petrified when he said I was to have joint injections and told me to get someone to drive me home !!

实际上，事实证明我直接进入了我的底部！我一点也没有任何伤害，我没有面部冲洗，我睡得很好，尽量不要对类固醇注射！

just recently been diagnosed with psoriatic arthritis myself ! It took 9 days for mine to kick in buts it’s fan not to have hot sausage fingers still have a bit of pain in my heels and under foot but it’s manageable! My rhumatology consultant said they last up to 2 months x

Nen150880 · 4. 2021年2月，08：26

我20岁时被诊断出患有银屑病关节炎，现在40岁。我错过了很多成长。我在其他评论中所说的建议，听你的身体。如果说停止或放慢脚步，那就去做。休息很多，不要让别人让您感到内gui或懒惰。大多数人对关节炎的影响不受教育，包括疲劳和感觉较低。确保您知道自己的状况并知道自己的限制。获得帮助，不要隐藏或打瓶您的感受。

克里斯蒂娜91 · 22. Mar 2021, 12:30

@Nen150880so refreshing reading this. Im 29 and have been suffering with PSA for many years now. The level of fatigue is dreadful and side effects from a new medication I'm on is making even the small things in life difficult. Im a dental nurse and have a 3 year old son, two of which are physically and mentally draining as you can imagine. I feel so guilty and a failure as a mum and colleague, I get the impression they don't fully understand how I'm feeling or have any knowledge about PSA.

I work long hours and I'm off quite a bit at the moment. But the long days are zapping my energy and I'm really struggling with what to do long term. If anyone has any advice or suggestions please fire away. I'm feeling a bit lost!

jonv6068 · 22. 2021年3月，14:10

Hi@Hairobsessed123, how are you finding the steroid injections?

Hairobsessed123 · 23. 2021年3月，15:51

Hey@jonv6068

花了9天的时间才开始增加疼痛，然后总共持续了大约5周，这根本没有帮助我的脚跟疼痛！

我现在在磺胺丙嗪上

Been on it nearly a week so far so good no side affects yet ! Thursday I increase dose by another tablet so 2 x daily week 3 3x daily up to week 4 4x daily hopefully I’ll be able to tolerate them !!

How are you coping with recent diagnosis?

I’’m feeling more positive now

jonv6068 · 23. 2021年3月，16：43

Hi@Hairobsessed123,

I’ve come to terms with the diagnosis now and learning to live with it. Still have good and bad days but they’re mostly good. How do you find the fatigue? I feel really exhausted after a day at work.

I’ve been taking 90 mg Etoricoxib tablets for the last six months . When I saw the rheumatologist last he mentioned putting me on sulphasalazine so I anticipate starting that when I see him next as the current meds don’t help enough. Hope you can tolerate them and they help. Stay strong

compulsive_rambler · 27. Mar 2021, 11:53

Hello. I’m new here. I have been diagnosed with psoriatic arthritis after suffering terrible pain in my hips, neck, wrists forearms and shoulders. I was diagnosed 3 weeks ago. For a few days this week, I have struggled with crippling fatigue. It makes me so low. Does anyone else suffer with this and has anyone got any tips to help? Does it ever get better?<\/p>","bodyRaw":"[{\"insert\":\"Hello. I’m new here. I have been diagnosed with psoriatic arthritis after suffering terrible pain in my hips, neck, wrists forearms and shoulders. I was diagnosed 3 weeks ago. For a few days this week, I have struggled with crippling fatigue. It makes me so low. Does anyone else suffer with this and has anyone got any tips to help? Does it ever get better?\\n\"}]","format":"rich","dateInserted":"2020-10-19T13:31:52+00:00","insertUser":{"userID":115436,"name":"SuzieBlue","url":"https:\/\/community.versusarthritis.org\/profile\/SuzieBlue","photoUrl":"https:\/\/w6.vanillicon.com\/v2\/6da0e3bbb15aedea84f65db9493ed874.svg","dateLastActive":"2020-10-18T17:57:09+00:00","banned":0,"punished":0,"private":false},"displayOptions":{"showUserLabel":false,"showCompactUserInfo":true,"showDiscussionLink":false,"showPostLink":false,"showCategoryLink":false,"renderFullContent":false,"expandByDefault":false},"url":"https:\/\/community.versusarthritis.org\/discussion\/comment\/673329#Comment_673329","embedType":"quote"}"> https://community.versusarthritis.org/discussion/comment/673329#Comment_673329

