最近诊断的银屑病 - 关节炎

JONV6068 · 5.2020年9月,17:16

你好。

Im new here. Last week I was diagnosed with psoriatic-arthritis after suffering a sore back, knees and ankles for several months. Now having to come to terms with this diagnosis and what the future will bring. Any suggestions or advice would be appreciated.

壳_H · 5.Sep 2020, 17:21

你好@jonv6068，欢迎来到在线社区！

You used to be into fitness, especially running, but this year had to stop due to the onset of psoriatic arthritis in your back, knees and ankles.

beplay体育怎么下载实际上，关节炎实际上刚刚发起了有关运动和运动性关节炎的新运动。它仅始于本周，所以还不是一切都在启动，但是我建议您查找“让我们的移动信息” - 它可能会使您了解您可以做什么运动或尝试使您曾经相同的感觉对您的身体友善并考虑到新情况：

https://action.versusarthritis.org/page/64082/-/1

I believe they are planning on having a you tube channel with different exercises too a little later.

此外，这里有一些更笼统的信息，但可能会有所帮助：

//www.wfysxh.com/about-arthritis/conditions/psoriatic-arthritis/

//www.wfysxh.com/about-arthritis/cercising-with-arthritis/

在线社区是一个可爱的地方，成员友好而支持。我希望您坚持下去，并找到更多的对话。

Good to meet you,

壳

Suzieblue · 19. Oct 2020, 13:31

你好。I’m new here. I have been diagnosed with psoriatic arthritis after suffering terrible pain in my hips, neck, wrists forearms and shoulders. I was diagnosed 3 weeks ago. For a few days this week, I have struggled with crippling fatigue. It makes me so low. Does anyone else suffer with this and has anyone got any tips to help? Does it ever get better?

Ellen · 19. Oct 2020, 13:39

你好@suzieblue

欢迎来到与关节炎在线社区。beplay体育怎么下载

我看到您对银屑病关节炎（PSA）的诊断是最近的诊断，您感到疲劳。我想知道您是否正在服用任何药物来控制疾病？诸如您描述的症状可能需要数周的时间，一旦您接受正确的治疗，就可以开始消退。

I am loathe to duplicate Shell's information in the post above and am sure you have already read the link and know what Psoriatic Arthritis is.

但是，这可能引起您的兴趣，这是关于疲劳的：

//www.wfysxh.com/about-athritis/managing-symptoms/managing-fatigue/

无论您在哪里感到舒适，都可以加入。

Best wishes

Ellen.

JONV6068 · 19. 2020年10月，20:58

你好@suzieblue,

我的银屑病 - 关节炎也使我极度疲劳。我学会了不要与之抗争并获得大量休息，包括整天短暂的休息。我也一直在尝试吃非常健康的饮食，减轻体重，这似乎有帮助。我的疲劳来来去去，所以我会尽量不要担心太多，因为它可能很快就会过去。我还必须接受我的生活必须放慢脚步，这似乎使事情变得容易。

希望您能尽快找到一种管理方法。让我知道您发现的任何帮助。

Jon

Hairobsessed123 · 15. Dec 2020, 21:44

你好everyone!

Diagnosed with psoriatic arthritis Friday just gone !

年龄44岁的美发师，我的手指有

Pain was very noticeable in April initially thought my fingers stuff due to not doing hair but it didn’t let up and could hardly hold the kettle or put my clothes away on hangers had a few g.p telephone appointments then referred to rhumatology initial appointment was telephone then xrays and Mri and diagnosis .

香港专业教育学院必须紧急预约类固醇注射并谈论管理，我想医学我有点害怕

我不得不停止工作是如此痛苦

有人知道我要服用什么药物吗？

bernie · 29. Jan 2021, 12:38

大家好

我被诊断出患有银屑病关节炎，正在等待去看专家，我的肘部，手指和脚踝都有它。有时候，我发现不可能用手指，我害怕必须进行注射，它们持续了多长时间？

Aj_x · 29. 2021年1月，13：35

你好@bernie

Welcome to the Online Community Forum, so pleased you have found us and are able to ask questions etc.