我也会感到前臂疼痛，这意味着前臂的中心，而不是关节的中心，一次只需几分钟。这是一个令人不安的“丰满”，中间看起来非常略微扩大，直到停止。我认为这可能是某种小小的小血块，因为自covid以来，我也患有奇怪的瘀伤现象，这在某些人中引起了长期血液凝结问题，并且显然能够触发自身免疫性疾病，例如PSA，因为任何感染都可以做到这一点。因此，我仍然想知道它是否与自身免疫性疾病或同一感染触发的单独的血液问题有关；没有医生我提到过它可能会发生什么。

It's probably not dangerous, I just want to feel confident in my diagnosis and weird stuff like this that isn't mentioned anywhere relating to PsA makes me wonder. It's too intermittent, infrequent and brief to have any chance of getting scanned while it's happening, though the GP got one done just in case it was caused by something that could be seen even when it's not happening. Doesn't go red, just feels "full" and uncomfortable, mildly painful. I'm diagnosed "probable psoriatic arthritis" by a rheumatologist, but not proven as the ankle scans only found synovial thickening (ultrasound) and a "tiny effusion" (MRI without contrast, which I have since learned can't tell the difference between effusions and synovial thickening), but he doesn't know what might be going on in my forearm. Have you been told what that might be?

Hairobsessed123 · 6. Apr 2021, 08:51

Hi@jonv6068

sorry for late reply the fatigue is awful but I do rest when I need to !

药物是我在3日3星期3 x tablets a day and tolerating them well .

pain in heel has gone the last couple of mornings stiffness and swelling subsided loads !! I do have neck pain thou lol dr said it may be due to a crick or it cud be my PsA but I’ll give it a week and see how it goes !

Yarryman · 19. 2021年4月，11：40

嗨,我have had psoriatic arthritis for over 22 years, yes there is life after diagnosis.

I wont lie it has been a roller coaster with a wide variety of good times and bad times, drugs that work and drugs that didnt work me. My initial advice would be to educate yourself on what the disease is, the name can confuse people and would be more appropriately called inflammatory disease. There many reports of of diet changes and reduced stress level changes all helping.

For me the start was when my mum died, it could have been a trigger or just coincidence. I have had a number of drugs some cured me almost instantly but then stopped working after 3-4 years. I would recommend not to depend too much on steroids as you cant have them very often and they can have other impacts but help when the inflammation is at a peak. I am a fairly fit person and was a keen runner before it happened I stopped for a couple of years and then started slowly cycling again which is much gentler on the joints, swimming is also good. At the moment I am in a good place with a new drug and feeling good after 9 months of pain at a 2 or 3 out of 10, I am cycling and jogging a few times a week.

Remember inflammation makes you tired and you need more rest, I have often a short 20 min sleep each day when I am inflamed.

I hope this ramble helps someone and I am happy to chat and pass on my good and bad experiences. Its important to keep your mood up and remember there is plenty of life to be positive about once you get through any current issues.

des

ChrisK · 19. 2021年4月，12：05

Hello@Yarryman

欢迎到我们与关节炎论坛。beplay体育怎么下载在这里你所愿ll find the members are friendly, helpful and empathic. They will answer any of your questions/queries as they relate to their own conditions.

It is great that you have related your experiences of Psoriatic Arthritis from the beginning of your diagnosis. You have expressed various ways having this condition has affected your way of life, also the various drugs you have taken.

Above there are several links to information Versus Arthritis produce on Psoriatic Arthritis and it may help you to have a look at these.

Thank you again for posting about your experience of Psoriatic Arthritis. Looking forward to reading your future posts and hearing how you are getting on.

最好的祝愿

ChrisK

Flycatcher · 6. May 2021, 19:38

Hi All, I have had psoriatic arthritis for over 22 years, yes there is life after diagnosis 😁<\/span>. <\/p>

I wont lie it has been a roller coaster with a wide variety of good times and bad times, drugs that work and drugs that didnt work me. My initial advice would be to educate yourself on what the disease is, the name can confuse people and would be more appropriately called inflammatory disease. There many reports of of diet changes and reduced stress level changes all helping.<\/p>

For me the start was when my mum died, it could have been a trigger or just coincidence. I have had a number of drugs some cured me almost instantly but then stopped working after 3-4 years. I would recommend not to depend too much on steroids as you cant have them very often and they can have other impacts but help when the inflammation is at a peak. I am a fairly fit person and was a keen runner before it happened I stopped for a couple of years and then started slowly cycling again which is much gentler on the joints, swimming is also good. At the moment I am in a good place with a new drug and feeling good after 9 months of pain at a 2 or 3 out of 10, I am cycling and jogging a few times a week. <\/p>

Remember inflammation makes you tired and you need more rest, I have often a short 20 min sleep each day when I am inflamed.<\/p>

I hope this ramble helps someone and I am happy to chat and pass on my good and bad experiences. Its important to keep your mood up and remember there is plenty of life to be positive about once you get through any current issues.<\/p>

Des<\/p>","bodyRaw":"[{\"insert\":\"Hi All, I have had psoriatic arthritis for over 22 years, yes there is life after diagnosis \"},{\"insert\":{\"emoji\":{\"emojiChar\":\"😁\"}}},{\"insert\":\". \\nI wont lie it has been a roller coaster with a wide variety of good times and bad times, drugs that work and drugs that didnt work me. My initial advice would be to educate yourself on what the disease is, the name can confuse people and would be more appropriately called inflammatory disease. There many reports of of diet changes and reduced stress level changes all helping.\\nFor me the start was when my mum died, it could have been a trigger or just coincidence. I have had a number of drugs some cured me almost instantly but then stopped working after 3-4 years. I would recommend not to depend too much on steroids as you cant have them very often and they can have other impacts but help when the inflammation is at a peak. I am a fairly fit person and was a keen runner before it happened I stopped for a couple of years and then started slowly cycling again which is much gentler on the joints, swimming is also good. At the moment I am in a good place with a new drug and feeling good after 9 months of pain at a 2 or 3 out of 10, I am cycling and jogging a few times a week. \\nRemember inflammation makes you tired and you need more rest, I have often a short 20 min sleep each day when I am inflamed.\\nI hope this ramble helps someone and I am happy to chat and pass on my good and bad experiences. Its important to keep your mood up and remember there is plenty of life to be positive about once you get through any current issues.\\nDes\\n\"}]","format":"rich","dateInserted":"2021-04-19T11:40:43+00:00","insertUser":{"userID":117153,"name":"Yarryman","url":"https:\/\/community.versusarthritis.org\/profile\/Yarryman","photoUrl":"https:\/\/us.v-cdn.net\/6031919\/uploads\/userpics\/NOS38K5VI57F\/n7RS1VSGYUN6C.jpeg","dateLastActive":"2021-04-19T11:57:44+00:00","banned":0,"punished":0,"private":false},"displayOptions":{"showUserLabel":false,"showCompactUserInfo":true,"showDiscussionLink":false,"showPostLink":false,"showCategoryLink":false,"renderFullContent":false,"expandByDefault":false},"url":"https:\/\/community.versusarthritis.org\/discussion\/comment\/679523#Comment_679523","embedType":"quote"}"> https://community.versusarthritis.org/discussion/comment/679523#Comment_679523

很棒的东西，感谢您的“诊断后的生活”提醒...有时我只是灾难性的，并认为一切都会变得更糟，以及它如何变化。

But maybe adalimumab kicks in and I will again have days when I forget what constant low pain is...

Flycatcher · 6. May 2021, 19:38

Hello @SuzieBlue<\/a>,<\/p>

My psoriatic-arthritis also gives me extreme fatigue. I’ve learnt not to fight it and to get plenty of rest including resting for a short periods throughout the day . I’ve also been trying to eat a very healthy diet and lose some weight and that seems to be help. My fatigue comes and goes so I would try not to worry too much as it may pass soon. I’ve also had to accept that my life has had to slow down and that seems to make things easier.<\/p>

Hope you find a way of managing it soon. Let me know of anything you find helpful.<\/p>