围绕其他论坛进行查看，因为可能还有其他成员正在经历与您相同的事情。

我已经建立了有关银屑病关节炎的联系。这是朝向此页面顶部的相同的。

//www.wfysxh.com/about-arthritis/conditions/psoriatic-arthritis/

AJ_x

Brynmor · 29. 2021年1月，16：15

你好@bernie

I can really relate to being worried about having injections当我看到护士的事情时，我就是那些“不看”的人之一！

Having said that, I would really recommend reading this thread by@毛发效果123about having first time steroid injections into her fingers. She is relating her progress which sounds absolutely fantastic!

Just recently been diagnosed with PSA consultant has arranged for me to have steroid injections into my affected fingers I’m scared 😱 <\/p>

I don’t know what happens after will I be put on long term medication and what is the best medication to go on ? <\/p>

I feel like I’m rapidly getting more pains it started with stiff fingers in April and now there very painful also getting bad pains in left heel and under my right foot 😓<\/p>

im ok and I’m dealing with it well staying positive ect just don’t know what happens next I guess I’m asking people’s experiences when first diagnosed? <\/p>

many thanks in advance<\/p>","bodyRaw":"[{\"insert\":\"Just recently been diagnosed with PSA consultant has arranged for me to have steroid injections into my affected fingers I’m scared 😱 \\nI don’t know what happens after will I be put on long term medication and what is the best medication to go on ? \\nI feel like I’m rapidly getting more pains it started with stiff fingers in April and now there very painful also getting bad pains in left heel and under my right foot 😓\\nim ok and I’m dealing with it well staying positive ect just don’t know what happens next I guess I’m asking people’s experiences when first diagnosed? \\nmany thanks in advance \\n\"}]","format":"rich","dateInserted":"2021-01-05T14:06:01+00:00","insertUser":{"userID":115898,"name":"Hairobsessed123","url":"https:\/\/community.versusarthritis.org\/profile\/Hairobsessed123","photoUrl":"https:\/\/us.v-cdn.net\/6031919\/uploads\/userpics\/FRX2XCGNW9AP\/n0AL0NYJ6CA3H.jpeg","dateLastActive":"2023-01-16T11:17:48+00:00","banned":0,"punished":0,"private":false},"displayOptions":{"showUserLabel":false,"showCompactUserInfo":true,"showDiscussionLink":true,"showPostLink":true,"showCategoryLink":false,"renderFullContent":false,"expandByDefault":false},"url":"https:\/\/community.versusarthritis.org\/discussion\/53354\/first-time-having-steroid-injections","embedType":"quote","name":"First time having steroid injections"}"> https://community.versusarthritis.org/discussion/53354/first-time-having-steroid-injections

Best wishes

Brynmor

Hairobsessed123 · 30. 2021年1月，10：47

你好@jonv6068

当他说我要进行联合注射并告诉我让某人开车回家时，我很吓呆了！

Actually turned out I had a jab straight into my bottom ! Which didn’t hurt at all I had no facial flushing and I slept really well try not to google steroid injections!!

最近，我自己被诊断出患有银屑病关节炎！我花了9天的时间踢了一下，但是没有热香肠的手指在我的脚后跟和脚下仍然有点痛苦，但可以控制！我的鼻学顾问说，他们持续2个月x

NEN150880 · 4.Feb 2021, 08:26

I was diagnosed with Psoriatic arthritis when I was 20, I'm now 40. I missed out on quite a lot growing up. My advice as said in the other comments, listen to your body. If it says stop or slow down then do. Have lots of rest and don't let people make you feel guilty or lazy for doing so. Most people are uneducated about the affects of arthritis including fatigue and feeling low. Make sure you know your condition and know your limits. Get help and don't hide it or bottle your feelings.

Christina91 · 22. Mar 2021, 12:30

@nen150880so refreshing reading this. Im 29 and have been suffering with PSA for many years now. The level of fatigue is dreadful and side effects from a new medication I'm on is making even the small things in life difficult. Im a dental nurse and have a 3 year old son, two of which are physically and mentally draining as you can imagine. I feel so guilty and a failure as a mum and colleague, I get the impression they don't fully understand how I'm feeling or have any knowledge about PSA.