Jon<\/p>","bodyRaw":"[{\"insert\":\"Hello \"},{\"insert\":{\"mention\":{\"name\":\"SuzieBlue\",\"userID\":115436}}},{\"insert\":\",\\nMy psoriatic-arthritis also gives me extreme fatigue. I’ve learnt not to fight it and to get plenty of rest including resting for a short periods throughout the day . I’ve also been trying to eat a very healthy diet and lose some weight and that seems to be help. My fatigue comes and goes so I would try not to worry too much as it may pass soon. I’ve also had to accept that my life has had to slow down and that seems to make things easier.\\nHope you find a way of managing it soon. Let me know of anything you find helpful.\\nJon\\n\\n\\n\"}]","format":"rich","dateInserted":"2020-10-19T20:58:56+00:00","insertUser":{"userID":115209,"name":"jonv6068","url":"https:\/\/community.versusarthritis.org\/profile\/jonv6068","photoUrl":"https:\/\/w5.vanillicon.com\/v2\/556154ab3c1aee60bcd3ab95dc1f31d9.svg","dateLastActive":"2021-05-11T12:58:34+00:00","banned":0,"punished":0,"private":false},"displayOptions":{"showUserLabel":false,"showCompactUserInfo":true,"showDiscussionLink":false,"showPostLink":false,"showCategoryLink":false,"renderFullContent":false,"expandByDefault":false},"url":"https:\/\/community.versusarthritis.org\/discussion\/comment\/673349#Comment_673349","embedType":"quote"}"> https://community.versusarthritis.org/discussion/comment/673349#Comment_673349

I am giving myself time to rest but feel guilty for not exercising. I eat healthily but then get anxious and have bulimia relapse.

I asked for CBT help via my GP, but have had an eating disorder for over 20 years since my teens.

The idea of dieting, losing weight and exerting exercise makes me terrified! It's almost a ptsd thing.

Dieting and obsessing with exercise is bad for me because of the eating disorder, but good for my health and joints. I've gained weight in lockdown, not obese but definitely heavy, plus 1 or 2 sizes.

I'm conflicted about weight loss because of this. I believe inflammation and eating disorders are linked - research seems to be pointing that way.

I'm telling myself that the goal is just to take consistent steps to make everyday a little better, but have been gripped by anxiety and relapse and ongoing flare up.

I joined the community today and hope that just reading everyone's experiences will make me feel less isolated with Psoriatic Arthritis.

Flycatcher · 6. May 2021, 19:38

https:\/\/community.versusarthritis.org\/discussion\/comment\/673329#Comment_673329<\/a><\/p>

I get forearm pain too, meaning the centre of the forearm, not a joint, for just minutes at a time. It's an unsetting "fullness" and looks very slightly enlarged in the middle until it stops. I thought it might be small minor blood clots of some kind as I also have had strange bruising phenomena since having covid, which has caused long-term blood clotting issues in some people as well as obviously being able to trigger autoimmune diseases such as PsA because any infection can do that. So I still wonder if it's related to the autoimmune conditions or a separate blood problem triggered by the same infection; no doctor I've mentioned it to has any idea what it might be. <\/p>