I work long hours and I'm off quite a bit at the moment. But the long days are zapping my energy and I'm really struggling with what to do long term. If anyone has any advice or suggestions please fire away. I'm feeling a bit lost!

JONV6068 · 22. Mar 2021, 14:10

你好@毛发效果123，您如何找到类固醇注射？

Hairobsessed123 · 23. Mar 2021, 15:51

嘿@jonv6068

花了9天时间,增加疼痛前2天then lasted about 5 weeks In total didn’t help with my heel pain at all !

Im now on Sulfasalazine

到目前为止，已经有将近一个星期的好了，还没有任何侧面影响！星期四，我增加了另一台平板电脑，所以每天2 x周3倍至每天4倍4倍，希望我能够忍受它们！

您如何应对最近的诊断？

我现在感觉更积极

JONV6068 · 23. Mar 2021, 16:43

你好@毛发效果123,

I’ve come to terms with the diagnosis now and learning to live with it. Still have good and bad days but they’re mostly good. How do you find the fatigue? I feel really exhausted after a day at work.

I’ve been taking 90 mg Etoricoxib tablets for the last six months . When I saw the rheumatologist last he mentioned putting me on sulphasalazine so I anticipate starting that when I see him next as the current meds don’t help enough. Hope you can tolerate them and they help. Stay strong

强制性_rambler · 27. 2021年3月，11：53

Hello. I’m new here. I have been diagnosed with psoriatic arthritis after suffering terrible pain in my hips, neck, wrists forearms and shoulders. I was diagnosed 3 weeks ago. For a few days this week, I have struggled with crippling fatigue. It makes me so low. Does anyone else suffer with this and has anyone got any tips to help? Does it ever get better?<\/p>","bodyRaw":"[{\"insert\":\"Hello. I’m new here. I have been diagnosed with psoriatic arthritis after suffering terrible pain in my hips, neck, wrists forearms and shoulders. I was diagnosed 3 weeks ago. For a few days this week, I have struggled with crippling fatigue. It makes me so low. Does anyone else suffer with this and has anyone got any tips to help? Does it ever get better?\\n\"}]","format":"rich","dateInserted":"2020-10-19T13:31:52+00:00","insertUser":{"userID":115436,"name":"SuzieBlue","url":"https:\/\/community.versusarthritis.org\/profile\/SuzieBlue","photoUrl":"https:\/\/w6.vanillicon.com\/v2\/6da0e3bbb15aedea84f65db9493ed874.svg","dateLastActive":"2020-10-18T17:57:09+00:00","banned":0,"punished":0,"private":false},"displayOptions":{"showUserLabel":false,"showCompactUserInfo":true,"showDiscussionLink":false,"showPostLink":false,"showCategoryLink":false,"renderFullContent":false,"expandByDefault":false},"url":"https:\/\/community.versusarthritis.org\/discussion\/comment\/673329#Comment_673329","embedType":"quote"}"> https://community.versusarthritis.org/discussion/comment/673329#comment_673329

I get forearm pain too, meaning the centre of the forearm, not a joint, for just minutes at a time. It's an unsetting "fullness" and looks very slightly enlarged in the middle until it stops. I thought it might be small minor blood clots of some kind as I also have had strange bruising phenomena since having covid, which has caused long-term blood clotting issues in some people as well as obviously being able to trigger autoimmune diseases such as PsA because any infection can do that. So I still wonder if it's related to the autoimmune conditions or a separate blood problem triggered by the same infection; no doctor I've mentioned it to has any idea what it might be.

这可能并不危险，我只想对自己的诊断充满信心，而与PSA有关的任何地方都没有提到过这种怪异的东西，这让我感到奇怪。这太间歇性，不经常且短暂地在发生时有任何机会被扫描，尽管GP完成了，以防万一它是由即使没有发生的事情都可以看到的。不会变红，只是感觉“饱满”，不舒服，轻度痛苦。我被风湿病学家诊断出“可能的牛皮癣关节炎”，但由于脚踝扫描只发现滑膜增厚（超声）和“微小积液”（MRI没有对比度，我已经学会了，但我无法分辨出差异积液和滑膜增厚），但他不知道我的前臂会发生什么。您是否被告知可能是什么？

Hairobsessed123 · 6. Apr 2021, 08:51

你好@jonv6068

sorry for late reply the fatigue is awful but I do rest when I need to !

药物进展顺利，我要在第3周进行，因此每天3次片剂，可以很好地容忍它们。

脚后跟的疼痛已经消失了最后几个早晨的僵硬和肿胀减轻了负载！我确实有脖子疼痛，你大声笑说这可能是由于crick造成的，或者是我的psa，但我会给它一个星期，看看它的发展如何！

Yarryman · 19. Apr 2021, 11:40

嗨,我have had psoriatic arthritis for over 22 years, yes there is life after diagnosis.

I wont lie it has been a roller coaster with a wide variety of good times and bad times, drugs that work and drugs that didnt work me. My initial advice would be to educate yourself on what the disease is, the name can confuse people and would be more appropriately called inflammatory disease. There many reports of of diet changes and reduced stress level changes all helping.

对我来说，开始是当我的妈妈去世时，这可能是一个触发或巧合。我有很多药物几乎立即治愈了我，但后来3 - 4年后停止工作。我建议不要过多地依赖类固醇，因为您经常拥有它们，并且它们可能会产生其他影响，但是当炎症达到顶峰时会有所帮助。我是一个相当健康的人，在发生之前，我是一个敏锐的跑步者，我停了几年，然后开始慢慢骑自行车，这在关节上更加温和，游泳也很好。目前，我在一个不错的地方吃了一种新药，在10个月的疼痛中，在10分中的2或3个月后感觉很好，我每周骑自行车和慢跑几次。

请记住，炎症会让您疲倦，您需要更多的休息，当我发炎时，我通常每天睡20分钟。

I hope this ramble helps someone and I am happy to chat and pass on my good and bad experiences. Its important to keep your mood up and remember there is plenty of life to be positive about once you get through any current issues.

Des

克里斯克 · 19. Apr 2021, 12:05

你好@yarryman

欢迎来到我们的与关节炎论坛。beplay体育怎么下载在这里，您会发现成员友好，乐于助人和同情。他们将在与自己的条件相关的情况下回答您的任何问题/疑问。

从诊断开始时，您已经将银屑病关节炎的经历联系起来真是太好了。您已经表达了各种方法，使您的生活方式影响了您的生活方式。

上面有几个有关银屑病关节炎的信息与关节炎产生的链接，它可能会帮助您了解这些。beplay体育怎么下载

再次感谢您发布有关银屑病关节炎的经历。期待阅读您未来的帖子并听取您的发展方式。

Best wishes

克里斯克

捕蝇器 · 6. May 2021, 19:38

Hi All, I have had psoriatic arthritis for over 22 years, yes there is life after diagnosis 😁<\/span>. <\/p>

I wont lie it has been a roller coaster with a wide variety of good times and bad times, drugs that work and drugs that didnt work me. My initial advice would be to educate yourself on what the disease is, the name can confuse people and would be more appropriately called inflammatory disease. There many reports of of diet changes and reduced stress level changes all helping.<\/p>

For me the start was when my mum died, it could have been a trigger or just coincidence. I have had a number of drugs some cured me almost instantly but then stopped working after 3-4 years. I would recommend not to depend too much on steroids as you cant have them very often and they can have other impacts but help when the inflammation is at a peak. I am a fairly fit person and was a keen runner before it happened I stopped for a couple of years and then started slowly cycling again which is much gentler on the joints, swimming is also good. At the moment I am in a good place with a new drug and feeling good after 9 months of pain at a 2 or 3 out of 10, I am cycling and jogging a few times a week. <\/p>

Remember inflammation makes you tired and you need more rest, I have often a short 20 min sleep each day when I am inflamed.<\/p>