It's probably not dangerous, I just want to feel confident in my diagnosis and weird stuff like this that isn't mentioned anywhere relating to PsA makes me wonder. It's too intermittent, infrequent and brief to have any chance of getting scanned while it's happening, though the GP got one done just in case it was caused by something that could be seen even when it's not happening. Doesn't go red, just feels "full" and uncomfortable, mildly painful. I'm diagnosed "probable psoriatic arthritis" by a rheumatologist, but not proven as the ankle scans only found synovial thickening (ultrasound) and a "tiny effusion" (MRI without contrast, which I have since learned can't tell the difference between effusions and synovial thickening), but he doesn't know what might be going on in my forearm. Have you been told what that might be?<\/p>","bodyRaw":"[{\"insert\":\"https:\\\/\\\/community.versusarthritis.org\\\/discussion\\\/comment\\\/673329#Comment_673329\",\"attributes\":{\"link\":\"https:\\\/\\\/community.versusarthritis.org\\\/discussion\\\/comment\\\/673329#Comment_673329\"}},{\"insert\":\"\\n\"},{\"insert\":\"I get forearm pain too, meaning the centre of the forearm, not a joint, for just minutes at a time. It's an unsetting \\\"fullness\\\" and looks very slightly enlarged in the middle until it stops. I thought it might be small minor blood clots of some kind as I also have had strange bruising phenomena since having covid, which has caused long-term blood clotting issues in some people as well as obviously being able to trigger autoimmune diseases such as PsA because any infection can do that. So I still wonder if it's related to the autoimmune conditions or a separate blood problem triggered by the same infection; no doctor I've mentioned it to has any idea what it might be. \\nIt's probably not dangerous, I just want to feel confident in my diagnosis and weird stuff like this that isn't mentioned anywhere relating to PsA makes me wonder. It's too intermittent, infrequent and brief to have any chance of getting scanned while it's happening, though the GP got one done just in case it was caused by something that could be seen even when it's not happening. Doesn't go red, just feels \\\"full\\\" and uncomfortable, mildly painful. I'm diagnosed \\\"probable psoriatic arthritis\\\" by a rheumatologist, but not proven as the ankle scans only found synovial thickening (ultrasound) and a \\\"tiny effusion\\\" (MRI without contrast, which I have since learned can't tell the difference between effusions and synovial thickening), but he doesn't know what might be going on in my forearm. Have you been told what that might be?\\n\"}]","format":"rich","dateInserted":"2021-03-27T11:53:36+00:00","insertUser":{"userID":116757,"name":"compulsive_rambler","url":"https:\/\/community.versusarthritis.org\/profile\/compulsive_rambler","photoUrl":"https:\/\/we.vanillicon.com\/v2\/efdeef89d346701b5cce493069c827d2.svg","dateLastActive":"2021-05-09T09:17:02+00:00","banned":0,"punished":0,"private":false},"displayOptions":{"showUserLabel":false,"showCompactUserInfo":true,"showDiscussionLink":false,"showPostLink":false,"showCategoryLink":false,"renderFullContent":false,"expandByDefault":false},"url":"https:\/\/community.versusarthritis.org\/discussion\/comment\/678754#Comment_678754","embedType":"quote"}"> https://community.versusarthritis.org/discussion/comment/678754#Comment_678754

I've been getting strange bruises, too!

There were two times last year when I could have had covid but not sure and vaccinated now.

The rheumatologist and the GP said they don't know what's going on and suggested I just bump into stuff, which is untrue. Felt dismissed, as has been often been the case with getting medical diagnosis in my early 30s.

I thought maybe it's related to inflammation but perhaps covid! But won't find out now!

Beverleyallen · 21. Dec 2022, 09:25

I was diagnosed with Psoriatic arthritis when I was 20, I'm now 40. I missed out on quite a lot growing up. My advice as said in the other comments, listen to your body. If it says stop or slow down then do. Have lots of rest and don't let people make you feel guilty or lazy for doing so. Most people are uneducated about the affects of arthritis including fatigue and feeling low. Make sure you know your condition and know your limits. Get help and don't hide it or bottle your feelings.<\/p>","bodyRaw":"[{\"insert\":\"I was diagnosed with Psoriatic arthritis when I was 20, I'm now 40. I missed out on quite a lot growing up. My advice as said in the other comments, listen to your body. If it says stop or slow down then do. Have lots of rest and don't let people make you feel guilty or lazy for doing so. Most people are uneducated about the affects of arthritis including fatigue and feeling low. Make sure you know your condition and know your limits. Get help and don't hide it or bottle your feelings. \\n\"}]","format":"rich","dateInserted":"2021-02-04T08:26:05+00:00","insertUser":{"userID":116318,"name":"Nen150880","url":"https:\/\/community.versusarthritis.org\/profile\/Nen150880","photoUrl":"https:\/\/wf.vanillicon.com\/v2\/f4eec18b4a50990fe07faa7988fbac59.svg","dateLastActive":"2021-02-08T14:15:53+00:00","banned":0,"punished":0,"private":false},"displayOptions":{"showUserLabel":false,"showCompactUserInfo":true,"showDiscussionLink":false,"showPostLink":false,"showCategoryLink":false,"renderFullContent":false,"expandByDefault":false},"url":"https:\/\/community.versusarthritis.org\/discussion\/comment\/676727#Comment_676727","embedType":"quote"}"> https://community.versusarthritis.org/discussion/comment/676727#Comment_676727