I hope this ramble helps someone and I am happy to chat and pass on my good and bad experiences. Its important to keep your mood up and remember there is plenty of life to be positive about once you get through any current issues.<\/p>

Des<\/p>","bodyRaw":"[{\"insert\":\"Hi All, I have had psoriatic arthritis for over 22 years, yes there is life after diagnosis \"},{\"insert\":{\"emoji\":{\"emojiChar\":\"😁\"}}},{\"insert\":\". \\nI wont lie it has been a roller coaster with a wide variety of good times and bad times, drugs that work and drugs that didnt work me. My initial advice would be to educate yourself on what the disease is, the name can confuse people and would be more appropriately called inflammatory disease. There many reports of of diet changes and reduced stress level changes all helping.\\nFor me the start was when my mum died, it could have been a trigger or just coincidence. I have had a number of drugs some cured me almost instantly but then stopped working after 3-4 years. I would recommend not to depend too much on steroids as you cant have them very often and they can have other impacts but help when the inflammation is at a peak. I am a fairly fit person and was a keen runner before it happened I stopped for a couple of years and then started slowly cycling again which is much gentler on the joints, swimming is also good. At the moment I am in a good place with a new drug and feeling good after 9 months of pain at a 2 or 3 out of 10, I am cycling and jogging a few times a week. \\nRemember inflammation makes you tired and you need more rest, I have often a short 20 min sleep each day when I am inflamed.\\nI hope this ramble helps someone and I am happy to chat and pass on my good and bad experiences. Its important to keep your mood up and remember there is plenty of life to be positive about once you get through any current issues.\\nDes\\n\"}]","format":"rich","dateInserted":"2021-04-19T11:40:43+00:00","insertUser":{"userID":117153,"name":"Yarryman","url":"https:\/\/community.versusarthritis.org\/profile\/Yarryman","photoUrl":"https:\/\/us.v-cdn.net\/6031919\/uploads\/userpics\/NOS38K5VI57F\/n7RS1VSGYUN6C.jpeg","dateLastActive":"2021-04-19T11:57:44+00:00","banned":0,"punished":0,"private":false},"displayOptions":{"showUserLabel":false,"showCompactUserInfo":true,"showDiscussionLink":false,"showPostLink":false,"showCategoryLink":false,"renderFullContent":false,"expandByDefault":false},"url":"https:\/\/community.versusarthritis.org\/discussion\/comment\/679523#Comment_679523","embedType":"quote"}"> https://community.versusarthritis.org/discussion/comment/679523#Comment_679523

Great stuff, thanks for the "life after diagnosis" reminder... Sometimes I just catastrophise and think that it'll all just get worse and how did it come to this etc etc.

但是也许Adalimumab开始了，我会再次忘记持续的低疼痛的日子...

捕蝇器 · 6. May 2021, 19:38

Hello @SuzieBlue<\/a>,<\/p>

My psoriatic-arthritis also gives me extreme fatigue. I’ve learnt not to fight it and to get plenty of rest including resting for a short periods throughout the day . I’ve also been trying to eat a very healthy diet and lose some weight and that seems to be help. My fatigue comes and goes so I would try not to worry too much as it may pass soon. I’ve also had to accept that my life has had to slow down and that seems to make things easier.<\/p>

Hope you find a way of managing it soon. Let me know of anything you find helpful.<\/p>

Jon<\/p>","bodyRaw":"[{\"insert\":\"Hello \"},{\"insert\":{\"mention\":{\"name\":\"SuzieBlue\",\"userID\":115436}}},{\"insert\":\",\\nMy psoriatic-arthritis also gives me extreme fatigue. I’ve learnt not to fight it and to get plenty of rest including resting for a short periods throughout the day . I’ve also been trying to eat a very healthy diet and lose some weight and that seems to be help. My fatigue comes and goes so I would try not to worry too much as it may pass soon. I’ve also had to accept that my life has had to slow down and that seems to make things easier.\\nHope you find a way of managing it soon. Let me know of anything you find helpful.\\nJon\\n\\n\\n\"}]","format":"rich","dateInserted":"2020-10-19T20:58:56+00:00","insertUser":{"userID":115209,"name":"jonv6068","url":"https:\/\/community.versusarthritis.org\/profile\/jonv6068","photoUrl":"https:\/\/w5.vanillicon.com\/v2\/556154ab3c1aee60bcd3ab95dc1f31d9.svg","dateLastActive":"2021-05-11T12:58:34+00:00","banned":0,"punished":0,"private":false},"displayOptions":{"showUserLabel":false,"showCompactUserInfo":true,"showDiscussionLink":false,"showPostLink":false,"showCategoryLink":false,"renderFullContent":false,"expandByDefault":false},"url":"https:\/\/community.versusarthritis.org\/discussion\/comment\/673349#Comment_673349","embedType":"quote"}"> https://community.versusarthritis.org/discussion/comment/673349#comment_673349

我给自己时间休息，但因不运动而感到内gui。我健康地吃饭，但随后焦虑并患有贪食症复发。

我通过GP寻求CBT帮助，但是自从我十几岁以来就有20多年的饮食失调症。

节食，减肥和锻炼运动的想法使我感到恐惧！这几乎是PTSD的事情。

节食和痴迷于运动对我来说是不利的，因为饮食失调症，但对我的健康和关节有益。我在锁定方面体重增加了，不是肥胖，而是肯定很重，再加上1或2个尺寸。

因此，我对减肥感到矛盾。我相信炎症和饮食失调是联系的 - 研究似乎是指指出的。

I'm telling myself that the goal is just to take consistent steps to make everyday a little better, but have been gripped by anxiety and relapse and ongoing flare up.

I joined the community today and hope that just reading everyone's experiences will make me feel less isolated with Psoriatic Arthritis.

捕蝇器 · 6. May 2021, 19:38

https:\/\/community.versusarthritis.org\/discussion\/comment\/673329#Comment_673329<\/a><\/p>

I get forearm pain too, meaning the centre of the forearm, not a joint, for just minutes at a time. It's an unsetting "fullness" and looks very slightly enlarged in the middle until it stops. I thought it might be small minor blood clots of some kind as I also have had strange bruising phenomena since having covid, which has caused long-term blood clotting issues in some people as well as obviously being able to trigger autoimmune diseases such as PsA because any infection can do that. So I still wonder if it's related to the autoimmune conditions or a separate blood problem triggered by the same infection; no doctor I've mentioned it to has any idea what it might be. <\/p>