My son is 17 and it’s taken two years to get on medication for psoriatic inflammatory athritis he have been told when he’s fit enough it’s advisable to have a new knee rebuild and he cannot straighten his elbow out, awaiting a scan of his thorax because he has had a chronic cough for two years, fatigued and pain and swelling in most joints, he asks me everyday when are the tablets going to work, he missed out on the last two years, but accepting his diagnosis slowly xx

Beverleyallen · 21. Dec 2022, 09:34

I was diagnosed with Psoriatic arthritis when I was 20, I'm now 40. I missed out on quite a lot growing up. My advice as said in the other comments, listen to your body. If it says stop or slow down then do. Have lots of rest and don't let people make you feel guilty or lazy for doing so. Most people are uneducated about the affects of arthritis including fatigue and feeling low. Make sure you know your condition and know your limits. Get help and don't hide it or bottle your feelings.<\/p>","bodyRaw":"[{\"insert\":\"I was diagnosed with Psoriatic arthritis when I was 20, I'm now 40. I missed out on quite a lot growing up. My advice as said in the other comments, listen to your body. If it says stop or slow down then do. Have lots of rest and don't let people make you feel guilty or lazy for doing so. Most people are uneducated about the affects of arthritis including fatigue and feeling low. Make sure you know your condition and know your limits. Get help and don't hide it or bottle your feelings. \\n\"}]","format":"rich","dateInserted":"2021-02-04T08:26:05+00:00","insertUser":{"userID":116318,"name":"Nen150880","url":"https:\/\/community.versusarthritis.org\/profile\/Nen150880","photoUrl":"https:\/\/wf.vanillicon.com\/v2\/f4eec18b4a50990fe07faa7988fbac59.svg","dateLastActive":"2021-02-08T14:15:53+00:00","banned":0,"punished":0,"private":false},"displayOptions":{"showUserLabel":false,"showCompactUserInfo":true,"showDiscussionLink":false,"showPostLink":false,"showCategoryLink":false,"renderFullContent":false,"expandByDefault":false},"url":"https:\/\/community.versusarthritis.org\/discussion\/comment\/676727#Comment_676727","embedType":"quote"}"> https://community.versusarthritis.org/discussion/comment/676727#Comment_676727

My son is 17 and it’s taken two years to get on medication for psoriatic inflammatory athritis he have been told when he’s fit enough it’s advisable to have a new knee rebuild and he cannot straighten his elbow out, awaiting a scan of his thorax because he has had a chronic cough for two years, fatigued and pain and swelling in most joints, he asks me everyday when are the tablets going to work, he missed out on the last two years, but accepting his diagnosis slowly xx

Zibbydoo · 4.2023年1月,15:09

Hello,

I've been recently diagnosed with Psoriatic Arthritis, It's been quite scary how quickly it progressed with first symptoms of stiffness in mid October 2022 for which the GP receptionists refused me a GP appt and booked me a physio appt, thankfully the physio took a brief look and wrote to the GP that I needed to be urgently assessed and likely referred. Early Nov GP prescribed Naproxen and requested a referral to Rheumatology, but by mid November I could barely walk and do stairs with more joints becoming painful and I was pretty terrified not knowing what would be impacted next and how my mobility and quality of life would be affected.

The info pack I got from the hospital prior to my appt was really useful giving info on symptoms, the likely treatment options if diagnosis confirmed and advice regarding diet and activity and other resources. I did some research and this really helped me be a lot more optimistic and hopeful

I saw the Rheumatologist yesterday who confirmed Psoriatic Arthritis and Sjogren's syndrome with 11 joints currently impacted, immediately injected my worst joints with steroids with an additional shot in my bum. They also prescribed Methotrexate which I'll start under supervision of a nurse practitioner after I get some baseline blood tests and x-rays done. She also recommended Versus Arthritis as a good resource.

I'm still trying to come to terms with having a chronic disease both the pain and fatigue are pretty full on, but feel better that there is a treatment plan, hopeful that the steroids kick in and help with the immediate pain and grateful that there are things that I can do to help myself (diet and exercise).

I'm looking forward to joining this community to share support and experiences

谢谢

Recent diagnosis of psoriatic-arthritis

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