It's probably not dangerous, I just want to feel confident in my diagnosis and weird stuff like this that isn't mentioned anywhere relating to PsA makes me wonder. It's too intermittent, infrequent and brief to have any chance of getting scanned while it's happening, though the GP got one done just in case it was caused by something that could be seen even when it's not happening. Doesn't go red, just feels "full" and uncomfortable, mildly painful. I'm diagnosed "probable psoriatic arthritis" by a rheumatologist, but not proven as the ankle scans only found synovial thickening (ultrasound) and a "tiny effusion" (MRI without contrast, which I have since learned can't tell the difference between effusions and synovial thickening), but he doesn't know what might be going on in my forearm. Have you been told what that might be?<\/p>","bodyRaw":"[{\"insert\":\"https:\\\/\\\/community.versusarthritis.org\\\/discussion\\\/comment\\\/673329#Comment_673329\",\"attributes\":{\"link\":\"https:\\\/\\\/community.versusarthritis.org\\\/discussion\\\/comment\\\/673329#Comment_673329\"}},{\"insert\":\"\\n\"},{\"insert\":\"I get forearm pain too, meaning the centre of the forearm, not a joint, for just minutes at a time. It's an unsetting \\\"fullness\\\" and looks very slightly enlarged in the middle until it stops. I thought it might be small minor blood clots of some kind as I also have had strange bruising phenomena since having covid, which has caused long-term blood clotting issues in some people as well as obviously being able to trigger autoimmune diseases such as PsA because any infection can do that. So I still wonder if it's related to the autoimmune conditions or a separate blood problem triggered by the same infection; no doctor I've mentioned it to has any idea what it might be. \\nIt's probably not dangerous, I just want to feel confident in my diagnosis and weird stuff like this that isn't mentioned anywhere relating to PsA makes me wonder. It's too intermittent, infrequent and brief to have any chance of getting scanned while it's happening, though the GP got one done just in case it was caused by something that could be seen even when it's not happening. Doesn't go red, just feels \\\"full\\\" and uncomfortable, mildly painful. I'm diagnosed \\\"probable psoriatic arthritis\\\" by a rheumatologist, but not proven as the ankle scans only found synovial thickening (ultrasound) and a \\\"tiny effusion\\\" (MRI without contrast, which I have since learned can't tell the difference between effusions and synovial thickening), but he doesn't know what might be going on in my forearm. Have you been told what that might be?\\n\"}]","format":"rich","dateInserted":"2021-03-27T11:53:36+00:00","insertUser":{"userID":116757,"name":"compulsive_rambler","url":"https:\/\/community.versusarthritis.org\/profile\/compulsive_rambler","photoUrl":"https:\/\/we.vanillicon.com\/v2\/efdeef89d346701b5cce493069c827d2.svg","dateLastActive":"2021-05-09T09:17:02+00:00","banned":0,"punished":0,"private":false},"displayOptions":{"showUserLabel":false,"showCompactUserInfo":true,"showDiscussionLink":false,"showPostLink":false,"showCategoryLink":false,"renderFullContent":false,"expandByDefault":false},"url":"https:\/\/community.versusarthritis.org\/discussion\/comment\/678754#Comment_678754","embedType":"quote"}"> https://community.versusurthritis.org/discussion/comment/678754#comment_678754

我也一直在遇到奇怪的瘀伤！

There were two times last year when I could have had covid but not sure and vaccinated now.

The rheumatologist and the GP said they don't know what's going on and suggested I just bump into stuff, which is untrue. Felt dismissed, as has been often been the case with getting medical diagnosis in my early 30s.

我以为这也许与炎症有关，但也许是Covid！但是现在找不到！

Beverleyallen · 21. Dec 2022, 09:25

I was diagnosed with Psoriatic arthritis when I was 20, I'm now 40. I missed out on quite a lot growing up. My advice as said in the other comments, listen to your body. If it says stop or slow down then do. Have lots of rest and don't let people make you feel guilty or lazy for doing so. Most people are uneducated about the affects of arthritis including fatigue and feeling low. Make sure you know your condition and know your limits. Get help and don't hide it or bottle your feelings.<\/p>","bodyRaw":"[{\"insert\":\"I was diagnosed with Psoriatic arthritis when I was 20, I'm now 40. I missed out on quite a lot growing up. My advice as said in the other comments, listen to your body. If it says stop or slow down then do. Have lots of rest and don't let people make you feel guilty or lazy for doing so. Most people are uneducated about the affects of arthritis including fatigue and feeling low. Make sure you know your condition and know your limits. Get help and don't hide it or bottle your feelings. \\n\"}]","format":"rich","dateInserted":"2021-02-04T08:26:05+00:00","insertUser":{"userID":116318,"name":"Nen150880","url":"https:\/\/community.versusarthritis.org\/profile\/Nen150880","photoUrl":"https:\/\/wf.vanillicon.com\/v2\/f4eec18b4a50990fe07faa7988fbac59.svg","dateLastActive":"2021-02-08T14:15:53+00:00","banned":0,"punished":0,"private":false},"displayOptions":{"showUserLabel":false,"showCompactUserInfo":true,"showDiscussionLink":false,"showPostLink":false,"showCategoryLink":false,"renderFullContent":false,"expandByDefault":false},"url":"https:\/\/community.versusarthritis.org\/discussion\/comment\/676727#Comment_676727","embedType":"quote"}"> https://community.versusarthritis.org/discussion/comment/676727#Comment_676727

My son is 17 and it’s taken two years to get on medication for psoriatic inflammatory athritis he have been told when he’s fit enough it’s advisable to have a new knee rebuild and he cannot straighten his elbow out, awaiting a scan of his thorax because he has had a chronic cough for two years, fatigued and pain and swelling in most joints, he asks me everyday when are the tablets going to work, he missed out on the last two years, but accepting his diagnosis slowly xx

Beverleyallen · 21. Dec 2022, 09:34

I was diagnosed with Psoriatic arthritis when I was 20, I'm now 40. I missed out on quite a lot growing up. My advice as said in the other comments, listen to your body. If it says stop or slow down then do. Have lots of rest and don't let people make you feel guilty or lazy for doing so. Most people are uneducated about the affects of arthritis including fatigue and feeling low. Make sure you know your condition and know your limits. Get help and don't hide it or bottle your feelings.<\/p>","bodyRaw":"[{\"insert\":\"I was diagnosed with Psoriatic arthritis when I was 20, I'm now 40. I missed out on quite a lot growing up. My advice as said in the other comments, listen to your body. If it says stop or slow down then do. Have lots of rest and don't let people make you feel guilty or lazy for doing so. Most people are uneducated about the affects of arthritis including fatigue and feeling low. Make sure you know your condition and know your limits. Get help and don't hide it or bottle your feelings. \\n\"}]","format":"rich","dateInserted":"2021-02-04T08:26:05+00:00","insertUser":{"userID":116318,"name":"Nen150880","url":"https:\/\/community.versusarthritis.org\/profile\/Nen150880","photoUrl":"https:\/\/wf.vanillicon.com\/v2\/f4eec18b4a50990fe07faa7988fbac59.svg","dateLastActive":"2021-02-08T14:15:53+00:00","banned":0,"punished":0,"private":false},"displayOptions":{"showUserLabel":false,"showCompactUserInfo":true,"showDiscussionLink":false,"showPostLink":false,"showCategoryLink":false,"renderFullContent":false,"expandByDefault":false},"url":"https:\/\/community.versusarthritis.org\/discussion\/comment\/676727#Comment_676727","embedType":"quote"}"> https://community.versusarthritis.org/discussion/comment/676727#Comment_676727

My son is 17 and it’s taken two years to get on medication for psoriatic inflammatory athritis he have been told when he’s fit enough it’s advisable to have a new knee rebuild and he cannot straighten his elbow out, awaiting a scan of his thorax because he has had a chronic cough for two years, fatigued and pain and swelling in most joints, he asks me everyday when are the tablets going to work, he missed out on the last two years, but accepting his diagnosis slowly xx

Zibbydoo · 4.2023年1月,15:09

你好，

I've been recently diagnosed with Psoriatic Arthritis, It's been quite scary how quickly it progressed with first symptoms of stiffness in mid October 2022 for which the GP receptionists refused me a GP appt and booked me a physio appt, thankfully the physio took a brief look and wrote to the GP that I needed to be urgently assessed and likely referred. Early Nov GP prescribed Naproxen and requested a referral to Rheumatology, but by mid November I could barely walk and do stairs with more joints becoming painful and I was pretty terrified not knowing what would be impacted next and how my mobility and quality of life would be affected.

在我的Appt之前，我从医院获得的信息包确实非常有用，提供有关症状的信息，如果确定诊断，可能的治疗方法以及有关饮食和活动以及其他资源的建议。我做了一些研究，这确实帮助我变得更加乐观和充满希望

我昨天看到了风湿病学家，他证实了银屑病关节炎和Sjogren综合症，目前有11个关节受到影响，立即将我的最差关节注射了类固醇，并在我的流浪汉中又有额外的射击。他们还开了甲氨蝶呤，在我完成一些基线血液检查和X射线检查后，我将在护士从业者的监督下开始。她还建议将与关节炎与关节炎作为良好的资源。beplay体育怎么下载

我仍在尝试患有慢性疾病的疼痛和疲劳都非常饱满，但是有一个治疗计划会更好，希望类固醇能够启动并有助于立即疼痛，并感激不已我可以做的事情来帮助自己（饮食和运动）。

我期待加入这个社区分享支持和经验

Thanks

最近诊断的银屑病 - 关节炎

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